Stupid health insurance...

Please feel free to read, share your thoughts, your stories and connect with others!
Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Stupid health insurance...

Postby Mohrfamily » Fri Aug 02, 2019 3:59 am

My husband told me yesterday some distressing news. His nurse at the cancer center called to say that three insurance was going to stop paying for chemo because he had some progression!? They've changed his chemo to include irinotecan now versus waiting to check his numbers. How can they do this. The hits just keep coming.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stupid health insurance...

Postby stu » Fri Aug 02, 2019 1:56 pm

Hi .

I am the wrong person to reply as I don’t understand your insurance system but that sounds very rough . Hope you get some advise and help to get this sorted .
Hold on tight ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jolene
Posts: 180
Joined: Wed Jan 23, 2019 10:17 am

Re: Stupid health insurance...

Postby Jolene » Fri Aug 02, 2019 9:24 pm

Mohrfamily wrote:My husband told me yesterday some distressing news. His nurse at the cancer center called to say that three insurance was going to stop paying for chemo because he had some progression!? They've changed his chemo to include irinotecan now versus waiting to check his numbers. How can they do this. The hits just keep coming.


This just doesn't sound right. An insurance policy that doesn't pay because there's cancer progression ?

You may want to bring out the original contract of the insurance policy and read the small prints and challenge on their decisions on stop paying. Find out from the insurance company on what basis can they decide to stop paying ?

I had a few dispute with my insurance company along the way too. Always return to the original contract policy to look for basis. They sometimes can get it wrong too as medical paperwork can be so confusing sometimes.

Stay strong.
Dx @ 39 F on WW managmeent
Nov 18 - Dx of a mid-rectal tumour at T3N1M0 (2cm) 7cm from AV
Dec 18 - CRT, 28 sessions + Capecitabine at 3000mg daily
Jan - Mar - WW in place (12 weeks)
Mar'19 - MRI, PET, sig flex and biopsy ordered to determine being a WW candidate.
Apr - CCR, surgery on hold. 6 cycles of Xelox.
Aug - 6 cycles of Xelox completed
19 - Flex sig, biopsy, PET/MRI
2019 - 2023 - Every 6 mths - Full scope / Flex sig / biopsy, PET / MRI / CT every 6 months
Dec 23 - All clear 5 years on ! Thank god !

Rock_Robster
Posts: 1028
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Stupid health insurance...

Postby Rock_Robster » Fri Aug 02, 2019 11:38 pm

I am by no means an expert on the US health insurance system, but I’ve heard that sometimes asking your oncologist to make a “peer-to-peer” call to the insurance company’s medicos can help. If they’ve decided to stop funding that particular chemo regime because they consider it ineffective (i.e. showed progression), but your oncologist still wishes to give it, then he should have a rationale as to why he thinks it’s still potentially beneficial which he could explain to them?
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Stupid health insurance...

Postby TinaFish » Sat Aug 03, 2019 7:01 pm

Omg. Who is your husband's insurance company??
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

Pyro70
Posts: 156
Joined: Mon Jan 21, 2019 4:25 pm

Re: Stupid health insurance...

Postby Pyro70 » Sun Aug 04, 2019 7:13 pm

It doesn’t sound right to me either. And typically Nurses don’t know anything about insurance.
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

retiredteacher
Posts: 115
Joined: Sat Oct 21, 2017 1:34 pm

Re: Stupid health insurance...

Postby retiredteacher » Mon Aug 05, 2019 12:18 am

Repeating Rock Robster's advice. Please bring your oncologist into the discussion right away and ask him to have a conversation with the insurance company. I tried tangling with my insurance company for over six weeks (going out of network for surgery.) Got nowhere until I brought in my oncologist. I did have a detailed, well documented appeals letter I wrote myself and he carried that forward and obtained an approval. Being able to understand the NCCN flows really helped me navigate and better communicate the direction I was looking for.
RC F 63 9/17
Adeno 7 cm MSS G2 PET
T3N0M0
2.5K Cap/RT x 25
"Near complete response" PET 1/18
CEA 0.5 10/17, 0.6 10/18
MRI 2/18 yT2N0 12 cm fr AV 3 cm
LAR 2/18 yT1N0M0 0/21 G1 0.3 cm
CAPEOX 3/18, reduced to 80% at cycle 3
Completed 4 cycles; stopped, gut issues, liver enzymes
CT/ colonoscopy 11/18 NED
4/19 NED Sacral fractures/osteoporosis
"Caregiver" to the Iron Man
Hubby CRC Stage 3 2004 NED, Small Cell Lung Cancer Limited 2011 NED, Non-small Cell Lung Cancer 2019 NED October 2019


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Thedruid and 33 guests