Postby Jannine » Thu Jun 13, 2019 8:39 pm
Not immunotherapy-related, but I've been prescribed 14 days of Florastor probiotic (available over the counter in the US) to help me recover from c diff, in addition to vancomycin. I was surprised that it isn't refrigerated, but it certainly doesn't seem to be hurting any. My sense of taste had been knocked for a loop and my tongue had turned dark green, and coffee tasted truly horrific. Within probably 5 days of starting the florastor, my sense of taste was back to normal and my tongue was looking much more normal too.
I can't say for sure if the probiotic is making a difference, but I can say that the last time I had the green tongue problem it seemed to take much longer for the weird ick to go away.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear