The Colon Club

JESUS CHRIST,,,, This Is awfull!!!!! My ass is burned from cleaning it
Bleading burned and sore, hemies

Ok,,,, this is the days I eat too late or am stressed otherwise
Life is ok 2 months out as long as it's take my bicarbe,,,
Not sure what u yankies call it ....


So heres my day ( hope it will help many)

1 - Stop eating at 6pm
2 - on empty stomach ( 12/14 hours fast) longer the better
Mix 10g sodium bicarbonate in roughly 20 MLS warm water ( it's discussing so less water for your own sake)
3- drink lots ( black coffee or water ,,, not capuccino ( only my observation!!!!!
STAY HOME FOR 1 HOUR.....

Presto large bowel emptied,,,

If not for this id deffo b asking to replace the illeostomy

It's my savour,,, QOL
please try it and let me know how u go
( I've had my kidney function checked and all good
In fact my CEA IS THE LOWEST since I began
I read study on tolleribility and 10g is safe ADELE X


ADELE X

Mike,,, please try this Because I know ur struggling


PRESTO,,,,
SWF, 47

Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....

Jep, it's really really helped me
I'd love if it does help him also
Please let me know
Its pretty rank to take so have a flavoured drink at the ready to wash it down.
Good luck
Adele x

Eleda, if your eating beans, don't eat it anymore. It causes major gas and clustering. Also are you taking Metamucil at night with a lomotil/atropine? Try that and it might help, also how far out from your reversal are you?

Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself clean and then "pat, pat, pat" myself again. Warm water is better than cold water! If you have hemorrhoids, cold water hitting them will be painful. The bottles I use are purchased on Amazon and they have helped me deal with this pain-in-the-ass issue.

https://www.amazon.com/Portable-Handhel ... pons&psc=1

I'm one month short of 9 years since my resection and still regularly have bouts of clustering. I have tried everything under the sun but guess that after nine years, it is what it is!

Eleda wrote:Jep, it's really really helped me
I'd love if it does help him also
Please let me know
Its pretty rank to take so have a flavoured drink at the ready to wash it down.
Good luck
Adele x

Great to hear its helping you Adele. On a lighter side have you any help for the Cork footballers agast dublin next week.

Rikimaroo wrote:Eleda, if your eating beans, don't eat it anymore. It causes major gas and clustering. Also are you taking Metamucil at night with a lomotil/atropine? Try that and it might help, also how far out from your reversal are you?

Rikimaroo I don't take any medicine at all,,,
I don't eat beans lol, I met with a continance nurse and she gave me a concocation to take 2x day and all it did was cause hurrindous gas and clustering
I'm only 3 Months out... I had a coloanal anastomosis so I k ow it takes time but I just couldn't deal with it and this way I can have a normal life again

Adele

macpudd wrote:

Eleda wrote:Jep, it's really really helped me
I'd love if it does help him also
Please let me know
Its pretty rank to take so have a flavoured drink at the ready to wash it down.
Good luck
Adele x

Great to hear its helping you Adele. On a lighter side have you any help for the Cork footballers agast dublin next week.

Was only thinking if you yesterday mc pudd "I sent u a message"
Come on the BLOOD AND THE BANDAGE
CORCIAGH ABÚ
Lol lol lol

ADELE X

jep wrote:Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....

Do not leave the house for at least an hour after
I REPETE
"DO NOT LEAVE THE HOUSE" LOL

ADELE X

Eleda wrote:

jep wrote:Thank you Eleda..... I am going to share this with my husband, as he has really been struggling with this post radiation....

Do not leave the house for at least an hour after
I REPETE
"DO NOT LEAVE THE HOUSE" LOL

ADELE X

Got it!! Thank you LOL

I'm planning to experiment more with Miralax. I've been doing more experiments but progress is slow. I will add Baking Soda to my list of things to consider.

I threw out a bunch of Imodium after the disaster on my trip to Orlando. I will throw out the rest this week.

I can't live without beans.

Mike if I'm stressed it won't work eg , yesterday had to catch a flight to Spain. Had to b at the airport at about 9 am ....
Awake all night worried,
Then got up at 7 am took my bicarbonate ( still waiting at 8!45 !!!!!)
It always happens when I have something important,,,
Body not cooperating with mind
Please let me know if it helps u.....its my lifeline

Adele x

sadysue wrote:Clustering is miserable, painful and time consuming. My radiation onc told me to never wipe my bottom clean. He said always "pat, pat, pat" and get the same results without hurting yourself. He also gave me several peri-anal bottles (I think that is what they are called) to squirt myself clean and then "pat, pat, pat" myself again. Warm water is better than cold water! If you have hemorrhoids, cold water hitting them will be painful. The bottles I use are purchased on Amazon and they have helped me deal with this pain-in-the-ass issue.

https://www.amazon.com/Portable-Handhel ... pons&psc=1

I'm one month short of 9 years since my resection and still regularly have bouts of clustering. I have tried everything under the sun but guess that after nine years, it is what it is!

Sue it's very hard to pat when the shit I'd everywhere lol
I get what ur saying but practally it doesn't work all the time
As for the bottles I'm deffo getting them thanks

Adele X

The "pat pat" happens a lot easier if you have a bidet (the kind that attach to your toilet). I swear by my biffy and you have no bottle waste. It's: gently wipe, water, pat/wipe, rinse and repeat if necessary.

Yesterday was worse then normal. I clustered and I don't know what caused it maybe it was the Jambalaya I made, My wife was craving it. I use the Zatarain's® Jambalaya Rice Mix - 8oz. Either way I hate Clustering, its burns the butt and It's annoying. Your day is pretty much shot. I miss my Ileostomy bag LOL...But It's so hard to turn back to it because who wants a bag/appliance on your body .....But I know I could do everything with it and never worry about the shits. Today however I didn't poop yet. That's because yesterday I took like 4 lomotil at least that's what I think. But I have been farting, and it stinks like hell LOL...usually my farts don't stink.

I don't know Mike but whenever I have beans I fart a lot the next day and cluster. And this has happen several times now . Do you notice any issues after eating beans? I love beans when I have Spanish food and my wife is Spanish....

Anyways, let's hope things get better for all of us.