Mop up chemo - Port vs non-port for Oxi?

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Rock_Robster
Posts: 1027
Joined: Thu Oct 25, 2018 5:27 am
Location: Brisbane, Australia

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Rock_Robster » Sun Jun 16, 2019 10:17 pm

DocSavage wrote:In addition you get a cool bracelet to wear and card that shows you are in the club.

LOL I forgot about the wrist band! (Not calling it a bracelet due to my fragile masculinity). I should dig that up and wear it. I do carry the card in my wallet but mainly due to paranoia about airport security - never had an issue there though.
41M Australia
2018 Dx RC
G2 EMVI LVI, 4 liver mets
pT3N1aM1a Stage IVa MSS NRAS G13R
CEA 14>2>32>16>19>30>140>70
11/18 FOLFOX
3/19 Liver resection
5/19 Pelvic IMRT
7/19 ULAR
8/19 Liver met
8/19 FOLFOX, FOLFOXIRI, FOLFIRI
12/19 Liver resection
NED 2 years
11/21 Liver met, PALN, lung nodules
3/22 PVE, lymphadenectomy, liver SBRT
10/22 PALN SBRT
11/22 Liver mets, peri nodule. Xeloda+Bev
4/23 XELIRI+Bev
9/23 ATRIUM trial
12/23 Modified FOLFIRI+Bev
3/24 VAXINIA (CF33 + hNIS) trial

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby CRguy » Sun Jun 16, 2019 10:54 pm

sinewaves wrote:One of the questions he asked last time was about a port - I had just finished my APR and wasn't looking for any more surgeries, so I said I didn't need one.


JMO

I needed FOLFOX for a recurrence and I chose to have a port for that chemo ...AND ...
just in case anything else showed up later ... I kept mine for about 3 years.

I had mine installed and removed by a vascular surgeon,
I had no issues with it, or issues with any infusions through it.
I had mine flushed about every 4-5 weeks at the treatments center when I was not getting chemo.
I had no issues with removal when I was done.

My whole story is buried here on the forum for many years :shock: BUTT .... Re: Port put in
... is a VERY brief synopsis to get you started !!!

and here is a little more light reading !
Re: Medi-PORT placement feedback ???

IME = YES I would absolutely get a port again if I needed infusion chemo.

best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Mop up chemo - Port vs non-port for Oxi?

Postby claudine » Mon Jun 17, 2019 11:40 am

A few words about my husband's experience with a port. The first one, which was implanted on his right side, always "bugged" him. He could feel it. It wasn't painful, but annoying, like a slight ache that doesn't ever go away. When he finished his 6 adjuvant cycles of XELOX last Fall, he had it removed (we were optimistic!). Unfortunately his cancer spread, so he got a new port implanted... This time on his left side. Not sure what was different with the surgery, but he doesn't feel this one at all. Good thing as he's likely going to keep it for a while...
That said, he would still take an "annoying port" over direct vein infusion, because of his strong reaction to that procedure.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Punky44 » Tue Jun 18, 2019 12:27 am

Not sure if you’ve already made your decision yet but my mom was very leery of getting the port and the surgery itself and it ended up being no big deal and she’s now very happy she had it for her chemo as she heard horror stories of how hard it is on the veins. But that being said, she is also super happy to get it removed soon.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

sinewaves
Posts: 16
Joined: Tue Dec 18, 2018 9:44 am

Re: Mop up chemo - Port vs non-port for Oxi?

Postby sinewaves » Wed Jun 26, 2019 8:52 am

Thanks everyone for the feedback and sharing your stories.

I'm going to try it tomorrow without the port and see how it is - and get a port put in for the other rounds if needed.
DX @ 40, married, no children
11/2018 - Dx "MALIGNANT NEOPLASM of DISTAL RECTUM" (Stage 3a, T3N1M0)
1/7/ - 2/14/2019 - Radiation + Xeloda
4/26/2019 - APR surgery, removed rectum. Permanent colostomy.
5/10/2019 - Started Xelox through IV (didn't get port put in)
8/30/2019 - Ended Xelox after 4 rounds (out of scheduled 6)
1/2020 - Lung nodule found in CT, ruled met from previous malignancy, re DX stage 4
2/2020 - Nodule removed, recommended another 6 rounds of Xelox

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Mop up chemo - Port vs non-port for Oxi?

Postby claudine » Wed Jun 26, 2019 10:13 am

Good call Sinewaves! I hope you don't need the port, but if you do, it really is no big deal.

Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

radnyc
Posts: 446
Joined: Tue Apr 06, 2010 6:32 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby radnyc » Wed Jun 26, 2019 10:24 am

Do the port, otherwise you'll be in a world of unnecessary pain!
DX Jan 2010, at age 47
Feb - colon resection - 2/17 nodes positive
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April 2011
HAI Pump removed Dec 2015


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