Chemo has caught up to me yall

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AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Chemo has caught up to me yall

Postby AmyG » Sat Jul 13, 2019 7:23 pm

Holy crap. I'm so tired it's beyond stupid.

Normally, the 2 days after disconnect I'm tired but bounce back 100% come day three. Round 5 didn't cooperate that well and 6 isn't much better. All I want to do is be in bed. Unfortunately, that's not really an option with our household.

CT on Wednesday, then round 7 the following Monday. I'm really hoping they tell me no chemo for a month so i can prepare for liver resection. This is just getting ridiculous!

Tell me it gets better. Or I'm almost there. Or I'm a giant whiney baby. Anything will work at this point. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

debb
Posts: 176
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Chemo has caught up to me yall

Postby debb » Sat Jul 13, 2019 9:39 pm

Ugh! Sorry for you!!! The effects are cumulative so not surprising that you’re down for a bit longer as treatment progresses....but you are definitely NOT a big baby!!

I hope you get a break after your CT...breaks always helped me. And if someone offers you help, please take it. That was hardest for me.

You are one tough mama, and you got this!!
Stage 3C, Dx at 42, mom of 4
Colon resection 7/08
Folfox 9/08-2/09
Met to right ovary, both ovaries removed 7/10
HIPEC 8/10
VATS 7/12, 2 nodes, right lung
10/14 3 lung nodes, Stivarga clinical trial
3/15-7/15 Folfiri & avastin for lung things
Break! One+ year of freedom
8/16 Folfiri & avastin..lung things again
Break! 10 months of freedom
1/18 rib mets, radiation, folfiri & avastin
1/19 rib mets again, radiation, folfiri & avastin

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ginabeewell
Posts: 313
Joined: Wed Oct 24, 2018 10:30 am

Re: Chemo has caught up to me yall

Postby ginabeewell » Sat Jul 13, 2019 9:47 pm

I wound up with a break after 5 rounds of chemo. I felt much like you do now - I recall we went to Hong Kong for a long weekend around then and my therapist thought I was nuts. By 3 pm each day I would come back to the hotel to sleep.

But chemo was never as tough once I resumed (about 7 weeks later).

Another friend of mine had her doctor tell her that the 5th or 6th treatment is the worst and it gets easier after that.

Now is a good time for outsourcing what you can - MealTrain, accepting offers of help, hiring someone to do what you cannot etc. We ended up hiring a full time nanny even though the kids are at school, and having someone for a few extra hours a day has been a godsend during this time in my life.

Be gentle with yourself. Chemo is no joke.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: Chemo has caught up to me yall

Postby macpudd » Sat Jul 13, 2019 9:55 pm

Hi Amy am sorry to hear how hard it is, i will think as much positive for you as i can. I had 12 cycles of folfox, prblems initialy because of surgey infection but last few cycles left me so tired i think i have some idea of how you feel. Am on Avastin and Lomustine now and it also is part of extreme tiredness. Anyway when I finished folfox , apart from some neuropathy my energy levels quckily came back over the next few months so hopefully yours wii return quckily to.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

jens22
Posts: 1008
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Chemo has caught up to me yall

Postby jens22 » Sat Jul 13, 2019 10:21 pm

Lots of fluids and you will feel better. Also talk to your oncologist...they might need to lower the dose a bit. I had my bolus of 5fu reduced before the pump dose. That helped a lot.
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

Rock_Robster
Posts: 340
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Chemo has caught up to me yall

Postby Rock_Robster » Sat Jul 13, 2019 10:32 pm

Yep #5 and 6 were definitely the toughest for me - I just didn’t really bounce back fully, at least not until well into the second week. Fortunately after that they let me have my 4 weeks off then liver resection! Will see how #7 is when I come back for adjuvant...

Good luck!
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1aM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN
08/19 - Missed liver spot
08-11/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 5
12/19 - Planned liver resection #2 & stoma reversal

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo has caught up to me yall

Postby AmyG » Sun Jul 14, 2019 6:59 am

Whew.

Thanks for the insight, glad to know this is normal and I'm not just a big wuss. :lol:

I've felt much more human yesterday and today is starting off pretty well so I have high hopes. But I wouldn't be opposed to an afternoon nap!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Rikimaroo
Posts: 257
Joined: Tue Dec 20, 2016 8:48 pm

Re: Chemo has caught up to me yall

Postby Rikimaroo » Sun Jul 14, 2019 10:45 am

Chemo sucks, it just sucks!! I hate it and debating if I want to do it anymore. It is ridiculously hard, makes you super tired, vomitting (FOLFIRI) and just overall just feeling crappy. Sometimes I wonder if its worth it. Taking natural stuff might help, but no statistics on that helping :(...I Just hate chemo!!
RC T3N1M0
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
Blood Clot in Neck 1/2018, stop avastin, continue FolFox
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA - 12/16 26.1, 1/17 32.2, 3/17 6.6, 11/17 500.5, 12/17 638.5, 1/3/18 424.8, 1/16/18 163.5, 1/31/18 62.2, 2/18 21.1, 3/18 14, 4/18 .8, 10/18 1.2, 12/18 3.2, 2/8 11.4, 3/6 22

