Page 1 of 2

No more CC Yipee

Posted: Wed Jul 10, 2019 6:23 am
by macpudd
Got my final 5 year ct results re cc this morning. Nothing on them except adhesions and ftty liver. Going forwad would have colonospy and ct every 3 years. It would have been great if not for the gbm4 being fly in the ointmeent. Anyway I hope it shows that very many people can get by the Cc.

Re: No more CC Yipee

Posted: Wed Jul 10, 2019 9:10 am
by stu
Hi ,
That’s great news on the CC front . Now to get the chemo working on the GBM . Wishing you every success .
Take care,
Stu

Re: No more CC Yipee

Posted: Wed Jul 10, 2019 3:26 pm
by fumaros
Congratulations, one battle down. Wishing you victory with the other.

Re: No more CC Yipee

Posted: Thu Jul 11, 2019 6:34 am
by macpudd
Thanks folks,
It was gret to beat the CC, but the gbm is a tougher one for me. I was told by the onc in March that prognois ewas i should have 3months but definitrly not 12months. The chemo is to try and maintain quality of life but will not extend overall survival. Mood bad today am so tired its just lieing round all day. My poor wife and kids are so good i wish things would hurry up and i wouldnt be such a burden to them, i know i shouldnt say it but some days its how i feel.

Re: No more CC Yipee

Posted: Thu Jul 11, 2019 11:59 am
by stu
Please feel free to say how you feel here . I think it’s important to have somewhere where you can speak from the heart . I don’t blame you for having down days when your processing not only treatment but the whole mortality issue .
All we can be is here for you but be assured we are here for you in any way we can be .

I hope the rest of the day goes a bit easier on you .

I like the straight talking of the Irish . I have my very own wee Irish dad . He always keeps life real .

Hold on tight ,
Stu

Re: No more CC Yipee

Posted: Sat Jul 13, 2019 10:35 pm
by macpudd
stu wrote:Please feel free to say how you feel here . I think it’s important to have somewhere where you can speak from the heart . I don’t blame you for having down days when your processing not only treatment but the whole mortality issue .
All we can be is here for you but be assured we are here for you in any way we can be .

I hope the rest of the day goes a bit easier on you .

I like the straight talking of the Irish . I have my very own wee Irish dad . He always keeps life real .

Hold on tight ,
Stu

Thanks Stu, am up and down like a yoyo this while, sleep a lot but can be awake at night and sleep on day, tiredness is extreme most of the tome. Had a good chat with my wife and family today. They did tell me that there ia times when i make mistakes and dont seem to be aware of what they say and i answer as if i am not aware. This is worse on the days that i have seizures. Its good that they tell me, and i know they work so hard to help me. My kids stayed with me all day today and let my wife have a whole day to herself away, it definitely made her seem a bit more relaxed this evening.
Good to hear abot your irish Dad, what county is he from, mine was from county Mayo. Thanks again for your help and positivity Stu, and all the other people here to.

Re: No more CC Yipee

Posted: Sun Jul 14, 2019 9:51 am
by DarknessEmbraced
Congratulations! :D This year's scans and my colonoscopy will be 5 years for me. I hope I get good news too. :)

Re: No more CC Yipee

Posted: Sun Jul 14, 2019 10:28 am
by macpudd
DarknessEmbraced wrote:Congratulations! :D This year's scans and my colonoscopy will be 5 years for me. I hope I get good news too. :)

It will be good news for you to hopefully, it is far more likely once we get by 3 years. Good luck to you and let us know when you hear :D

Re: No more CC Yipee

Posted: Sun Jul 14, 2019 12:43 pm
by Eleda
Mc pudd
First of all !!!!!!
Did u get the bell???

Ur wife will have plenty of time on her own when ur gone
Spend every minute with her,,,,,,,,,,
As u would do!!!!!!!

Do something fun if ur up to it with ur kids......m and leave them with a fun memory

Easy for me to say I'm not in ur position
But I'm only saying from the heart,,,,, :(

Ur Celtic friend
Adele x

Re: No more CC Yipee

Posted: Sun Jul 14, 2019 1:07 pm
by macpudd
Eleda wrote:Mc pudd
First of all !!!!!!
Did u get the bell???

Ur wife will have plenty of time on her own when ur gone
Spend every minute with her,,,,,,,,,,
As u would do!!!!!!!

Do something fun if ur up to it with ur kids......m and leave them with a fun memory

Easy for me to say I'm not in ur position
But I'm only saying from the heart,,,,, :(

Ur Celtic friend
Adele x

Hi Adele we have been having good fun today over what I can get them to do for me when I get the bell. Ive been telling all sots of outlandish things they wiil have to do when i ring my new bell :D. My poor wife never complains about a thing it was me that thought a day away on her own would give her a break from me. We are all heading away in 3 weeks if i am fit for it, in Sligo, as i was to told not to fly. Hope your having a good time to Adele. Sunshine beautful and bbq and family here today lifted all oir spirits and shortly going to even have 1 can of Guinness :D

Re: No more CC Yipee

Posted: Fri Jul 19, 2019 9:38 am
by macpudd
No avastin today not enough platlets :( will try again in 2 weeks also deu lomustine in 2 weeks as well.

Re: No more CC Yipee

Posted: Fri Jul 19, 2019 10:17 am
by Eleda
Guinness give u shits mc pudd lol but apparently good for the blood ( after giving birth an all )
Might as well have 5 as have one
Enjoy lol
Your Celtic Friend

Adele x

Re: No more CC Yipee

Posted: Fri Jul 19, 2019 10:18 am
by Eleda
Guinness will give u shits mc pudd ( but you know that ) lol but apparently good for the blood ( after giving birth an all that :roll: )
Might as well have 5 as have one
Enjoy lol
Your Celtic Friend

Adele x

Re: No more CC Yipee

Posted: Fri Jul 19, 2019 1:32 pm
by macpudd
23inch less of a colon since my op so have crapped like a elenphant since. I always loved beer bit it leaves me with an awful hangover now with my bad brain, so 1 can is about as much as i can manage :D

I see a whale in the south sea, drinking my soul away,
Oh what limb rending pains ifeel ! Thy fire and my frost
Mingle in howling pains, in furrows by thy lighting rent.
This is Eternal Death, and this the torment long fortold.

Its a crap poem but is sums up how i feel about not drinking load. I am sure i should be annoyed more about not getting avastin :shock:
I am only joking about this just in casr anyone thinks i am serious, actually feel quite good this evening :D

Re: No more CC Yipee

Posted: Mon Jul 22, 2019 4:04 pm
by stu
Hi ,
How are you getting on this week . We have a wee heat wave !! At my caravan enjoying a little kayak .
Hope your spirits are up .
Take care ,
Stu