daily enema HELP

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tater
Posts: 99
Joined: Wed Jul 19, 2017 5:53 pm

daily enema HELP

Postby tater » Mon Jul 08, 2019 11:48 pm

I'm needing suggestions!! I have a coloanal anastomosis with clustering and urgency. (reversal July 2018) I have been doing a daily enema for about 6 months now and I'm getting discouraged. I'm open to any suggestions.
Morning Ritual:
walk for an hour
3 cups warm tap water enema laying on left side retain for about 10 min. (I've tried doing 4-5cups water, but I can't hold it and it goes very bad spilling out OR if I can hold 4cups there is urgency right after with no retaining time)
Mostly all water comes out with not much stool
I eat an apple with pb and a kind bar while sitting on the toilet. Try to get my colon moving along.
After sitting for about 30 min I get off and stay close because I will be running to the toilet about 4 more times at least within the next hour and a half. So from start to finish its 2hrs and then I take 2 immodium and then I dare leave the house 30 min. later.
So my frustration is that I read these posts and everyone is in the bathroom 30-45 min a day and I'm double that with emergency runs. Not to mention that occasionally my enema hasn't cleaned me out for the day and more time is spent running to the toilet.
Anyone have some "crappy" suggestions??
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

Eleda
Posts: 312
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: daily enema HELP

Postby Eleda » Tue Jul 09, 2019 3:36 pm

For what it's worth I'll give u my routine,,,
I've 3 small kids so have no time for enemas in the morning,
I'm only 3 months after reversal and also had a coloanal anastomosis,,,,


After an overnight fast( 12/14 hours)
I take 10g sodium bicarbonate in about 30 MLS warm water on empty stomach (less the better, it's discussing)
I drink back about a lt of miwadi after....
Black Coffee chaser helps even more
Then I carry on getting the kids out to school and usually about 40 min later boom!!!!!!

Large bowel emptied :D
On I go with my merry day
Hope this helps

ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

tater
Posts: 99
Joined: Wed Jul 19, 2017 5:53 pm

Re: daily enema HELP

Postby tater » Tue Jul 09, 2019 6:38 pm

I’m doing my u.s conversions here and
10g is about 1 1/2teaspoons and
30 milliliters is 2Tablespoons
Is this suppose to be like a paste?
And I’m wondering about the midwadi since we don’t have that drink here. Is it just a carbonated drink or what am I looking for as a replacement?
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

Eleda
Posts: 312
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: daily enema HELP

Postby Eleda » Wed Jul 10, 2019 4:13 am

10g is about a heaped teaspoon , and the warm water is up to urself, ( how much u can tolerate) I make it about Enough to just drink it in 1go
Miwadi is similar to Kool aid,
Just a non carbonated drink to kill the taste,,, ul b very thristy,, so drink plenty all day
Good luck ,

ADELE
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

tater
Posts: 99
Joined: Wed Jul 19, 2017 5:53 pm

Re: daily enema HELP

Postby tater » Sat Jul 13, 2019 3:41 pm

bump to see if I can get additional responses
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

User avatar
susie0915
Posts: 928
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: daily enema HELP

