Currently in the ER...woo.

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AmyG
Posts: 301
Joined: Tue Dec 25, 2018 8:08 pm

Currently in the ER...woo.

Postby AmyG » Wed Jun 19, 2019 3:22 pm

Had significant rectal bleeding, diarrhea and abdominal cramping since last night. Called the oncologist after one trip to the potty resulted in nothing but a bowl full of bright red blood. They said go to the ER, so here I sit.

They've already accessed my port and drawn my labs. Here's to hoping it's nothing!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

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CRguy
Posts: 10037
Joined: Sun Feb 10, 2008 6:00 pm

Re: Currently in the ER...woo.

Postby CRguy » Wed Jun 19, 2019 4:01 pm

Sending best wishes and MEGA ++++++ VIBES your way
hope they get to the "bottom" of it ASAP :shock:

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: Currently in the ER...woo.

Postby juliej » Wed Jun 19, 2019 4:58 pm

Swinging chickens and sending tons of good vibes your way!!!

Hopefully, it's just a nasty viral infection. Hang in there and let us know what you find out!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

AmyG
Posts: 301
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Wed Jun 19, 2019 5:40 pm

Bloods came back fine but still bleeding so I get a CT and an overnight stay. Yeehaw. :roll:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

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juliej
Posts: 3049
Joined: Thu Aug 05, 2010 12:59 pm

Re: Currently in the ER...woo.

Postby juliej » Wed Jun 19, 2019 6:54 pm

AmyG wrote:Bloods came back fine but still bleeding so I get a CT and an overnight stay. Yeehaw. :roll:

Well, good labs are a start. Hopefully the CT scan will show what's really going on. Hope you're back home and feeling better again soon!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Currently in the ER...woo.

Postby Caat55 » Wed Jun 19, 2019 7:18 pm

Strong steady support sending your way.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

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ginabeewell
Posts: 371
Joined: Wed Oct 24, 2018 10:30 am

Re: Currently in the ER...woo.

Postby ginabeewell » Wed Jun 19, 2019 8:35 pm

With you in spirit. I remember the day my doctor called and told me to go directly to the ER. It was scary, and I ended up being there for a full week.

I think it was the first time that I realized cancer treatment was not a straight line of chemo - that it could and would go sideways when you least expected it.

It’s good that you got yourself in and will figure out with the CT what’s going on so you can address it!
45 year old mom of twins (8) and lucky stepmom of 14 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 CT scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 HAI pump placement / colon resection
4/8/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/19 1st liver resection
10/16/19 2nd liver resection

AmyG
Posts: 301
Joined: Tue Dec 25, 2018 8:08 pm

Re: Currently in the ER...woo.

Postby AmyG » Wed Jun 19, 2019 8:43 pm

Thanks yall! ER nurse redrew my labs, some value is lower and he told me he wouldn't be surprised if I got a transfusion before I left.

Currently in a room with lovely nursing staff. They are checking to make sure I'm not npo. I've had nothing but a cup of coffee today. They at least ordered me some fluids, so that's that!

The bleeding is still excessive. Who likes seeing the potty full of blood? Not me!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

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mobrouser
Posts: 155
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Currently in the ER...woo.

Postby mobrouser » Wed Jun 19, 2019 9:38 pm

Hope you get answers soon.
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Currently in the ER...woo.

Postby LPL » Wed Jun 19, 2019 10:48 pm

Thinking about you Amy,
Sending lots of Good vibrations & Best wishes that the bleeding stops and that you can get back home soon!
Could it be a side effect of the Avastin?
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

michelle c
Posts: 1882
Joined: Wed Dec 02, 2009 3:58 am

Re: Currently in the ER...woo.

Postby michelle c » Wed Jun 19, 2019 11:13 pm

Hi there,

Ooooo that sounds quite frightening.....wondering if it's due to Avastin. Best wishes and hope it resolves soon xx
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Punky44
Posts: 403
Joined: Mon Oct 01, 2018 4:29 pm

Re: Currently in the ER...woo.

Postby Punky44 » Thu Jun 20, 2019 12:54 am

Thinking of you and hoping you get answers and can get outta there!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9; 10/22: 2.6
6/28/19 Reversal and port out
10/22 — nodules on lungs—possible infection or mets—PET scheduled for 11/25

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

brokenwings
Posts: 101
Joined: Mon Jan 07, 2019 1:50 am

Re: Currently in the ER...woo.

Postby brokenwings » Thu Jun 20, 2019 1:38 am

Sending positive vibes...
Keep us posted.

HUGS!
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
07/04: exploratory laparoscopy - necrosis of peri mets
4 more cycles
09/11: CT scan
09/12: last exploratory laparoscopy and final decision

lovelife789
Posts: 141
Joined: Thu Aug 24, 2017 5:28 am

Re: Currently in the ER...woo.

Postby lovelife789 » Thu Jun 20, 2019 4:53 am

Wish you all the best with the lab results and everything!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Mod. differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - 6/30 - NED
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
8/30 - VATs
8/30 - 4/30 - NED
5/28 - uptake seen in 1 x PALN, 1x common iliac, cloudy in Liver
FOLFIRI + Avastin

mpbser
Posts: 935
Joined: Wed Apr 19, 2017 11:52 am

Re: Currently in the ER...woo.

Postby mpbser » Thu Jun 20, 2019 5:10 am

Thinking of you and sending vibes/prayers
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED


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