Currently in the ER...woo.

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Jannine
Posts: 204
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Currently in the ER...woo.

Postby Jannine » Thu Jun 20, 2019 7:58 pm

Yikes, I'm sending all my positive thoughts your way. I hope they get to the bottom of this soon!!
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 8:40 pm

So, to add insult to injury.... I'm currently drinking the most disgusting bowel prep drink for tomorrow's colonoscopy. :x

It tastes like nasty salt water, but they did finally change my diet to clear liquids. That was the best jello I've ever had. I've been npo since Tuesday night!

Still bleeding but not as bad. No labs drawn recently. I want a shower but there isn't one in this room.

0900 is when my scope is scheduled. I have to drink this nasty crap now and again at 0400.. Wish me luck!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Currently in the ER...woo.

Postby Lee » Thu Jun 20, 2019 8:48 pm

AmyG wrote:It tastes like nasty salt water, . . . .

0900 is when my scope is scheduled. I have to drink this nasty crap now and again at 0400.. Wish me luck!!


Mirlax by any chance. I though they stopped using that. All the best tomorrow.

Yes, my last hospital visit, got home, dear God, please let me shower NOW!!!!!!

Thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 8:58 pm

It's not miralax but something else. I can't remember what they called it. So gross.

My bathroom is tiny, idk how I'm supposed to be in there with my iv pole. There's not room for both of us and I'm not about to leave the door open when this garbage drink starts to work! :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Currently in the ER...woo.

Postby Lee » Thu Jun 20, 2019 10:32 pm

AmyG wrote:.

. . . . There's not room for both of us and I'm not about to leave the door open when this garbage drink starts to work! :lol:


What :shock: ??? Don't you know you are suppose to leave any modesty you may have at the front door as you enter the hospital. This was a few years back, butt a women who was active a few yrs back, went to the airport, security nab her, she had to go into a special room and take off her colostomy bag to "prove" there was no dynamite on her body. She was offended, butt I decided after that, I would go with the flow. Guess she had out put when TSA was looking at stoma. I believe the word is revenge :twisted: Afterwards some TSA told her it was not necessary to prove that was a real stoma :shock: As if she had any control :shock: . again if it happened to me I would warn them I have no control :mrgreen: Thanks to advancement, today,I wipe my hand across bag, than they wave wand across my hand or wipe my hand and put wipe in special machine.

Not along after 9-11, my kid had water bottles, we all had to drink it to prove it was safe. I remember one TSA rolling her eyes. I said, look you get us safe to our destination, yes my kids and I will drink this water, believe me I know it is safe.

Again, good luck tomorrow,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Fri Jun 21, 2019 7:02 am

So riddle me this... why are all the gentlemen that will be exploring my colon so handsome? :lol: I swear everyone I've had to describe my bloody backside to has been a tall drink of water.

It's a good thing I'm old, ugly and happily married. :lol:

Still on track for 0900 scope. Bowel prep went well, everything is almost to that clear stage that they want. Here's to hoping that all goes well!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

margiej
Posts: 109
Joined: Sat Apr 14, 2018 8:46 am

Re: Currently in the ER...woo.

Postby margiej » Fri Jun 21, 2019 9:02 am

Thinking of you... Hope everything gets figured out quickly with the best outcomes.
Margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Fri Jun 21, 2019 11:16 am

They found nothing.

My hemoglobin has dropped from 11.3 when I got here to 9.7 the last time they drew labs. I don't think they are letting me go home today.

In better news, I GET TO EAT!!!! Today is Friday, I've had nothing to eat since Tuesday. Well, they did let me have a jello but I'm not really sure that counts. I have chicken fried steak, mashed potatoes, roasted vegetables, a roll and a cookie coming.

I'm really excited about that cookie. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Beckster
Posts: 438
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Currently in the ER...woo.

Postby Beckster » Fri Jun 21, 2019 11:30 am

I have been following your posts to the ER...so happy that they found nothing. You are an amazing person! Even during a stressful time, you manage to be light hearted and make me laugh. You take everything in stride, which is the total opposite of me. Enjoy that cookie! You deserve it!
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic
1/2/17 to 6/9/17- Xeloda
6/17,12/17,6/18,12/18,6/19,12/19,12/20,12/21 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0 12/20 2.7 6/21 2.9,[color=#000000]12/21 2.7[/color]
Clear Colonoscopy 10/17, 11/19,11/21 :D

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Currently in the ER...woo.

Postby Punky44 » Fri Jun 21, 2019 11:38 am

I second what Beckster said—your positive attitude is incredible—I could learn a lot from you.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Currently in the ER...woo.

Postby boxhill » Fri Jun 21, 2019 1:18 pm

I've been following your travails, Amy. What a course of events. Enjoy that chicken fried steak...and the cookie!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Fri Jun 21, 2019 1:36 pm

Yall.... that cookie was divine. The roasted vegetables were on point too.

As for my attitude, wtf else am I going to do? If it is to be, it is up to me. My life is wonderful, there are people in the world that wish they had my problems. Also, Nicholas rolled over today!! He just turned 3 months old on the 15th!!

So yeah. Here I sit waiting to see if I'm still bleeding. To waste time I'm binge watching garbage tv. It's not so bad. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Currently in the ER...woo.

Postby ginabeewell » Fri Jun 21, 2019 1:49 pm

AmyG wrote:As for my attitude, wtf else am I going to do? If it is to be, it is up to me. My life is wonderful, there are people in the world that wish they had my problems. Also, Nicholas rolled over today!! He just turned 3 months old on the 15th!!

So yeah. Here I sit waiting to see if I'm still bleeding. To waste time I'm binge watching garbage tv. It's not so bad. :lol:


As a mom / stepmom of four, I have to say that I did find SOME benefits of being constricted to a hospital bed... ; )

And you're right. I was pretty down the other day and asked my husband, can I really do this for another 10+ months??

And he asked me, "Well, is there another choice?" He's right of course. And I have a life worth living for, so I will do what it takes.
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Currently in the ER...woo.

Postby stu » Fri Jun 21, 2019 4:36 pm

Mmm you are kind of reminding me of a relative of mine !!! She too has incredible bounce back .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Fri Jun 21, 2019 5:09 pm

My mother in law just sent me a text that said:

One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide.

Still passing blood, they best not delay my chemo on Monday or I'm going to be pissed. :evil: However, I'm realistic and until they locate the source, I'm not going anywhere.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!


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