Went to 1st ever colonoscopy 3 wks ago due simply to age (50) without family history or other predispositions. Was held back by "doctor wants to speak to you" at the end of procedure and was shocked to find a despondence doctor stating "A large mass was found. Could be cancerous. Surface biopsies done. Need to follow up wit CT and Surgeon". Colonoscopy note included "Likely Malignant...Malignant appearing tumor" (turned out it referenced only ONE polypoid that was "about 10cm". CT scan confirmed "suspicious carcinoma at least 6cm".
Biopsy states "high grade dysplasia...MAY represent underlying invasive carcinoma". Unable to speak to Out of Office doctor other than was told "Colon Cancer. Need to follow up with surgeon" by "on-duty Dr" in the office. When asked "if High Grade Dysplasia equals colon cancer should I also schedule Oncologist?" Was then told "Don't know yet"
Sources of confusion:
Still confused with the wording being used - "colon cancer", "malignant neoplasm", while a complete histology and pathology of the actual tumor is yet to occur.
The partial colectomy (laparocopic sigmoid resection) is the biggest, and only, surgery I've ever had (never even been in a hospital).
What are the expected side effects and precautionary tales of the operation?
LPL wrote:Hi ‘Newbie’
When we meet the surgeon after hubby’s emergency surgery due to blockage - I asked “when will we know if it is benign or not?” He said “it is cancer.. “
68r5cwd6me wrote:Surgery was deemed a success. "We got everything we planned" was the 1st comment from the surgeon.
Stayed in hospital for 2.5 days. Some soreness but no major pain. Did not need painkiller. When the occasional coughing (from tube irritation?) caused soreness on incision sites, used cough drops and tylenol for 3 days post discharge.
Pathology results came back and finally proved the tumor was in fact malignant. Staged at IIA with pT3 and pN0 (0/19). LVI was labelled as "Not identified" while Perinerual Invasion had a more confusing label of "Not identified Present Cannot be determined]". Final dimension 8.2cm X 7.5 X 6.2 (somewhere in between "despondent" doctor's 10cm and CT's 6cm). MSS and KRAS-wild (no BRAF?). Margin was clear and at "closest point", 1.4cm. Tumor rated as G2, moderately differentiated. Surgeon had mentioned they typically get 2nd opinion of histopathology.
Will be meeting with Surgeon for follow up in 3 days. Will see if he recommends chemo and/or oncologist visit. I'm certain colonoscopy follow ups will be much more aggressive regardless.
Is chemo for IIA standard? From my limited research, without high risk factors, it's usually not the recommended course. Although a few studies have labeled MSS and CEA (pre-op) >5 (mine was 11 with post-op not yet performed) as high risk factors.
Thank you for past comments and thank you in advance for further guidance as I move onto the next phase.
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