Opinions on alternative treatments?

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Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sat Jul 27, 2019 10:46 pm

More from "dear Jane"


-Jane’s cancer story [04:48]
-How chemo makes cancer stem cells more aggressive [10:48]
-The ‘McLelland Metro Map’ of cancer fuel lines [15:02]

-More on anti-cancer superstar Berberine [35:49]
-Mebendazole (pin worm drug) works like chemo drug vincristine [45:00]
-How to incorporate off-label drugs into your protocol [51:00]
-Why off-label drugs aren’t being used [01:02:20]


https://www.chrisbeatcancer.com/15-year ... bel-drugs/

Currently in motion (pardon the pun) this clinical study....
Clinical Study Evaluating Mebendazole as Adjuvant Therapy in Patients With Colorectal Cancer
https://clinicaltrials.gov/ct2/show/NCT03925662
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Opinions on alternative treatments?

Postby TinaFish » Sat Jul 27, 2019 11:06 pm

Maggie Nell wrote:
TinaFish wrote:
Thank you so much for that feedback! I'm seeing my oncologist on Monday; I'll definitely be giving her the list of meds.

I read that book, "How to Starve Cancer, Without Starving Yourself," and the author discusses combating cancer metabolically. She says that there are different pathways by which the cancer feeds, and you can starve the cancer by blocking these pathways. Of course, the meds used to block the pathways are often difficult/impossible to obtain without a prescription, so she suggests the help of Care Oncology.



That's a book I'd not come across before now. Jane McClelland a chartered physiotherapist.....hmmm, I've heard of chartered accountants
of the Crimson Permanent Assurance sailing the wide accountan-sea but chartered physiotherapists?

Jane trained as a Chartered Physiotherapist, gaining a distinction in her exams and winning the Sarah Leeson Memorial Award for the most promising student. After qualifying she worked in the NHS and private practice for 12 years specialising in Neurology and then Orthopaedics when she left the profession to pursue more entrepreneurial endeavours. :shock:

Ms McClelland doesn't seem to have experience with colorectal cancers...

Throughout this time (from 1994 until 2004), Jane battled two aggressive cancers with metastatic spread, both were classed as ‘terminal’
https://www.howtostarvecancer.com/about-jane/

Being an aussie who trained at aussie's longest established private natural health college I support the wise exploration into streams
of treatment that are effective adjuvants to Western science-based approaches. One of my teachers, back in the days, was Ian Gawler
who burst onto the scene with his book, You Can Conquer Cancer in the mid-80s.

These are links to the profiles of two members of this forum who went the alternative route :

vilca11
memberlist.php?mode=viewprofile&u=91246

Roscoe Douglas
memberlist.php?mode=viewprofile&u=99854

Roscoe only made 8 posts in here singing the praises of Loma Linda. He wrote more on his Facebook.


Medical Oncologists - best practices
viewtopic.php?f=1&t=4676&p=34707&hilit=alternative+treatments#p34707

The sticky top of forum CANCER NEWS THREADS is worth foraging through for links.


End of the day, it's your body and you have the inalienable right to make your own decisions. One thing you will learn
from particular people in this forum, past and current, who have solid backgrounds in science and hunt out the research,
is how to apply critical thinking so you make an informed choice that is best for you and in keeping with your values.

Also just remembred lohidoc who was trying out some old cancer medicine that he wrote about on his blog.
https://marcdu4.wordpress.com/


From "LA Story":
Sarah Jessic Parker: "You wanna go and get a high colonic?"
Steve Martin: "An enema?"
SJP: "Yeah, it really clears out your mind."
SM: "I think they're doing it wrong".


Loving this discussion! Thank you, Maggie. I'll read your links. I've never heard of a Chartered Physiotherapist either, but Jane McClelland is British, and they've got weird things over there :P

You're right - Jane has no experience with colon cancer. But Care Oncology claims that their protocol is very effective against colon cancer. I've spoken to two of their oncologists (one is Stanford-trained) and two of their nurse practitioners, who always seem to have all the time in the world to discuss things with me.

I guess the real question is whether or not metabolic treatment is effective against cancer. I would never eschew conventional treatment, but I'm hoping to augment it with the metabolic treatment to gain more of an edge. That having been said, if my oncologist has concerns about these meds, then I will forego them.
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Opinions on alternative treatments?

Postby TinaFish » Sat Jul 27, 2019 11:16 pm

I'm too new to all of this to even try to comprehend Vilca11's signature:

11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

I see that she had stage 1 colon cancer and then metasteses... but you've got stage 4 if you've got metasteses, so I'm confused. "Doubled in size" sounds like a bad thing, and "no acceptable options, going home" sounds even worse! Did she give up?
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sat Jul 27, 2019 11:22 pm

Just remember Tinafish, that all the weirdos from Britain migrated to America 400 years ago..... :mrgreen:


I am Dianne's sister, Paula.
When she was diagnosed, Dianne was given three months. She lived 8 years and 3 months.


