Scared I might have advanced cancer

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Lee
Posts: 5952
Joined: Sun Apr 16, 2006 4:09 pm

Re: Scared I might have advanced cancer

Postby Lee » Sun Jun 16, 2019 6:31 pm

Maggie Nell wrote:
Lee wrote:
And the comment from Maggie is from a song, a long time ago.

Lee


......in a galaxy far far away.....


Yep :D
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

zephyr
Posts: 244
Joined: Thu Aug 18, 2016 7:31 am

Re: Scared I might have advanced cancer

Postby zephyr » Tue Jun 18, 2019 6:04 pm

Lee wrote:
Maggie Nell wrote:
Can you hear the drums Fernando....

:wink:


And the comment from Maggie is from a song, a long time ago.

Lee


I object! It wasn't SO long ago! :P
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr/Jul-2019 Xeloda/Avastin, SBRT
Sept-2019 Stable! Continue Xeloda/Avastin

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Sat Jul 20, 2019 4:36 am

I have now asked for and gotten a colonoscopy appointment scheduled on 22th of August, that is in a month.

The Doctor was OK with it since I'm very worried. Neither my primary care doctor nor the gastroenterologist suspect CRC, and considers the risk of any disease other than IBS as low, since the bloodwork over the past years always shown normal results, stable weight, and f-hb/fit and also f-calprotectin (inflammation marker) always been normal despite having watery diarrhea shortly before, that even made me faint.

I lie if I say that I'm not nervous, but mostly from what they might "find", and also the prep which I read is pure terror! Is it that bad as everybody says? I'm scared that I will have another fainting, when the prep start flushing out the system, that's what happened last time i felt sick as mentioned above, I'm scared that it will make me vomit but not because of the taste but the reaction in the bowels to the prep. So I guess I have to use a helmet just in case LOL.

I will most likely post something here after the colonoscopy, even if it might be normal, because If other people come on this forum board and ask similar questions to mine and are worried and see my outcome it might help them to atleast calm down a bit and see that you can have these symptoms and not have CRC. I hope this is OK. Best wishes to all the brave and kind people here and thank you for the responses!

DarknessEmbraced
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Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scared I might have advanced cancer

Postby DarknessEmbraced » Sat Jul 20, 2019 11:45 am

I found that keeping the prep really cold helped some and chasing it with another clear liquid. I have a harder time with preps which require me to drink 2 liters. For my colonoscopy in September my GI is having me do a prep(pico salax) which only requires me to drink two mugfuls of prep. I'm in Canada so that prep may not be available for you. I would ask if it's possible do to a prep where you have to drink less liquid. I hope your prep goes well and that your colonoscopy is clear!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Sat Jul 20, 2019 4:37 pm

Thanks! I live in Sweden and we have to drink 4 (!) liters. The prep is called Laxabon. But I will call them on monday and ask them if there is another option, with less liquid.

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Scared I might have advanced cancer

Postby Maggie Nell » Sat Jul 20, 2019 6:34 pm

I've just done a quick Google and found this

PEG solution (Laxabon®) 4L is used for large bowel cleansing in many centers in Sweden and is the standard regimen used in our colonoscopy unit. In this study we compare this standard regimen with senna glycoside (Pursennid® Ex-Lax) 36mg (tablets) taken orally in the night before the colonoscopy and 2L Laxabon® solution orally starting to drink the solution four hours prior to the colonoscopy

https://clinicaltrials.gov/ct2/show/NCT00390598

There are the names of two other preps that you can ask about.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Wed Jul 24, 2019 5:37 am

Great!
Thank you.

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Thu Aug 22, 2019 5:50 am

Hello everyone! I just had my colonoscopy, it took 25 minutes. Everything normal, no inflammation, polyps or diverticula. The prep was a breeze, tasted like salt-water but It
was ok. The worst part for me was not beeing able to eat! The colonoscopy itself was nothing, I was awake and declined painkillers or sedation. In fact the needle in my arm hurt more than the actual colonoscopy but ofcourse I felt it, but it was short lasting. I'm very happy by the outcome of this, that now puts my mind at ease!

I also want to say to those of you who might read this post and are worried about symptoms that it's absolutely possible to have a normal colonoscopy and no illness with symptoms like mine such as "pencil-thin stools", and loose stools on a regular basis (that I've had). But get it checked by a doctor or a specialist!


I send my deepest sympathies and prayers for those of you who are struggling with the disease.
Thanks for taking the time to answer my post and take care!

Best wishes,
Daniel
Last edited by ubiyca on Sat Aug 24, 2019 9:12 am, edited 5 times in total.

Rock_Robster
Posts: 290
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Scared I might have advanced cancer

Postby Rock_Robster » Thu Aug 22, 2019 6:22 am

Daniel, fantastic news - and good on you for coming back to update here! I’m sure many worried newbies will get some comfort from your post.

Please enjoy life in cancer-free land :)

Cheers
Rob
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1apM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN+
08/19 - Missed liver spot
08/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 2
10/19 - Planned liver resection #2 & ileo reversal

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Thu Aug 22, 2019 8:53 am

Thanks dude!

I forgot to mention that it was a big surprise for me after the colonoscopy because I had no bloating or gas at all, in fact I felt less bloated than before, very strange. I don't know if he didn't use so much air, or sucked some air out or what. is this common? I thought everybody had stomach bloating and farted after.
Last edited by ubiyca on Thu Aug 22, 2019 9:11 am, edited 1 time in total.

Rock_Robster
Posts: 290
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Scared I might have advanced cancer

Postby Rock_Robster » Thu Aug 22, 2019 9:07 am

ubiyca wrote:I forgot to mention that it was a big surprise for me after the colonoscopy because I had no bloating or gas at all, in fact it felt less bloated than before, very strange. I don't know if he didn't use so much air, or sucked some air out or what. is this common? I thought everybody had stomach bloating and farted after.

No idea about the difference in techniques, but I’ve never been bloated or farted after a scope :)
Male 37; Melbourne, Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm from AV
Mod diff, EMVI+ LVI+ PNI-
3 LN; 4 liver mets, resectable
pT3pN1apM1a; Stage IVa. MSS, NRAS (G13R)
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0
11/18 - FOLFOX x 6
3/19 - Liver resection
4-5/19 - 25 x pelvic radiation; complete met. response, TRG 3
07/19 - ULAR (robot), temp ileo, 1/27 LN+
08/19 - Missed liver spot
08/19 - FOLFOX x 1, FOLFOXIRI x 1, FOLFIRI x 2
10/19 - Planned liver resection #2 & ileo reversal

ubiyca
Posts: 14
Joined: Fri Jun 14, 2019 4:27 am

Re: Scared I might have advanced cancer

Postby ubiyca » Thu Aug 22, 2019 9:10 am

Ok! I understand. Thanks!

I saw my journal now online and it says they used co2/carbon dioxide instead of air. That might explain it.
In this case CO2 is a good thing, despite the climate debate (lol).

Take care man!


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