Postby susie0915 » Sun Jul 14, 2019 7:37 am

I wish I had some suggestions. My routine is somewhat like yours. I get up and walk for an hour, do some resistance training. I then go up to the bathroom, and do my enema. I put on music, light a candle, put a thick yoga mat down with a towel on it. I use 4 cups of water and lie on my left side with top leg bent. It only takes a couple minutes for the water to flow, then I lay there for ten minutes. I never used to be able to hold the water, but with practice have gotten better. I generally get alot of stool but there are those occasional days when there is not as much. I have learned that staying hydrated does make a difference. If I get too dehydrated it is harder as I think the stool becomes harder. I do know many that do enemas have found taking Imodium can make it harder as well. I do take 1 or 2 lomotil everyday but I am trying not to so much. I don't think I need it, but take for peace of mind. Usually I empty in 30-45 minutes, but I stick around the house for awhile, as I have had the rare instance where I will have leakage later. I used to use 8 cups of water, but have reduced it over the last year. Everyone is different as I think it depends on your transit time and how much colon you have left. I know I do have to tell myself every morning to relax and take deep breaths. There is a facebook page for people with low anterior resection syndrome. Many members use enemas and there is alot of helpful people that can give advice. Some use retention nozzles that allow you to administer the water without the problem of water coming out as it goes in. They even administer the enema while sitting on the toilet. I don't know if you are on facebook, but it may be worth joining as the advice is so helpful. It is a private page and nobody but members can see it. I wish I had more to offer in terms of solutions
Last edited by susie0915 on Sun Jul 14, 2019 2:30 pm, edited 1 time in total.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change
11/18 CEA .6
5/19 CT NED, CEA <.5

Eleda
Posts: 312
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: daily enema HELP

Postby Eleda » Sun Jul 14, 2019 12:47 pm

tater wrote:bump to see if I can get additional responses

Did the bicarbonate not work for u ??? :(
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

User avatar
susie0915
Posts: 928
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: daily enema HELP

Postby susie0915 » Sun Jul 14, 2019 2:28 pm

susie0915 wrote:I wish I had some suggestions. My routine is somewhat like yours. I get up and walk for an hour, do some resistance training. I then go up to the bathroom, and do my enema. I put on music, light a candle, put a thick yoga mat down with a towel on it. I use 4 cups of water and lie on my left side with top leg bent. It only takes a couple minutes for the water to flow, then I lay there for ten minutes. I never used to be able to hold the water, but with practice have gotten better. I generally get alot of stool but there are those occasional days when there is not as much. I have learned that staying dehydrated does make a difference. If I get too hydrated it is harder as I think the stool becomes harder. I do know many that do enemas have found taking Imodium can make it harder as well. I do take 1 or 2 lomotil everyday but I am trying not to so much. I don't think I need it, but take for peace of mind. Usually I empty in 30-45 minutes, but I stick around the house for awhile, as I have had the rare instance where I will have leakage later. I used to use 8 cups of water, but have reduced it over the last year. Everyone is different as I think it depends on your transit time and how much colon you have left. I know I do have to tell myself every morning to relax and take deep breaths. There is a facebook page for people with low anterior resection syndrome. Many members use enemas and there is alot of helpful people that can give advice. Some use retention nozzles that allow you to administer the water without the problem of water coming out as it goes in. They even administer the enema while sitting on the toilet. I don't know if you are on facebook, but it may be worth joining as the advice is so helpful. It is a private page and nobody but members can see it. I wish I had more to offer in terms of solutions
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change
11/18 CEA .6
5/19 CT NED, CEA <.5

natelaugh
Posts: 46
Joined: Wed Apr 03, 2019 11:40 pm

Re: daily enema HELP

Postby natelaugh » Sun Jul 14, 2019 2:58 pm

My dad use Dulcolax Medicated Laxative Suppositories. It is less work and messy than enema.

Nate.
Caregiver to 80M
DX:CC,RC,desc
11/2018 rightPain
1/19/19 scopy,path
1/23 CTscan
2/19 surgery
2/26-2/28 NGTube
2/28-3/14 TPN bc ileus
3/2 2nd surgeryCloseOpenWound
3/4-3/28 woundVac
size: 6cm Adenocarcinoma
grade Poorly
Stage IIIC T3N2aMx
PositiveLymph:5of28
BaselineCEA:68
LVI:Y
PNI:N
Surgical margins:clear
MSI:MMR (MLH1, MSH2, MSH6, PMS2) Intact nuclear expression
Lynch status:N
Laparascopic, partial colectomy
CEA:3/28/19 2.8
Chemo:4/16/19-9/17/19 5FU,12cycles,every 14days,leucoverin,zofran,Dexamethasone


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