Currently in the ER...woo.

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Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Currently in the ER...woo.

Postby Green Tea » Thu Jun 20, 2019 6:40 am

You might ask about duodenal ulcer. There is a remote possibility that you have a bleeding ulcer triggered by a bad H. pylori infection.

The only reason I mention this is because this is exactly what happened to me: a dual diagnosis of CRC and bleeding duodenal ulcer.

https://www.ulcer-cure.com/index.php/all-about-stomach-ulcers/ulcer-symptoms/duodenal-ulcer-symptoms?sl=1

https://www.walkinlab.com/labcorp-helicobacter-pylori-urea-breath-test.html

https://www.walkinlab.com/labcorp-helicobacter-pylori-antigen-stool-test.html
Last edited by Green Tea on Sun Jun 23, 2019 1:02 pm, edited 1 time in total.

fumaros
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Location: Syracuse, NY
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Re: Currently in the ER...woo.

Postby fumaros » Thu Jun 20, 2019 8:02 am

Praying for you and hoping you are not in pain.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

AmyG
Posts: 280
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 8:24 am

I'm still alive!!

Still have bleeding but I guess my labs are stable. Waiting to hear about my CT results. That will also show if the met in my liver has shrunk!

Bored. Tired. Hangry. I'm npo and not happy about it. :evil:

I assume my oncologist will swing by at some point. Until then I'm watching garbage tv and playing candy crush.

Thanks for all the good wishes, they are appreciated!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

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Jack&KatiesMommy
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Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Currently in the ER...woo.

Postby Jack&KatiesMommy » Thu Jun 20, 2019 8:48 am

So glad to hear you are feeling okay this morning. Have been praying for you, Amy.
Cynthia
Cynthia
Mommy to Jack (8) now (16) and Katie (4) now (12)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung:
05/18: Keytruda (MSS w/Intermediate TMB): CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8, .8, 1.1, 1.1
Clear CTs
CEA up to 4.5 Single Node lighting up (mildly)

AmyG
Posts: 280
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 11:22 am

Colonoscopy later today, ct didn't show any change in the liver met.

Sigh.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

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ginabeewell
Posts: 350
Joined: Wed Oct 24, 2018 10:30 am

Re: Currently in the ER...woo.

Postby ginabeewell » Thu Jun 20, 2019 11:48 am

AmyG wrote:Colonoscopy later today, ct didn't show any change in the liver met.

Sigh.


I got that news myself the other day. I know that no progression is good news but it didn't feel that way to me. I'm sure that's probably how you feel now.

I will say that my largest tumors eventually calcified so there's no way of knowing if your tumors are still alive or dead at this point, the CT scan won't reveal that quite yet. So try to stay positive...

We are with you!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

AmyG
Posts: 280
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 11:52 am

Thanks Gina! That's pretty much exactly how I feel. No progression is great and I have 2 more cycles before I was even supposed to look at it. But I was really hoping for a "hey, that thing is significantly smaller!"

Currently, the entire hospital computer system is down. They can't even order me a Tylenol for this wicked headache.

I'm looking for a mulligan today. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

NHMike
Posts: 2315
Joined: Fri Jul 21, 2017 3:43 am

Re: Currently in the ER...woo.

Postby NHMike » Thu Jun 20, 2019 1:21 pm

Hoping they find the cause and it's an easy fix.

I'm impressed with how well you're taking things.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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ginabeewell
Posts: 350
Joined: Wed Oct 24, 2018 10:30 am

Re: Currently in the ER...woo.

Postby ginabeewell » Thu Jun 20, 2019 1:25 pm

AmyG wrote:Colonoscopy later today, ct didn't show any change in the liver met.

Sigh.


Remind me, are you resectable now?

My largest met is 5 cm, and the surgeon is talking to me about resection, albeit in two procedures vs one. I think you said your largest was 4.7 cm, so it makes me think that you might also be a candidate for surgery at this point (even if the goal initially was to shrink things down with chemo before going down that path)?
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

AmyG
Posts: 280
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 2:04 pm

It grew during my pregnancy, I'd have to look in mychart to see the size it was after I had Nicholas. Resection has always been on the table, I think they just wanted to see if they could get it smaller. My met is in segment 6 or 7so it's in a good spot.

In other news, the f'ing computer system is still down. Wtf. Nothing can done and I'll be lucky if I even get my scope today!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

Claudine
Posts: 173
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Currently in the ER...woo.

Postby Claudine » Thu Jun 20, 2019 2:35 pm

Like others above I wonder if that's caused by Avastin? Hopefully nothing *too* serious!
XXX Claudine
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (no cancer found - Crohn's)
Xelox * 6, 05/2018 to 10/2018
6.7 cm left adrenal mass 03/14/2019, 4.4 cm 05/21, 4.1 cm 09/16
SBRT L4 02/2019
Folfiri + Avastin
CEA since 03/15: 58, then low of 3.2 now at 5.0 (twice)
Scan 03/14: Multiple small lung nodules
Scan 05/21: shrinking
Scan 09/16: lungs show no abnormalities (YAY!!!)

AmyG
Posts: 280
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Thu Jun 20, 2019 3:03 pm

There is a hypoenhancing heterogeneous mass within segments 6
and 7 measuring approximately 4.4 x 6.4 x 7.1 cm. This has increased
in size since the prior MRI on 10/29/2018.

That's my liver met. That was from April's CT, the report from yesterday isn't in mychart yet.

No colonoscopy today, so I'm an overnight guest again.

I forgot to add: it wouldn't surprise me if this is all Avastin's fault!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3

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ginabeewell
Posts: 350
Joined: Wed Oct 24, 2018 10:30 am

Re: Currently in the ER...woo.

Postby ginabeewell » Thu Jun 20, 2019 3:54 pm

AmyG wrote:It grew during my pregnancy, I'd have to look in mychart to see the size it was after I had Nicholas. Resection has always been on the table, I think they just wanted to see if they could get it smaller. My met is in segment 6 or 7so it's in a good spot.


That's good news. Mine are big, all over, and inconveniently located near veins!

Also did you ever talk to your oncologist about Vectibix? It is supposed to have better outcomes than Avastin for certain types of colon cancer. It is a bitch with the rash, but I think it must have really done a number on my mets.
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

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CRguy
Posts: 10020
Joined: Sun Feb 10, 2008 6:00 pm

Re: Currently in the ER...woo.

Postby CRguy » Thu Jun 20, 2019 5:08 pm

AmyG wrote:No colonoscopy today, so I'm an overnight guest again.

Continuing MEGA +++++++ POSI VIBES coming your way

Here's to getting you fixed up and outta' da' Big House !!!

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 5971
Joined: Sun Apr 16, 2006 4:09 pm

Re: Currently in the ER...woo.

Postby Lee » Thu Jun 20, 2019 7:41 pm

Good luck, hope they get to the bottom of this and nothing serious. You are in my thoughts and prayers.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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