2 year scan

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benben
Posts: 318
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

2 year scan

Postby benben » Tue Jun 18, 2019 1:25 pm

Hi all.

Yesterday I had my 2 year CT-Scan.
I had very heavy scanxiety given it'd been a year since the last scan.
My CEA levels have been hovering 2.5-2.8. I've had some mild abdominal discomfort from time to time.
Overall, my energy levels and overall health seemed pretty good.

Long story short the scan came back NED! So I'm celebrating 2 years and 2 months cancer free today.

It's been a fantastic year for me. I've biked several thousands of miles, had my port removed, and met a wonderful
woman that loves me regardless of my diagnosis. Took a trip to Hawaii and have been planning a property purchase/home building/cohabitation
with said lady :). We were holding back on closing on a property until results were in. Now we're taking the plunge forward.

Wishing you all well!
thank you.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
6/19 CT - NED (2 years!)
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Punky44
Posts: 440
Joined: Mon Oct 01, 2018 4:29 pm

Re: 2 year scan

Postby Punky44 » Tue Jun 18, 2019 2:28 pm

Awesome!! Congratulations!!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3
Latest update: 6/20–Clear CT, normal CEA

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.
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Koreysue
Posts: 153
Joined: Mon Apr 30, 2018 2:36 pm

Re: 2 year scan

Postby Koreysue » Tue Jun 18, 2019 2:40 pm

Yahoooo!
Congratulations- that’s great news. I’m waiting on my 2 year scan results, and know that anxiety you describe :roll:
Happy for ya!
Koreysue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
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Beckster
Posts: 417
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: 2 year scan

Postby Beckster » Tue Jun 18, 2019 3:07 pm

Congrats! This is awesome!!! Scanxiety is so real!!!! I just got my results back yesterday at the onc office. My pulse rate was 138! When he opened the door to the room, instead of saying "hello", he said "scans are clear!" "Now you can calm down"! :lol:
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0
Clear Colonoscopy 10/17, 11/19 :D
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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: 2 year scan

Postby susie0915 » Tue Jun 18, 2019 3:18 pm

I so get the anxiety. I just had mine in April and it was clear. I'll be 4 years cancer free in September. I wonder if the anxiety ever ends.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5
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Claudine
Posts: 385
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: 2 year scan

Postby Claudine » Tue Jun 18, 2019 3:37 pm

Woot woot!! My husband will never be NED (once cancer is in the bone, the specialists won't ever call it NED because it's still there, you can rarely remove the bone) but it's always great to read that others have reached this important milestone. May it stay that way!

Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20
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benben
Posts: 318
Joined: Fri Apr 28, 2017 3:18 pm
Location: Washington State

Re: 2 year scan

Postby benben » Tue Jun 18, 2019 9:03 pm

Punky44 wrote:Awesome!! Congratulations!!


Thank you!

Koreysue wrote:Yahoooo!
Congratulations- that’s great news. I’m waiting on my 2 year scan results, and know that anxiety you describe :roll:
Happy for ya!
Koreysue


Thanks KS

Beckster wrote:Congrats! This is awesome!!! Scanxiety is so real!!!! I just got my results back yesterday at the onc office. My pulse rate was 138! When he opened the door to the room, instead of saying "hello", he said "scans are clear!" "Now you can calm down"! :lol:


LOL. Yes, I didn't want to open my scan results on the portal. My GF stopped by and we looked together. It was a happy conclusion :).

susie0915 wrote:I so get the anxiety. I just had mine in April and it was clear. I'll be 4 years cancer free in September. I wonder if the anxiety ever ends.


I'd imagine that it lessons with time. This one for me seemed greatest given some periodic abdominal discomfort and the fact that majority of recurrence happens in the first 2 years.
Claudine wrote:Woot woot!! My husband will never be NED (once cancer is in the bone, the specialists won't ever call it NED because it's still there, you can rarely remove the bone) but it's always great to read that others have reached this important milestone. May it stay that way!

Claudine


I hope some day that a cure can be had for any stage. Perhaps immunotherapies or some other method of treatment will make it possible.
I wish your husband the best health and QOL he can have.
----------------------
3/29/17 diagnosed CRC - 44 y/o Male
4/17/17 ULAR - Straight anastomosis - no ostomy.
Path: low grade T3n1m0 - moderate diff.
KRAS - NO, MLH1/PMS2/MSH6/MSH2 - Normal.
5/3 med port install
5/22 folfox - first treatment.
3rd treat, delayed - low ANC - reduced to 90% OXI
zarxio all treats
Treat 7 - 75% OXI
Treats 8-12 - NO OXI, Luke & 5FU
10/20/17 CT- NED
3/18 Scope - Clean
11/8 PORT OUT!
6/19 CT - NED (2 years!)
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mobrouser
Posts: 156
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: 2 year scan

Postby mobrouser » Tue Jun 18, 2019 11:08 pm

7 months behind you.
Congratulations on the new home. It will be awesome.
8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?
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Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: 2 year scan

Postby Deb m » Wed Jun 19, 2019 9:19 am

Congrats! Go celebrate. The two year mark is a big hurdle.
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bitchslapped
Posts: 1527
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: 2 year scan

Postby bitchslapped » Sat Jun 22, 2019 2:11 pm

Uh, not so fast benben. You have been doing all of those activities for the last year & not ONE pic? We have a new pic thread for photos & stories:

viewtopic.php?f=1&t=62684

Congratulations to you on the wonderful news (medical + romance)!


Happy Trails, Best Wishes

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
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Tdubz
Posts: 152
Joined: Sun May 07, 2017 11:01 am

Re: 2 year scan

Postby Tdubz » Sat Jun 22, 2019 7:42 pm

Awesome news man!!!
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DarknessEmbraced
Posts: 3465
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 2 year scan

Postby DarknessEmbraced » Sun Jun 23, 2019 9:17 am

Congratulations on being NED! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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juliej
Posts: 3106
Joined: Thu Aug 05, 2010 12:59 pm

Re: 2 year scan

Postby juliej » Tue Jun 25, 2019 7:16 pm

Congratulations, benben! 2 years and 2 months is awesome! :D :D :D

Take the plunge - move to Hawaii with your lovely lady! Cancer has stolen enough from you. Claim some back!!!

Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1
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CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: 2 year scan

Postby CRguy » Tue Jun 25, 2019 8:32 pm

benben wrote:Long story short the scan came back NED! So I'm celebrating 2 years and 2 months cancer free today.

You had me at NED buddy ....
then you added all the really good stuff

kick ass and take names ....
here's to a permanent reservation in the NEDsville resort !!!

Cheers and Harmony on the journey bro'
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 2 year scan

Postby LPL » Wed Jun 26, 2019 1:19 am

Big Congratulations benben !!
A lot of good news in your post :)
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets
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