Colon Cancer Stage 3 May2019 new member

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 2
Joined: Mon Jun 24, 2019 7:57 pm

Colon Cancer Stage 3 May2019 new member

Postby Nate33 » Tue Jul 09, 2019 7:06 am

This has been a whirlwind process for me. Having a colonoscopy in May and then colon resection the following week. Surgeon was unable to complete laparoscopically, so I had a 6 week recovery. I started chemo during week 4 of my recovery and have started my second treatment of FOLFOX yesterday. I have been reading many posts on here and thought I share my situation, which will hopefully be both informative and cathartic.
I was informed that the doctor would probably want to put me on Neulasta because my Gran# was 1.4. I wanted to have some questions regarding options, or if that is the norm then so be it.
I have had mild neuropathy in my finger tips, but a few days ago I went to turn to get something on a table behind me, and I felt the static shock feeling radiate up my right arm. Nothing was cold or hot, it was just the motion. I have my port on my right side, so the nurse thought it might be that. They noted it in my file.
Yesterday, I had my right hand freeze. Not the pins and needles/static shock neuropathy, but I couldn't move my thumb to close my hand and the other fingers were stiff but I could move them. Last night, it happened to my left hand briefly. Any thoughts?

Thank you. This has been a surreal experience. It all just feels like a bad dream..
47 year old male- father of 2
DX stage T3 N1bM0 Grade 2 (2/15 lymph nodes)
25 cm (9.8”) sigmoid resection May 2019
5.4 cm tumor size
Chemo -Folfox 6/25/19, 7/8/19,
CEA 6/24/19 - 1.7

Posts: 189
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Colon Cancer Stage 3 May2019 new member

Postby Jannine » Tue Jul 09, 2019 9:01 am

I would have problems with twitching in my hands and feet and occasional difficulty using my hands during and a couple of days after folfox treatment, but then it would clear up. I also had the shooting electric feeling in my arms when I straightened them, once the neuropathy started to set in. I never had my hands freeze though. I would definitely talk to the oncologist about that.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

Posts: 2425
Joined: Fri Jul 21, 2017 3:43 am

Re: Colon Cancer Stage 3 May2019 new member

Postby NHMike » Wed Jul 10, 2019 8:09 am

I did not experience those symptoms but did experience arthritis-like feelings in my hands and I believe it was due the Xeloda. This was different from the Neuropathy which I experienced in my toes from the Oxaliplatin. I still have the feelings in my fingers but it is very mild; most of the time I don't notice it.

What you're describing sounds more like nerve signaling issues; similar to a rotator cuff impingement.

You may be seeing multiple symptoms.

If the symptoms go away, then it should be okay. What happened to me is that the symptoms took longer and longer to go away between chemo until they didn't go away. And so now they're permanent. I can live with them but it sounds like what you're going through is more unpleasant.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Posts: 1011
Joined: Wed Jun 09, 2010 9:26 am
Facebook Username: jspirio
Location: Long Island, NY

Re: Colon Cancer Stage 3 May2019 new member

Postby jens22 » Sat Jul 13, 2019 10:29 pm

First...please read my signature so that you can see that's there is lots of hope. let your oncologist know about this symptoms because OXi effects the nerves in different ways. They explained it too me the they decide on the dose by your weight but metabolism can be different in each person. Good luck and get through this chemo
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 7 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 54 Mom of 3 boys.

Posts: 170
Joined: Thu Jul 14, 2016 7:08 am

Re: Colon Cancer Stage 3 May2019 new member

Postby Stewsbetty » Mon Jul 15, 2019 7:18 am

I remember a couple times during chemo that my hand would freeze in a gripping position and I would have to uncurl my fingers with the other hand. This didn’t happen super regularly but several times throughout chemo. I had no lasting effects though, except maybe a slight decrease in very fine motor skills. I love doing puzzles and I need to do good quality thick ones now. I can’t pick up really flimsy pieces.

42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!

Posts: 20
Joined: Wed Jun 05, 2019 5:08 pm

Re: Colon Cancer Stage 3 May2019 new member

Postby k0chr » Mon Jul 15, 2019 1:53 pm

Looks like you're a week ahead of me on chemo; I did my first cycle 7/8. It's amazing just how quickly life can take a left turn, eh? I hope your team gets the nerve stuff sorted out. Neuropathy was one of the things my chemo doc said could/would change the chemo dosages/given.
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor, clear margins
1/10 positive
07/08/19: starting FOLFOX, 12 cycles
08/14/19: gallbladder removed
08/19/19: DVT left internal jugular vein, subclavian, & axillary veins, daily Lovenox injections

Posts: 40
Joined: Tue Oct 02, 2018 11:45 pm

Re: Colon Cancer Stage 3 May2019 new member

Postby Nordy1 » Fri Jul 19, 2019 11:54 pm

Hi Nate. 33

I experienced the frozen hand trick, I believe it was called ataxia. It’s from the oxali and is another symptom of neuropathy that you should mention to your doctor. I was able to complete 10 of my 12 sessions before the neuropathy became to severe nut I probably should have stopped one or two sooner as I’m still experiencing some inside effects 9 months later.

Good luck

jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: No registered users and 18 guests