ULAR + ileo tips welcome!

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Rikimaroo
Posts: 265
Joined: Tue Dec 20, 2016 8:48 pm

Re: ULAR + ileo tips welcome!

Postby Rikimaroo » Sun Aug 11, 2019 1:45 pm

Rock I never took Imodium with ilestomy. It will get thicker soon, just be patient. You don't need the Imodium, just let it flow naturally and empty it when needed. My output at beginning was watery as well but started to get thicker as the days went along. It becomes really easy to switch out the bag, I did it in 5-7 minutes after a month of having it. I had some issues where I would pancake which means poops seeps through the side under the ring. I figured out later how to deal with, just be more vigilante and push the poop downwards if you have to. Other then that usually things go well. I miss my ileostomy sometimes, but it is what it is.

Also I use to take the bag off during shower, but I stopped like 4 months in and never looked bag. The bag air drys or you can pat it with a towel and use a blow dryer if you want. It makes things easier.

Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left seminal vescial/pelvic sidewall - 10/7/2019 resection surgery, perm bag, requested
FolFiri 11/6 - 5 rounds

ozziej
Posts: 239
Joined: Thu May 21, 2015 8:35 pm

Re: ULAR + ileo tips welcome!

Postby ozziej » Tue Aug 13, 2019 4:29 am

Hi Rob
If you are still having problems with high output you might try eating white marshmallows, they slow things down.
F 56 dx 11/14 Stage 1 RC (post EMR)
No neo-adjuvant or adjuvant chemo/RD
3/15 ULAR (open) temp loop ileo
5/15 ileo reversal
NED and hoping to stay that way!! : )


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