Another 6 months

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Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Another 6 months

Postby Gravelyguy » Tue Jun 11, 2019 10:46 pm

Back from Mayo and got the all clear and see you in 6 more months talk!

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Lee
Posts: 5948
Joined: Sun Apr 16, 2006 4:09 pm

Re: Another 6 months

Postby Lee » Tue Jun 11, 2019 11:29 pm

Gravelyguy wrote:Back from Mayo . . .

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave


That sounds TOTALLY AWESOME, I hope you took them up on that offer!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

lovelife789
Posts: 141
Joined: Thu Aug 24, 2017 5:28 am

Re: Another 6 months

Postby lovelife789 » Wed Jun 12, 2019 12:44 am

Congrats!!! So happy for you!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Mod. differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - 6/30 - NED
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
8/30 - VATs
8/30 - 4/30 - NED
5/28 - uptake seen in 1 x PALN, 1x common iliac, cloudy in Liver
FOLFIRI + Avastin

kiwiinoz
Posts: 1126
Joined: Thu Jan 03, 2013 11:44 pm

Re: Another 6 months

Postby kiwiinoz » Wed Jun 12, 2019 1:08 am

Awesome, ain't it good to be told that you are NED for another 6 months as a stage IV patient? I was told I was boring by my oncologist which made me extremely happy. and I am waiting for you to get to the "see you in a year stage" mate
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

Beckster
Posts: 386
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Another 6 months

Postby Beckster » Wed Jun 12, 2019 5:16 am

I think I am in the same research study....viewtopic.php?f=1&t=61686&p=487663#p487663
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction to oxaliplatin on first infusion
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6
Clear Colonoscopy 10/17 :D

Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Re: Another 6 months

Postby Gravelyguy » Wed Jun 12, 2019 8:11 am

Lee wrote:
Gravelyguy wrote:Back from Mayo . . .

While I was there they asked if I would be part of a research project that is looking at a potential blood test that can detect recurrence or disease progression.

It is in the “discovery” stage so it could be years but I am glad to help out however I can.

Dave


That sounds TOTALLY AWESOME, I hope you took them up on that offer!!

Lee


Lee, I certainly did sign the consent forms. All it is is an extra blood draw every time I am back for scans so very easy. Anything I can do to help people that get this in the future!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Another 6 months

Postby mpbser » Wed Jun 12, 2019 8:15 am

Awesome!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

Gravelyguy
Posts: 199
Joined: Thu Jul 05, 2018 6:03 pm

Re: Another 6 months

Postby Gravelyguy » Wed Jun 12, 2019 8:18 am

mpbser wrote:Awesome!


Thanks mpster,

It feels great!

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Punky44
Posts: 349
Joined: Mon Oct 01, 2018 4:29 pm

Re: Another 6 months

Postby Punky44 » Wed Jun 12, 2019 9:57 am

Yay! Awesome news!
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17 at diagnosis
MRI/CT/PET puts staging at T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
CEA 4/23: 2.1; 7/24: 1.9
6/28/19 Reversal and port out

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Another 6 months

Postby LPL » Wed Jun 12, 2019 2:29 pm

Wonderful news! :D
And to be part of that research sounds great !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

AmyG
Posts: 243
Joined: Tue Dec 25, 2018 8:08 pm

Re: Another 6 months

Postby AmyG » Wed Jun 12, 2019 2:49 pm

I'm so excited for you!!! I can't wait to get to that stage!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!!

Butt
Posts: 25
Joined: Mon Mar 11, 2019 10:48 pm

Re: Another 6 months

Postby Butt » Wed Jun 12, 2019 4:39 pm

I would like it to but I don t know what should I do?

User avatar
juliej
Posts: 3035
Joined: Thu Aug 05, 2010 12:59 pm

Re: Another 6 months

Postby juliej » Wed Jun 12, 2019 5:04 pm

AWESOME news, Dave! Congratulations!!! :D :D :D

I'm on 6-month CT scans and 3-month bloodwork, but I was a Stage IVB, which is probably why I have the extra labs. It never ceases to put a smile on my face thinking how far I've/we've come!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/13/2019, CEA<1

DarknessEmbraced
Posts: 3327
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Another 6 months

Postby DarknessEmbraced » Sat Jun 15, 2019 12:20 pm

Congratulations and that's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18


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