Quick intro -- diagnosed Friday

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Zackattack
Posts: 39
Joined: Mon Jul 15, 2019 4:28 pm

Re: Quick intro -- diagnosed Friday

Postby Zackattack » Tue Sep 24, 2019 10:03 pm

The two levels that were elevated were
Aspartate Aminotransferase (AST), Plasma 47 U/L [<=37 U/L]
Alanine Aminotransferase (ALT), Plasma 130 U/L [<=55 U/L]

No chemo ever before this blood test at 1pm today, except for taking the Xeloda earlier in the day (11am approx)

Thanks!
Colonoscopy due to occasional blood in stool.
DX: Rectal Cancer, 7-12-19 @ age 36, male
CEA Levels of 3.0, seems to be T1 at first glance (and hopefully forever?).
Moderately differentiated cells. 12 to 15cm from anal verge
7-26-19 --Dr. calls to advise upon rerunning pathology, sm3 depth...
TME surgery scheduled for 8/21/19
Successful surgery and feeling good so far
2/15 Lymph nodes had cancer.
Stage 3A T1cN1M0

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horizon
Posts: 1515
Joined: Tue Apr 12, 2011 10:10 pm

Re: Quick intro -- diagnosed Friday

Postby horizon » Tue Sep 24, 2019 10:18 pm

Zackattack wrote:Having the port was a savior, had to have blood drawn twice to check those weird liver enzymes and the oxaliplatin went in smooth, like a fine cognac.


You'll also use if for CT scans. I didn't like having it initially but it was lifesaver during the whole process for me.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Rock_Robster
Posts: 342
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Quick intro -- diagnosed Friday

Postby Rock_Robster » Wed Sep 25, 2019 12:22 am

Zackattack wrote:The two levels that were elevated were
Aspartate Aminotransferase (AST), Plasma 47 U/L [<=37 U/L]
Alanine Aminotransferase (ALT), Plasma 130 U/L [<=55 U/L]

No chemo ever before this blood test at 1pm today, except for taking the Xeloda earlier in the day (11am approx)

Thanks!

Ok thanks. So neither of those levels are exceptionally high for a chemo patient; except the slightly strange part is you hadn’t really had any chemo yet...

I’m no expert; my opinion would be that it warrants investigation but without other symptoms I wouldn’t consider it an emergency. Have you had any other imaging done of the liver (MRI or PET) that would rule out malignancy? The challenge may be that once you’ve had a couple of doses of chemo, the temptation will be to write off any deranged enzyme levels as linked to that.
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

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Zackattack
Posts: 39
Joined: Mon Jul 15, 2019 4:28 pm

Re: Quick intro -- diagnosed Friday

Postby Zackattack » Mon Sep 30, 2019 1:13 am

Hi All,

Wanted to drop in and provide an update. Been taking Xeloda since Tuesday morning, and had the infusion of Oxaliplatin Tuesday afternoon. Tues/Wed easy days and I pushed myself to go work out at the gym. Thursday the steroid or whatever wore off and the nausea was pretty real. I didn't take any anti-nausea drugs though (because I naturally run constipated), attempted to fix it with marijuana, successfully.

Friday, minor to moderate nausea (5/10) until I tried marijuana at 4pm and erased it almost immediately. Crazy. Friend came from out of town and I was able to eat a lot of the shephard's pie.

Saturday, headache from 3pm-6pm and took an aspirin and tried to nap but it barely helped to close my eyes. It passed so whatever :-) Ended up still having an okay night after that.

Sunday again nausea from when I wake up (2/10), goes away until after dinner, back again from 9pm-12am. Was hard to get food down at 11pm to take the Xeloda.

The pills make me feel almost a bit disassociative. I feel the brain fog / chemo brain for sure all the time. Honestly though, overall much better than expected and hope it continues to be this 'easy'. I realize it will likely get tougher but hopefully, my tools to combat the issues which arise will be better also.
Colonoscopy due to occasional blood in stool.
DX: Rectal Cancer, 7-12-19 @ age 36, male
CEA Levels of 3.0, seems to be T1 at first glance (and hopefully forever?).
Moderately differentiated cells. 12 to 15cm from anal verge
7-26-19 --Dr. calls to advise upon rerunning pathology, sm3 depth...
TME surgery scheduled for 8/21/19
Successful surgery and feeling good so far
2/15 Lymph nodes had cancer.
Stage 3A T1cN1M0

MeAndMine
Posts: 123
Joined: Mon Aug 05, 2019 2:40 pm

Re: Quick intro -- diagnosed Friday

Postby MeAndMine » Mon Sep 30, 2019 12:12 pm

Sounds like you have a plan and things are going well with the things you are trying. It's good that you live where you can use marijuana to help with things, too. It has to feel good to have the tools to combat whatever comes up with treatment. I'm glad you are doing well! Hopefully things will remain steady!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

MeAndMine
Posts: 123
Joined: Mon Aug 05, 2019 2:40 pm

Re: Quick intro -- diagnosed Friday

Postby MeAndMine » Mon Oct 07, 2019 11:24 am

How are treatments going Zack? I haven't had infusions but with the oral Xeloda, try to remember to keep a good moisturizer on your hands and feet and also it helps to swish with salt water or water with baking soda in it. I use both, just put a spoonful of each in a water bottle and swish it every time I think about it.

Just thinking about you today and hope you are sailing through!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

NHMike
Posts: 2272
Joined: Fri Jul 21, 2017 3:43 am

Re: Quick intro -- diagnosed Friday

Postby NHMike » Mon Oct 07, 2019 11:28 am

Zackattack wrote:Hi All,

Wanted to drop in and provide an update. Been taking Xeloda since Tuesday morning, and had the infusion of Oxaliplatin Tuesday afternoon. Tues/Wed easy days and I pushed myself to go work out at the gym. Thursday the steroid or whatever wore off and the nausea was pretty real. I didn't take any anti-nausea drugs though (because I naturally run constipated), attempted to fix it with marijuana, successfully.

Friday, minor to moderate nausea (5/10) until I tried marijuana at 4pm and erased it almost immediately. Crazy. Friend came from out of town and I was able to eat a lot of the shephard's pie.

Saturday, headache from 3pm-6pm and took an aspirin and tried to nap but it barely helped to close my eyes. It passed so whatever :-) Ended up still having an okay night after that.

Sunday again nausea from when I wake up (2/10), goes away until after dinner, back again from 9pm-12am. Was hard to get food down at 11pm to take the Xeloda.

The pills make me feel almost a bit disassociative. I feel the brain fog / chemo brain for sure all the time. Honestly though, overall much better than expected and hope it continues to be this 'easy'. I realize it will likely get tougher but hopefully, my tools to combat the issues which arise will be better also.


I'm pretty sure that your surgeon discussed this with you but be careful what you do in the gym with the port.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
ANDRETEXAS
Posts: 620
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Quick intro -- diagnosed Friday

Postby ANDRETEXAS » Thu Oct 10, 2019 1:05 am

At some point, you may want to start walking or jogging instead of going to the gym. As time went by, I became more and more tired, but could also determine how far I could walk each time. The main thing is having some type of physical activity in association with how tired you are feeling. Keep up the good work ! You can and will do it. Andre
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !


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