Ice Pop During Chemo

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Deep
Posts: 37
Joined: Thu Nov 01, 2018 6:10 pm

Ice Pop During Chemo

Postby Deep » Tue Jul 09, 2019 9:08 pm

So, I am not perfect and ate an icicle pop on day two of chemo. I am on Folfox. Now I am talking like Mike Tyson. Please, someone tell me this is not permanent.
11/29/18 Diagnosed T3N1 Rectal Cancer (Age 39, Male, no family history)
01/02/19--02/7/19--- 25 rounds radiation/chemo (Capecitabine 2000 mg)
04/15/19 Surgery, temp ileostomy (Tumor Staged T2)
7/8/19-10/15/19 Chemo (8 Rounds) Folfox
11/12/19- Scan NED

User avatar
ginabeewell
Posts: 454
Joined: Wed Oct 24, 2018 10:30 am

Re: Ice Pop During Chemo

Postby ginabeewell » Tue Jul 09, 2019 9:27 pm

It’s not permanent. I used to have this when I went outside in the winter for any period of time. I would arrive in a coffee shop and could barely order my coffee. Once you warm up you should be fine.

But how did you tolerate eating it in the first place??
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

AmyG
Posts: 350
Joined: Tue Dec 25, 2018 8:08 pm

Re: Ice Pop During Chemo

Postby AmyG » Wed Jul 10, 2019 6:24 am

I can't tolerate anything from the refrigerator, I couldn't imagine something from the freezer. My mouth would fall off.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

NHMike
Posts: 2478
Joined: Fri Jul 21, 2017 3:43 am

Re: Ice Pop During Chemo

Postby NHMike » Wed Jul 10, 2019 7:53 am

It's not permanent. I started XELOX in December 2017 in New Hampshire. First day going home it was about 24 degrees and there was a blizzard out. My hands were in pain because the steering wheel was so cold. So it may be painful but it will go away.

I think that my eyes froze open too and breathing was painful because the air was so cold.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Deep
Posts: 37
Joined: Thu Nov 01, 2018 6:10 pm

Re: Ice Pop During Chemo

Postby Deep » Wed Jul 10, 2019 11:02 am

ginabeewell wrote:It’s not permanent. I used to have this when I went outside in the winter for any period of time. I would arrive in a coffee shop and could barely order my coffee. Once you warm up you should be fine.

But how did you tolerate eating it in the first place??


Eating has not been so bad besides the electric shock feeling in my cheeks whenever I first introduce food into my mouth. I am sure that is a side effect of the chemo as well.
11/29/18 Diagnosed T3N1 Rectal Cancer (Age 39, Male, no family history)
01/02/19--02/7/19--- 25 rounds radiation/chemo (Capecitabine 2000 mg)
04/15/19 Surgery, temp ileostomy (Tumor Staged T2)
7/8/19-10/15/19 Chemo (8 Rounds) Folfox
11/12/19- Scan NED

User avatar
Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Ice Pop During Chemo

Postby Maggie Nell » Wed Jul 10, 2019 12:06 pm

Pushing the envelope on living dangerously.......

:lol:
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

Claudine
Posts: 413
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Ice Pop During Chemo

Postby Claudine » Wed Jul 10, 2019 12:56 pm

Ouch!! That sounds painful. When DH was on XELOX anything not warm felt like swallowing glass shards.
Among the weird "electric shock" symptoms he experienced: Lhermitte Sign. He would bend his head and an electric shock would shoot all the way down to his calves! Because of his vertebrae tumor, his onc ordered a neck MRI but it came back clean; it was just a side effect of chemo, and eventually disappeared.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules up to 5mm
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20
Scan 09/20: nothing to report


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