Currently in the ER...woo.

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Pyro70
Posts: 156
Joined: Mon Jan 21, 2019 4:25 pm

Re: Currently in the ER...woo.

Postby Pyro70 » Fri Jun 21, 2019 5:28 pm

AmyG wrote:My mother in law just sent me a text that said:

One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide.

Still passing blood, they best not delay my chemo on Monday or I'm going to be pissed. :evil: However, I'm realistic and until they locate the source, I'm not going anywhere.


I wouldn’t worry so much about delaying chemo. It’s not always clear that more is more.

Strange they didn’t find the source. If it’s red blood it should be quite low in the GI track. Maybe it’s in the ileum. Are they planning a capsule endoscopy? I just had an ulcer in my duodenum. That blood came out entirely black. They could do an upper GI endoscopy, but if the blood is red, that doesn’t seem worthwhile. Also when I had my ulcer the doctors told me not too worry too much. It doesn’t take a lot of blood for the stool to look like a horror show. You can’t tell from the stool.

As for your HGB, they also expect it to drop a point or so just being in the hospital, drawing blood, etc.
Dx Jan 2017 stage IVB w/ PC age 35
FOLFOX
SEP 17 HIPEC 1, anastamosis leak
XELODA
MAR 18 HIPEC 2
JUN 18, ileo reversal and 2nd anastamosis leak

AmyG
Posts: 327
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Fri Jun 21, 2019 6:57 pm

The capsule was suggested, but I guess it isn't done here? Idk why there's still blood if they found nothing this morning. I'm supposed to call my nurse the next time there's blood in the potty so they have an idea of what I'm losing.

How exciting.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

AmyG
Posts: 327
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Sat Jun 22, 2019 8:07 am

So I'm an emotional wreck this morning.

I was looking last night for something inspirational or comforting for the Miss Molly thread and unintentionally stumbled across a poem from a little boy's point of view. He kept asking his mommy not to go, to stay and play, that he was mommy's boy....totally gutted me. I was a sobbing mess. It just hit so close to home. Still feeling the effects this morning. My husband is going to bring the kids up in just a little bit so that will help.

I can't leave these kids motherless. I refuse. I don't want the youngest 3 to only remember mommy as being sick. F that.

In other news, still bleeding all night. This morning there was talk of maybe a scope from the top to check upper GI. Hemoglobin is still slowly dropping but not terrible. I think it's 9.2 now.

So that's my news. Going to order breakfast, but it seems like eating irritates things but I'm not going to pass it up. Maybe that will help get to the root of this problem if I bleed worse after a meal?
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

BritinCanada
Posts: 11
Joined: Tue May 28, 2019 2:28 pm

Re: Currently in the ER...woo.

Postby BritinCanada » Sat Jun 22, 2019 8:43 am

Soft hugs Amy.

My kids are 2,4,6 and 8. It makes my heart hurt so bad that this is their life now. I've been sick half my two year olds life and she just takes the chemo bottles and shots and hospital visits as normal. And it should never have to be that way.

But as someone who also saw their mother die from this disease I have to say that some of my favourite memories of her are when she was sick. We got to do things together and spend time together that wouldn't have happened otherwise. I know now that that must have been very difficult for her but for me it was my special momma time. And that's what they want, just to be with you.

Take deep breaths, keep fighting. I wish you so much strength.
Dx CRC July 2018 T4N2M1
Sucessfull surgery August 2018
12 rounds of Folfox. June 2019 begin folfiri
November 2019 begin cetuximab and irinotecan

AmyG
Posts: 327
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Sat Jun 22, 2019 9:54 am

Thanks. I really appreciate that and I hate that you know exactly where I'm coming from.

Good news is that the kids are on the way, will be here in less than an hour! Saw a doctor, he seems to think that since my colon was so great, it must be coming from my anus. Ergo, my ass is broke yall. :lol: No clue if they are going to investigate further or send my broke ass home.

This has been a long freaking stay. Checked my last CBC and ANC is down to 1.6 if I drive all the way out here on Monday morning just to be told, sorry no chemo for you....I might get irritated. Not for the lack of treatment but for the wasted 4 hour drive!!

Cancer can go eat a bag of dicks. :twisted:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

AmyG
Posts: 327
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Sat Jun 22, 2019 3:34 pm

Guess who is going home??

They never found the source of my bleed, I'm still bleeding but my oncologist said to still come for chemo on Monday, she's just withholding Avastin.

So, overall I'd rate this adventure a 2/10, do not reccomend.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

User avatar
Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Currently in the ER...woo.

Postby Green Tea » Sat Jun 22, 2019 5:10 pm

Would you be able to check with your doctor to see if they would consider an upper endoscopy? As noted below, an endoscopy is the gold standard for identifying and treating ulcers in the upper GI tract.

If the bleeding is severe, then endoscopy is the most common surgical procedure used to stop the bleeding.

A doctor uses an endoscope to cauterize or seal the bleeding vessel using a heated electrical probe or he may close it off by injecting solutions into the bleeding vessel.

Doctors can also easily see the signs of all the different types of bleeding when using an endoscope. Blood clots, active spurting, slow oozing of blood from arteries, as well as swollen blood vessels that are not bleeding yet, can all be detected with the use of an endoscope.

Endoscopy is currently the gold standard for treating bleeding ulcers.

References: https://www.ulcer-cure.com/index.php/bleeding-ulcer-treatments
https://www.ulcer-cure.com/index.php/bleeding-ulcer-symptoms


AmyG
Posts: 327
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Sat Jun 22, 2019 8:02 pm

They didn't seem to think I needed one. :roll:

I think they wanted to blame it on hemorrhoids. Even though they weren't acting up during the colonoscopy. So whatever. I'm not bleeding out, we'll see how it goes from here!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Currently in the ER...woo.

Postby Pyro » Sat Jun 22, 2019 8:56 pm

AmyG wrote:Ergo, my ass is broke yall. :lol: No clue if they are going to investigate further or send my broke ass home.


Cancer can go eat a bag of dicks. :twisted:


This sums up my entire cancer experience
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Punky44
Posts: 420
Joined: Mon Oct 01, 2018 4:29 pm

Re: Currently in the ER...woo.

Postby Punky44 » Sun Jun 23, 2019 12:17 am

Happy you were able to bust out!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — CT showed nodules on lungs—possible infection or mets—PET showed nothing—follow up CT on 1/27

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

DarknessEmbraced
Posts: 3396
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Currently in the ER...woo.

Postby DarknessEmbraced » Sun Jun 23, 2019 9:15 am

I'm so sorry you're going through this!*hugs* How frustrating that they didn't find the source of your bleeding!*hugs* I hope your chemo goes well and that you feel better soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 430
Joined: Fri Apr 06, 2018 11:40 am

Re: Currently in the ER...woo.

Postby boxhill » Sun Jun 23, 2019 9:30 am

AmyG, I'm totally with you: we can either try to have a great attitude--most of the time, anyway--or we can live in misery. As the neurosurgeon said when I told him that it looked like things were lining up to see which one can kill me first, "Well, at least you've still got your sense of humor!" And where would we be without it?

It sounds like Avastin is probably your culprit. I'm kind of amazed that they can't tell where it's coming from though, but I guess like most things it's harder than it looks on tv.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
Neulasta 6/28
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: many fails before Celebrex helps
12/23/19 CT stable


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