Pyro70
Posts: 144
Joined: Mon Jan 21, 2019 4:25 pm

Re: Chemo has caught up to me yall

Postby Pyro70 » Sun Jul 14, 2019 3:10 pm

You could have a cumulative impact on your blood counts. After about 9 rounds of FOLFOX my hemoglobin was low and made me tired. One blood transfusion helped take care of it. Check your CBC and ask for blood if you think it could help.
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

kiwiinoz
Posts: 1127
Joined: Thu Jan 03, 2013 11:44 pm

Re: Chemo has caught up to me yall

Postby kiwiinoz » Sun Jul 14, 2019 6:10 pm

Hi Amy,
I remember that on FOLFOX round 7 really started to hit me. I felt the lowest at that point, I started to loose sensation badly due to the neuropahthy, I couldn't run as I was so tired, I got a really bad case of GI issues and had diarrhea, which turned into vomiting and I vomitted for 2 days straight and ended up having to get IV Fluids as I was so weak.
However it turned a corner after that, and whilst chemo still sucked, it was never as bad as that 7th round.
I hope you get a break and feel better after this one Amy.
Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

boxhill
Posts: 355
Joined: Fri Apr 06, 2018 11:40 am

Re: Chemo has caught up to me yall

Postby boxhill » Sun Jul 14, 2019 7:56 pm

Yeah, I remember sometime around round 8 when people would ask how I was feeling, I'd say "You know, I have to admit that this is starting to wear on me."

it's cumulative. At a certain point, you start to bounce back less--and less rapidly--than in earlier rounds, even if you have been lucky up til then. But eventually it does get better. Then you can start to feel the effects of the next kind of treatment, such as immunotherapy, LOL!

As I think I said elsewhere, I used to bound into the infusion center like the youngest and healthiest person there. Now, on Keytruda, my much longed-for miracle drug, I'm hobbling in like a crippled old lady.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

AmyG
Posts: 258
Joined: Tue Dec 25, 2018 8:08 pm

Re: Chemo has caught up to me yall

Postby AmyG » Mon Jul 15, 2019 10:46 am

So I am feeling much better today. Nicholas is up every morning around 0500, so apparently I'm an early riser now. :lol:

Took him for his 4 month appointment today, he's over 16 lbs, no wonder I can't hold his fat self after disconnect! :shock: His pediatrician is well aware of my diagnosis and asked me how I kept such a positive attitude. I'm like dude, my life is wonderful. Cancer is just a bump in the road. I have a husband that adores me, 8 wonderful, happy, healthy children and some dogs that think I'm the best thing on earth. Plus we have a thriving garden this year! Why in the world wouldn't I be living every day to the fullest? Other than the days that I'm really tired..... :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Gloriamazz
Posts: 65
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
Contact:

Re: Chemo has caught up to me yall

Postby Gloriamazz » Mon Jul 15, 2019 11:30 am

So sorry amy stay strong the lord has you in his arms.

Post your ct result finger crossed
June 29, 2018 Colonoscopy
3cm leision adenocarcinoma
Operated August 8, 2018 Had APR removed Anus, Rectum,Sigmoid Colon
Barbie Butt permanent Colostomy
March 5, 2019. CT 2 lung nodules repeat CT 6 MonthSept. 10,
April 29, 2019 HyperDense Liesion 1.8 x 1.8 cm
July 22 2019; Monday 1 radiation painful dense Pelvis tumor 4-29-2019 ( more tired than usual) total of 5 radiations tumor is a recurrence of original colon cancer plus met to lungs
July 24, 2019 Wednesday 2nd radiation treament.

k0chr
Posts: 20
Joined: Wed Jun 05, 2019 5:08 pm

Re: Chemo has caught up to me yall

Postby k0chr » Mon Jul 15, 2019 2:03 pm

I'm really new here, but from reading a bunch of your posts, Amy, I can tell that you're certainly not a wimp or whiner. Your amazingly positive attitude is one of the things that gives me hope that I can do this on the days when I'm so pooped that I barely make it out of bed. I can't imagine doing this with a 4 month old!

Anyway, I read further down the thread and see that you're feeling better. I'm glad and hope that it keeps up. :D
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor, clear margins
G2 IIIA T2N1AM0
1/10 positive
07/08/19: starting FOLFOX, 12 cycles
08/14/19: gallbladder removed
08/19/19: DVT left internal jugular vein, subclavian, & axillary veins, daily Lovenox injections

User avatar
ginabeewell
Posts: 313
Joined: Wed Oct 24, 2018 10:30 am

Re: Chemo has caught up to me yall

Postby ginabeewell » Mon Jul 15, 2019 5:40 pm

AmyG wrote:So I am feeling much better today.


I remember telling my therapist that I started to recognize a pattern - a side effect (or two, or three) would get me down for a while, and I'd feel like crap both physically and emotionally. But always at some point I would start to feel a little bit better. She encouraged me to find a mantra to remind myself of this and out of nowhere into my head popped: "You know how to bounce!"

it looks like you know how to bounce, too. Just keep reminding yourself of that when you start to feel run-down. Sometimes, bouncing requires that you hit the ground - hard. But it's not forever.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection


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