I don't know what protocols Dianne followed but she made 1651 posts in this forum that are golden..along with a mention of
the Carolina BioOncology Institute, that you can Google up.

memberlist.php?mode=viewprofile&u=1803

"I know money's an issue, but do you want that $3,500 in your pocket or do you want to be alive next year? That's pretty much the choice they're making." Ericson should know. She was diagnosed with advanced colon cancer in 2006. Just last year her husband had a routine colonoscopy that uncovered a polyp. Luckily, it wasn't cancer. But they still had to pay $700 out of pocket, because of the same Catch 22 in their screening benefits that is catching so many others by surprise.

https://www.wfae.org/post/catch-22-colonoscopy-coverage

An Unexpected Finding During Colonoscopy: Pinworms
https://www.cghjournal.org/article/S1542-3565(17)31114-X/fulltext

Who knew??!!!! :shock:
Last edited by Maggie Nell on Sun Jul 28, 2019 2:42 am, edited 1 time in total.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sat Jul 27, 2019 11:23 pm

TinaFish wrote:I'm too new to all of this to even try to comprehend Vilca11's signature:

I see that she had stage 1 colon cancer and then metasteses... but you've got stage 4 if you've got metasteses, so I'm confused. "Doubled in size" sounds like a bad thing, and "no acceptable options, going home" sounds even worse! Did she give up?


Stella (vilca11) made a quality-of-life decision. There is no "give up".

Better that you read the posts she made detailing the treatments she accessed, TinaFish.
Last edited by Maggie Nell on Thu Aug 08, 2019 6:55 am, edited 2 times in total.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

TinaFish
Posts: 178
Joined: Sun Jul 21, 2019 10:11 am

Re: Opinions on alternative treatments?

Postby TinaFish » Sat Jul 27, 2019 11:40 pm

Maggie Nell wrote:
TinaFish wrote:I'm too new to all of this to even try to comprehend Vilca11's signature:

I see that she had stage 1 colon cancer and then metasteses... but you've got stage 4 if you've got metasteses, so I'm confused. "Doubled in size" sounds like a bad thing, and "no acceptable options, going home" sounds even worse! Did she give up?


No. She died.

Better that you read the posts she made detailing the treatments she accessed, TinaFish.


Poor thing. I read her post where she was very excited that her liver metasteses were operable, but I don't know how to search through her posts to see her treatments. Obviously they didn't help her, but I'd like know what, exactly, didn't help her.
F 45, single mother to son, 7 and daughter, 3
DX: stage 4 Rectal Cancer June 2019
Tumor Location: ? cm above anal verge
Tumor type: Adenocarcinoma
Tumor size: 5 cm
Tumor grade: ?
TNM code: ?
Stage : Stage IV-B
# of cancerous lymph nodes: ?
Mets: Numerous mets to liver, lungs
CEA: 22 in July; 11 as of August 15, 7 as of Sept 20
MSI status: MSS
KRAS/BRAF status: KRAS mutation
surgery: TBD
Ostomy surgery: TBD
Radiation therapy: TBD
Chemotherapy : CAPEOX+Avastin, 6 cycles, with CT scans after 3rd and 6th cycle.

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sat Jul 27, 2019 11:48 pm

TinaFish wrote:
But Care Oncology claims that their protocol is very effective against colon cancer. I've spoken to two of their oncologists (one is Stanford-trained) and two of their nurse practitioners, who always seem to have all the time in the world to discuss things with me.


Of course they have giving you "all the time in the world to chew the fat" with you, they're being paid by the minute! 8)

Seriously, the central dogma of the alternative medicine folks is their critique of the cold mechanical production line reductionist style of orthodox mainstream
medical services. The quickie 10-15 minute appointment that is dehumanising. It's a bit of an old argument and you are fortunate to live in a country where
you have choices. I'm fortunate to live in a country where there is a national medicare service and my initial surgery didn't cost me a cracker!

I guess the real question is whether or not metabolic treatment is effective against cancer. I would never eschew conventional treatment, but I'm hoping to augment it with the metabolic treatment to gain more of an edge. That having been said, if my oncologist has concerns about these meds, then I will forego them.


Certainly becoming informed about these other treatments empowers you to have a fruitful conversation with your oncologist. It is important that
you gather around you a team of qualified and experienced medical professionals whose skills and expertise you trust. Stanford-trained means nothing
to me, that oncologist can bury their mistakes just as well as a specialist who trained at a less prestigious college.

In what way does Care Oncology support the claims they make about their protocol being "very effective"....
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sat Jul 27, 2019 11:54 pm

TinaFish wrote:
I read her post where she was very excited that her liver metasteses were operable, but I don't know how to search through her posts to see her treatments. Obviously they didn't help her, but I'd like know what, exactly, didn't help her.


Take the time to read through her posts and form your own conclusions.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Opinions on alternative treatments?

Postby CRguy » Sun Jul 28, 2019 2:21 am

radnyc wrote:And what is this nonsense about “western medicine”??

