Mop up chemo - Port vs non-port for Oxi?

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Rock_Robster
Posts: 552
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Rock_Robster » Sun Jun 16, 2019 10:17 pm

DocSavage wrote:In addition you get a cool bracelet to wear and card that shows you are in the club.

LOL I forgot about the wrist band! (Not calling it a bracelet due to my fragile masculinity). I should dig that up and wear it. I do carry the card in my wallet but mainly due to paranoia about airport security - never had an issue there though.
39M Australia
10/2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1, Dec-20: 2.3, Mar-21=2.5
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (CT/PET/MRI/scope) - latest scans Mar ‘21

User avatar
CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby CRguy » Sun Jun 16, 2019 10:54 pm

sinewaves wrote:One of the questions he asked last time was about a port - I had just finished my APR and wasn't looking for any more surgeries, so I said I didn't need one.


JMO

I needed FOLFOX for a recurrence and I chose to have a port for that chemo ...AND ...
just in case anything else showed up later ... I kept mine for about 3 years.

I had mine installed and removed by a vascular surgeon,
I had no issues with it, or issues with any infusions through it.
I had mine flushed about every 4-5 weeks at the treatments center when I was not getting chemo.
I had no issues with removal when I was done.

My whole story is buried here on the forum for many years :shock: BUTT .... Re: Port put in
... is a VERY brief synopsis to get you started !!!

and here is a little more light reading !
Re: Medi-PORT placement feedback ???

IME = YES I would absolutely get a port again if I needed infusion chemo.

best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Claudine
Posts: 490
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Claudine » Mon Jun 17, 2019 11:40 am

A few words about my husband's experience with a port. The first one, which was implanted on his right side, always "bugged" him. He could feel it. It wasn't painful, but annoying, like a slight ache that doesn't ever go away. When he finished his 6 adjuvant cycles of XELOX last Fall, he had it removed (we were optimistic!). Unfortunately his cancer spread, so he got a new port implanted... This time on his left side. Not sure what was different with the surgery, but he doesn't feel this one at all. Good thing as he's likely going to keep it for a while...
That said, he would still take an "annoying port" over direct vein infusion, because of his strong reaction to that procedure.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 75.5
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 03/21: stable

Punky44
Posts: 474
Joined: Mon Oct 01, 2018 4:29 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Punky44 » Tue Jun 18, 2019 12:27 am

Not sure if you’ve already made your decision yet but my mom was very leery of getting the port and the surgery itself and it ended up being no big deal and she’s now very happy she had it for her chemo as she heard horror stories of how hard it is on the veins. But that being said, she is also super happy to get it removed soon.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4
Latest update: 3/22/21: CEA 3.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

sinewaves
Posts: 16
Joined: Tue Dec 18, 2018 9:44 am

Re: Mop up chemo - Port vs non-port for Oxi?

Postby sinewaves » Wed Jun 26, 2019 8:52 am

Thanks everyone for the feedback and sharing your stories.

I'm going to try it tomorrow without the port and see how it is - and get a port put in for the other rounds if needed.
DX @ 40, married, no children
11/2018 - Dx "MALIGNANT NEOPLASM of DISTAL RECTUM" (Stage 3a, T3N1M0)
1/7/ - 2/14/2019 - Radiation + Xeloda
4/26/2019 - APR surgery, removed rectum. Permanent colostomy.
5/10/2019 - Started Xelox through IV (didn't get port put in)
8/30/2019 - Ended Xelox after 4 rounds (out of scheduled 6)
1/2020 - Lung nodule found in CT, ruled met from previous malignancy, re DX stage 4
2/2020 - Nodule removed, recommended another 6 rounds of Xelox

Claudine
Posts: 490
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Mop up chemo - Port vs non-port for Oxi?

Postby Claudine » Wed Jun 26, 2019 10:13 am

Good call Sinewaves! I hope you don't need the port, but if you do, it really is no big deal.

Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 75.5
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 03/21: stable

radnyc
Posts: 439
Joined: Tue Apr 06, 2010 6:32 pm

Re: Mop up chemo - Port vs non-port for Oxi?

Postby radnyc » Wed Jun 26, 2019 10:24 am

Do the port, otherwise you'll be in a world of unnecessary pain!
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15


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