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Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 2:00 pm
by mariane
Hi!
I wanted to share the good news I received today. In June 2015 my whole little world collapsed , since I got diagnosed with inoperable stage 4 cancer. I was given zero chance to make it. I found CptMac post on one of the cancer forum which mentioned hepatic pump. This post made me seek Dr. Kemeny's help. I am here, off meds, and any treatment, living normal life, seeing my kids grow.
I wish you all good luck!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 2:11 pm
by Punky44
Congratulations!!!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 2:56 pm
by stu
Fantastic news . How time flies ! I can hardly believe it’s been four years .
So good to hear you are having fun with your family .
Stu
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 3:31 pm
by kandj
Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 3:32 pm
by mariane
Punky44 wrote:Congratulations!!!
Thank you!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 3:34 pm
by mariane
stu wrote:Fantastic news . How time flies ! I can hardly believe it’s been four years .
So good to hear you are having fun with your family .
Stu
Thank you!
All the best for mum and you! I will never forget your kind words during my multiple surgeries and chemo. We visited Scotland this summer. So beautiful!
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 3:36 pm
by mariane
kandj wrote:Wonderful news my friend! I remember seeing you in the hospital after your last surgery. So glad you are doing well.
Thank you! All the best for you and Joe! Time flies...
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 4:07 pm
by mpbser
Awesome news. You've been an inspiration to me.
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Mon Jul 29, 2019 6:28 pm
by mariane
mpbser wrote:Awesome news. You've been an inspiration to me.
Thank you!
I owe a lot people from this forum.
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 3:06 am
by stu
How Fantastic. If I knew you were over you could have popped in for tea . Or gone on a wee kayak trip with my mum . She is celebrating ten years as a stage 4 patient and went kayaking on open seas to celebrate. Not bad at 77 ! Needed a wee hand up though !
Glad you liked it !
Stu
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 3:06 am
by stu
How Fantastic. If I knew you were over you could have popped in for tea . Or gone on a wee kayak trip with my mum . She is celebrating ten years as a stage 4 patient and went kayaking on open seas to celebrate. Not bad at 77 ! Needed a wee hand up though !
Glad you liked it !
Stu
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 3:07 am
by stu
How Fantastic. If I knew you were over you could have popped in for tea . Or gone on a wee kayak trip with my mum . She is celebrating ten years as a stage 4 patient and went kayaking on open seas to celebrate. Not bad at 77 ! Needed a wee hand up though !
Glad you liked it !
Stu
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 9:43 am
by tater
Such great news. My wife is coming up on two years NED, fingers crossed. Its people like you sharing your story that helps me get through this.
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 2:48 pm
by Jack&KatiesMommy
I am so happy for you, Mariane! I remember when your twins were just tots! So glad that you are here with them!
Love,
Cynthia
Re: Stage 4, over 4 years since diagnosis, still NED
Posted: Tue Jul 30, 2019 5:08 pm
by juliej
Congratulations and God bless you, Mariane!
I feel like we two are connected - pump sisters forever!!!
Hearing your good news warms my heart and gives me hope for all the rest of Kemeny's patients. If we, two of the least likely to survive, can make it, then others can too with the right approach!
xoxoxo,
Juliej