Sort of good news

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Posts: 260
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY

Re: Sort of good news

Postby fumaros » Sat Jul 06, 2019 12:25 pm

brokenwings wrote:
fumaros wrote:
brokenwings wrote:
Good luck! Is CEA a good indicator for your peri mets? I'm asking since your primary has been removed and you don't have mets elsewhere...

I don't know what to make out of my CEA.... When I was first diagnosed it was 8, now it's 1.1. My primary is still there and apparently it hasn't shrunk. Why did my CEA drop? I thought peri mets didn't release CEA...

Peri mets are made up of colon cells like your primary tumor, so the CEA is a good indicator if it was elevated. Mine shot up from normal to 10 after my primary tumor was removed and the perimets were found. More to your point, the CEA levels can drop if treatment is effective. Not visibly shrinking on scans doesn't mean the tumor isn't dying, it can just be scar tissue the scans are seeing, or at least the tumor being less active.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Posts: 3301
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Sort of good news

Postby DarknessEmbraced » Sun Jul 07, 2019 2:26 pm

Wonderful news! :) I hope your chemo goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Posts: 99
Joined: Mon Jan 07, 2019 1:50 am

Re: Sort of good news

Postby brokenwings » Tue Jul 09, 2019 6:36 am

DarknessEmbraced wrote:Wonderful news! :) I hope your chemo goes well!*hugs*

Thank you. Hugs.
DX January 2019
Liberkulien Adenocarcinoma - Sigmoid colon
Met to right ovary or borderline cyst?
Obstruction during hospital stay.Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) scheduled for 04/29: not optimally resectable, surgery cancelled. Right ovary removed though...
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
06/25: 4th cycle
07/03: peritoneography
07/04: exploratory laparoscopy

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