Llooking to here from those that waited a loong time for surgery

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Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Llooking to here from those that waited a loong time for surgery

Postby Trying » Tue Jun 11, 2019 3:22 pm

Its been a year on chemo and im still not quite a candidate for surgery. Hopefully soon. Wanting to know how long those of you who waited over a year.

Nicole
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

Lee
Posts: 5938
Joined: Sun Apr 16, 2006 4:09 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby Lee » Tue Jun 11, 2019 11:23 pm

Have you looked at getting a 2nd opinion at a major cancer hospital or cancer research center.

good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby Trying » Wed Jun 12, 2019 10:49 am

Thanks lee! Ive checked it out. Guess I'll wait 3 more months and hopefully be ready then!!!!
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

Detox
Posts: 47
Joined: Fri Apr 28, 2017 5:27 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby Detox » Wed Jun 12, 2019 11:40 am

I know some surgeons refuse to do anything while others are more experienced and are thus obviously more willing to be aggressive and take more risks. So I think it certainly helps to do research and try to find the best doctor suited specifically to your case.

Also, some people will likely argue this but I've also read about patients being able to keep their disease at bay over long periods of time by natural methods, such as diet, exercise, taking care of oneself, etc.

User avatar
juliej
Posts: 2986
Joined: Thu Aug 05, 2010 12:59 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby juliej » Wed Jun 12, 2019 5:12 pm

Me, me, me! I had to wait about 15 months for my first surgery, so it does take awhile for some of us. I needed my (many) tumors to shrink to a more resectable size.

I would second the suggestion about going to an NCI-Designated cancer center because they are 1) more experienced in cutting edge treatments, and 2) more aggressive in their treatment options. Be proactive, be strong, and never give up!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 3/18/2019, CEA<1

Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby Trying » Thu Jun 13, 2019 1:37 pm

Thanks everyone!
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

AmyG
Posts: 151
Joined: Tue Dec 25, 2018 8:08 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby AmyG » Fri Jun 14, 2019 12:10 pm

You've had your primary tumor removed, right?
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Re: Llooking to here from those that waited a loong time for surgery

Postby Trying » Sat Jun 15, 2019 12:16 pm

No. They take care of liver ones first here then the primary. I was confused at first but found out its pretty standard.
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.


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