Bucket List

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Pyro
Posts: 259
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Bucket List

Postby Pyro » Fri Jun 28, 2019 6:43 am

Well folks, it’s time to start working on bucket list items. The vectibux has me looking like the walking dead and chemo is getting harder and harder o recover from so I’m throwing some caution to the wind. I was given a timeframe in months if I don’t do chemo, a year or two if I do. Obviously I’ve done 2 chemo treatments so far, but it sucks. If you see a middle age man running around between Manhattan Beach and Malibu in a red Ferrari 488 convertible worth more than my first house, wave, it’s me. Sorry to folks I may have shocked with my last comment, I’m usually doing fairly well with all of this but sometimes....

I will figure out how to post a pic of this, it’s been a lifelong dream, had the poster of exotic cars on my wall as a kid, now I’m going to live it.

Matt
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

AmyG
Posts: 185
Joined: Tue Dec 25, 2018 8:08 pm

Re: Bucket List

Postby AmyG » Fri Jun 28, 2019 7:02 am

I'm not a car girl, but I can total appreciate 660hp flying down the road! I can't get over that pricetag though! :shock:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection next step!

Pyro
Posts: 259
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Fri Jun 28, 2019 8:03 am

AmyG wrote:I'm not a car girl, but I can total appreciate 660hp flying down the road! I can't get over that pricetag though! :shock:


I’m a little nervous about driving a $300K car around, but I used to fly a $40 million dollar plane around by myself, should be fun!
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

AmyG
Posts: 185
Joined: Tue Dec 25, 2018 8:08 pm

Re: Bucket List

Postby AmyG » Fri Jun 28, 2019 8:08 am

Were you air force or navy? I'm prior service myself, two of my kids have also decided to put on the uniform. I was a cop in the USAF, they are both sailors!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection next step!

stu
Posts: 1132
Joined: Sat Aug 17, 2013 5:46 pm

Re: Bucket List

Postby stu » Fri Jun 28, 2019 10:25 am

Brilliant. Enjoy it . Tinypics so we car share .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Pyro70
Posts: 117
Joined: Mon Jan 21, 2019 4:25 pm

Re: Bucket List

Postby Pyro70 » Fri Jun 28, 2019 10:35 am

Nice! I hope you take the car all the way to SF and drive through Big Sur. You’ll enjoy those curves!

I just spent 11 days in the hospital and my oncologist also gave me the “months” prognosis because I may not be able to do more chemo with my bowel leak / fistula. It left me wondering though, is that 2 months or 12-18? Whatever, no one knows...

I’m keeping my fingers crossed that this won’t be the only item you’ll cross off your list.
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

Claudine
Posts: 64
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Bucket List

Postby Claudine » Fri Jun 28, 2019 11:06 am

DO IT!!!!!!!!!!!!
Hubby and I dream of going to Asia together (he's been, I haven't). We kept postponing because of this and that... Next "clear" window we're going!
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (activity on PET scan, but no cancer found)
Xelox * 6, 05/2018 to 10/2018
6.7 cm hypermetabolic left adrenal mass 03/14/2019, 4.4 cm 05/21/2019
SBRT L4 02/2019
Folfiri + Avastin
CEA 58 03/15, 17 03/29, 10 04/12, 6.4 04/26, 5 05/10, 4.8 05/23, 4.2 06/07, 3.6 06/21, 3.2 07/07
Scan 05/21: Multiple small lung nodules shrinking or stable compared to 03/14 scan.

User avatar
Maggie Nell
Posts: 1117
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Bucket List

Postby Maggie Nell » Fri Jun 28, 2019 10:38 pm

Pyro wrote:Well folks, it’s time to start working on bucket list items. If you see a middle age man running around between Manhattan Beach and Malibu
in a red Ferrari 488 convertible worth more than my first house, wave, it’s me. Sorry to folks I may have shocked with my last comment, I’m usually doing fairly well with all of this but sometimes....

I will figure out how to post a pic of this, it’s been a lifelong dream, had the poster of exotic cars on my wall as a kid, now I’m going to live it.

Matt


Had to Google that!

If you had a poster of exotic cars on your wall, then why stop at ONE? Check out leasing a car per week/month from a
sports, luxury, prestige and exotic car rental crowd.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

Pyro
Posts: 259
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 6:57 am

What a weekend! Lunch at Dukes in Malibu, Arthur Js and Fishbar in Manhattan beach and a few speed limits broken. Most incredible car I’ve ever driven. A bit nerve racking driving around a $350,000 car, but worth it.

To answer a previous question, I was a US Air Force Lt Col and F-16 fighter pilot. I really don’t want to look like I’m bragging, just doing something I always wanted to.

Image
Last edited by Pyro on Mon Jul 01, 2019 7:13 am, edited 2 times in total.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

stu
Posts: 1132
Joined: Sat Aug 17, 2013 5:46 pm

Re: Bucket List

Postby stu » Mon Jul 01, 2019 7:09 am

Suits you . You look the part :D .

Better than a plane .

Have fun ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 185
Joined: Tue Dec 25, 2018 8:08 pm

Re: Bucket List

Postby AmyG » Mon Jul 01, 2019 7:23 am

Pyro wrote:What a weekend! Lunch at Dukes in Malibu, Arthur Js and Fishbar in Manhattan beach and a few speed limits broken. Most incredible car I’ve ever driven. A bit nerve racking driving around a $350,000 car, but worth it.

To answer a previous question, I was a US Air Force Lt Col and F-16 fighter pilot. I really don’t want to look like I’m bragging, just doing something I always wanted to.

Image


Dude. That is an epic picture. I'm thrilled for you! And you're a full bird in my book. :D
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection next step!

Jannine
Posts: 153
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Bucket List

Postby Jannine » Mon Jul 01, 2019 7:30 am

I love this photo. So glad you did this, Matt. Thank you for sharing it with us. I hope you get a bunch more awesome things crossed off of your bucket list!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8

Pyro
Posts: 259
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 7:30 am

Thank you, pic was taken at the Manhattan beach pier. -Matt
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

Pyro
Posts: 259
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Bucket List

Postby Pyro » Mon Jul 01, 2019 7:34 am

Pyro70 wrote:Nice! I hope you take the car all the way to SF and drive through Big Sur. You’ll enjoy those curves!

I just spent 11 days in the hospital and my oncologist also gave me the “months” prognosis because I may not be able to do more chemo with my bowel leak / fistula. It left me wondering though, is that 2 months or 12-18? Whatever, no one knows...

I’m keeping my fingers crossed that this won’t be the only item you’ll cross off your list.


I’m also trying to get a pre-screening of Top Gun 2.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

AmyG
Posts: 185
Joined: Tue Dec 25, 2018 8:08 pm

Re: Bucket List

Postby AmyG » Mon Jul 01, 2019 7:47 am

Top Gun 2? What? That's a thing??
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection next step!


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