Well, the pain relief from the knee injection was short-lived. The pain came back big time after 4 or 5 days. Hand pain levels vary depending on whether I do anything with the hand, such as chopping up a couple onions. That will result in two days of elevated pain, as opposed to the regular baseline pain.
First, I was holding on for the injections. Since then I've been holding on for Celebrex, which my insurance rejected, as predicted, demanding additional info from the doctor justifying its use. Still waiting to get it.
I sincerely wish that every insurance company asshole who dreams up these rejection protocols have to suffer my pain and that of all of the others who are suffering because of them.
I also wish that they suffer the uncertainty and fear and disease progression and everything else suffered by those who are refused MRIs and other tests.
I have a scheduled infusion next week, and I doubt I'm getting it. I was barely able to convince them to let me have it last time. At this point I am disheartened, and I think I may have to go off Keytruda for a while, at least, because this constant pain is not supportable. Do I want to live like this? I've found myself wondering if it would really be such a big deal to be an opioid addict if the supply were assured. Wouldn't that be better?
It's ironic, because my status as a responder to immunotherapy puts me way out to the right hand side of the life expectancy curve of CRC patients.....if I can take it.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable