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Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 8:38 pm
by TinaFish
Congratulations to you! I'm wishing/hoping desperately for my own NED status. Do you attribute your success to the HAI pump?
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 10:56 pm
by mariane
stu wrote:How Fantastic. If I knew you were over you could have popped in for tea . Or gone on a wee kayak trip with my mum . She is celebrating ten years as a stage 4 patient and went kayaking on open seas to celebrate. Not bad at 77 ! Needed a wee hand up though !
Glad you liked it !
Stu
Stu,
Next time, I will let you know. The island is one of my most likely stops on the way to visit my parents.
Your mum is truly amazing. We like kayaking as well. We have just bought 2 kayaks and explored Ft Myers area. Very nice. We need to try colder seas. My son is almost as tall as me and needs to develop some muscles
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 10:58 pm
by mariane
tater wrote:Such great news. My wife is coming up on two years NED, fingers crossed. Its people like you sharing your story that helps me get through this.
Tater, congratulations to your wife ! 2 years is excellent! Each month takes us closer to safety...
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 11:03 pm
by mariane
Jack&KatiesMommy wrote:I am so happy for you, Mariane! I remember when your twins were just tots! So glad that you are here with them!
Love,
Cynthia
Thank you very much Cynthia!!
I will be forever grateful for your help, patience and answers to my never ending questions. I am so happy that Keytruda is working for you. It has been quite a journey for us both.
Lots of love!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 11:12 pm
by mariane
juliej wrote:Congratulations and God bless you, Mariane!
I feel like we two are connected - pump sisters forever!!!
Hearing your good news warms my heart and gives me hope for all the rest of Kemeny's patients. If we, two of the least likely to survive, can make it, then others can too with the right approach!
xoxoxo,
Juliej
Thank you very much Julie!
You supported me during my multiple surgeries and like Cynthia sent so many good advises. I will never forget.
I always think that I will meet you one day in NY. Yes, we have a lot in common. We are both active. Did you climb more mountains? I remember how you told us how you hiked Mt Hood. Wow!
You are doing a fantastic job on the forum.
Love,
M
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 11:18 pm
by mariane
TinaFish wrote:Congratulations to you! I'm wishing/hoping desperately for my own NED status. Do you attribute your success to the HAI pump?
Thank you very much Tina!
Dr. Kemeny told me yesterday that I wouldn't have make it, if I had not come to MSKCC 4 years ago. She was so radiant yesterday. As Julie wrote we were both one of the least likely to survive.Almost exactly 4 years ago, I signed the palliative treatment consent form here , in Atlanta.
Good luck!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Wed Jul 31, 2019 9:17 pm
by HopeForJesse
Hi Mariane!
I am so very happy to hear this. I hope you are enjoying the summer and send big congratulations and praise to God for your healing.
Thank you for sharing good news. Really needs to hear this tonight. Jesse is so tired. 5FU added back recently and I think he is approaching 70+ rounds of chemo infusions. Too many to count...
But, we have a weekend trip planned to forget it all for a few days
XO
Mary
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Thu Aug 01, 2019 5:50 pm
by fumaros
Your news is amazing and encouraging.
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Fri Sep 13, 2019 10:47 pm
by cptmac
Congratulations Mariane!!! I'm thrilled!!!
Thank you for sharing your great news with everyone!!! It gives so many people so much hope.
I wish you continued survivorship!!!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Sat Sep 14, 2019 11:08 am
by boxhill
Congratultions, Mariane, and thanks for posting. It is so encouraging to the rest of us.