daily enema HELP

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Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: daily enema HELP

Postby Pyro » Wed Jul 17, 2019 9:07 pm

Lots of good advice in here, i want to warn the community of the other outcome of this horrible path, blockages. I’ve messed up and spent the last week in the hospital with an emergency surgery to remove a blockage. These things hurt like hell and there was nothing I could have done on my own to relive it. Apparently I had scar tissue wrapped around intestine, no enema or scope would have worked it out. Take care folks, and don’t let these symptoms go too long. The pain was a 11/10, dilauded wouldn’t work.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: daily enema HELP

Postby susie0915 » Thu Jul 18, 2019 7:26 am

Pyro wrote:Lots of good advice in here, i want to warn the community of the other outcome of this horrible path, blockages. I’ve messed up and spent the last week in the hospital with an emergency surgery to remove a blockage. These things hurt like hell and there was nothing I could have done on my own to relive it. Apparently I had scar tissue wrapped around intestine, no enema or scope would have worked it out. Take care folks, and don’t let these symptoms go too long. The pain was a 11/10, dilauded wouldn’t work.


So sorry. I understand I had a blockage 4 weeks after my resection due to scar tissue. I was in the hospital for 3 1/2 weeks with an ng tube for a week then ended up having surgery. The only plus is that my surgeon decided to reverse my ileostomy at the same time so I wouldn't need surgery later. Made chemo a little tougher due to diarrhea but I made it through. That was almost 4 years ago and still blockage is my biggest fear. I hope you are feeling better.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: daily enema HELP

Postby Pyro » Thu Jul 18, 2019 1:12 pm

susie0915 wrote:
Pyro wrote:Lots of good advice in here, i want to warn the community of the other outcome of this horrible path, blockages. I’ve messed up and spent the last week in the hospital with an emergency surgery to remove a blockage. These things hurt like hell and there was nothing I could have done on my own to relive it. Apparently I had scar tissue wrapped around intestine, no enema or scope would have worked it out. Take care folks, and don’t let these symptoms go too long. The pain was a 11/10, dilauded wouldn’t work.


So sorry. I understand I had a blockage 4 weeks after my resection due to scar tissue. I was in the hospital for 3 1/2 weeks with an ng tube for a week then ended up having surgery. The only plus is that my surgeon decided to reverse my ileostomy at the same time so I wouldn't need surgery later. Made chemo a little tougher due to diarrhea but I made it through. That was almost 4 years ago and still blockage is my biggest fear. I hope you are feeling better.


Thanks, I am but now I can’t pee to save myself. Help!
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Eleda
Posts: 328
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: daily enema HELP

Postby Eleda » Thu Jul 18, 2019 1:24 pm

Oh Jesus, that's not good!!!!
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th


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