And you have been here long enough to know that I am certified in TCM (Traditional Chinese Medicine), acupuncture, herbal medicine, and laser therapy. All of which I use in an integrative medicine program to treat patients. INTEGRATIVE ... NOT either OR... based upon WESTERN MEDICAL TRAINING !
and in practice for over 35 years.

Most medical specialists do NOT have the oversight or training to successfully navigate the truly INTEGRATIVE treatment course for their patients ...
SO we end up getting endless "claims" based on pseudoscience, propogated by the AltMed community, to make a profit on folks who do not have the expertise or background info to make informed decisions about their health care.

I was providing some background to assist the OP... strictly BECAUSE I have worked with AltMed practitioners and none of them have cured CRC in humans with ANY of their "miracle cures"

I used the term "western medicine" specifically to distinguish it from the other modalities I am trained in, so the OP would KNOW the source of my "opinion", being
I chose proven western scientific medicine as my choice.

AND this is based on ME being a medical practitioner AND a Stage IVa CRC survivor who could have chosen ANY type of CAM practitioners to work with.

If you don't like my choice of terms ... too bad
If you can supply specific information which enhances the topic please Bring IT

I doubt "western medicine" is nonsense or your signature, like most others here ... would not have multiple references to it in contributing to your survival, and I do NOT see any references to complementary or alternative treatments there ?????
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15


Respectfully
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 10473
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Re: Opinions on alternative treatments?

Postby CRguy » Sun Jul 28, 2019 2:41 am

Maggie Nell wrote:Just remember Tinafish, that all the weirdos from Britain migrated to America 400 years ago..... :mrgreen:


Was that before or after they sent all their convicts to OZ ??? :? :mrgreen: :shock:

Just messing with you here Maggie Nell .. BUTT please put this in perspective for the OP.
ALL of the members here you mention are those we have lost.
They were all in contact with me off forum (PM and email) MANY times since 2008 when I joined.
Marc and Vilca especially, shared most of their ordeals with any and ALL medical treatments, privately.
I was in contact with the company and medical directors of a proposed clinical trial for processing and testing a new version of the
"Coley's toxins" approach to cancer treatments.

They both were adamant that their experiences would support and benefit others here.
they were THAT kind of human being.

suffice it to say, they did not share all their failures, which I will NOT disclose to you on forum.

Please just accept the fact that their Journeys were their own.
We love and respect them for it.

To misrepresent WHO they were and WHAT they mean to us, is not license to support a different conclusion, to what their lives endured.

Please PM me if you need to, as I also have other information concerning the "Gawler" legacy.

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Maggie Nell
Posts: 1151
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: Opinions on alternative treatments?

Postby Maggie Nell » Sun Jul 28, 2019 2:58 am

CRguy wrote:
ALL of the members here you mention are those we have lost.
They were all in contact with me off forum (PM and email) MANY times since 2008 when I joined.
Marc and Vilca especially, shared most of their ordeals with any and ALL medical treatments, privately.


As I've only been in this forum since mid-2015, Marc and Vilca are the two that came to mind who had threads that
generated discussions that was of inclusive of their experiences across a broader spectrum.


They both were adamant that their experiences would support and benefit others here.
they were THAT kind of human being.


This is why I specifically "signposted" their conversations in this forum.

To misrepresent WHO they were and WHAT they mean to us, is not license to support a different conclusion, to what their lives endured.


It was not my intention to misrepresent these individuals.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Opinions on alternative treatments?

Postby stu » Sun Jul 28, 2019 3:03 am

In Britain all our Professions Allied to medicine are Chartered. It simply means they have met a standard of practice and are affiliated with their professional body and you can expect a qualified worker . The large majority of physios work for the NHS and if you are selecting a private physio it allows people a bench mark to know they are fully trained and registered.

Hope that dispels the “weirdness “ for you but I certainly would not put any weight on their words on cancer care based on the use of the word “ chartered” . We all have that attached to our titles !
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Opinions on alternative treatments?

Postby CRguy » Sun Jul 28, 2019 3:07 am

Thank you for your understanding Maggie Nell.

Marc and Vilca are still very special people in my heart.
They tried many things, and while I won't say they failed ....
they are not here with us now.

Sometimes there ARE many deeper levels of complexity
which do not always appear ON forum.

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Jacques
Posts: 678
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Opinions on alternative treatments?

Postby Jacques » Sun Jul 28, 2019 3:21 am

TinaFish wrote:... I read her post where she was very excited that her liver metasteses were operable, but I don't know how to search through her posts to see her treatments....


Here are vilca11's 722 posts. You can scroll through the post titles one by one, or you can search for specific keywords by using the provided Search function, ["Search these results"].

https://coloncancersupport.colonclub.com/search.php?author_id=91246&sr=posts

I have many other comments on the topic of your current thread, but for now I will refrain from saying anything. I think it's better that I say nothing at all.

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Opinions on alternative treatments?

Postby CRguy » Sun Jul 28, 2019 4:30 am

Please feel free to post fact based information to this topic.

Specifics about Marc and Stella would best be left off forum unless they have already posted it themselves,
or authorized you to post private information for them.
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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