Positive Cologuard testing?

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Beckster
Posts: 416
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Positive Cologuard testing?

Postby Beckster » Sun Jun 09, 2019 12:52 pm

I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Positive Cologuard testing?

Postby LPL » Sun Jun 09, 2019 1:47 pm

Beckster wrote:I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....

Beckster, my husband (who is the one with CRC stage IV) has a sister who recently experienced the exact same thing. No symptoms but (due to age and brother with CRC) she took a test like Cologuard (don’t know the the name of the test she took - but it was positive for blood in faeces). She had the colonoscopy and everything came back clean (no hemorrhoid seen either) apart from 3 polyps that was removed - the doctor told her he was sure (due to how they looked) that it would be fine. Hubby & I have not heard anything about the pathology report yet but if it had been bad news we would have heard. This was approximately 2-3 weeks ago.
I hope your friend’s test will be OK!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

Beckster
Posts: 416
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Positive Cologuard testing?

Postby Beckster » Sun Jun 09, 2019 2:15 pm

LPL wrote:
Beckster wrote:I have a close friend that tested positive for the cologuard test. She does not like doctors and was to scared to go for a colonoscopy. Her GP finally got her to take the Cologuard test, which came back positive. Now she is in a panic and is scheduled for a colonoscopy on July 2nd. The doctor said that just because it came back positive, it does not mean that she has cancer. Cologuard is suppose to have a 92% accurancy rate? Do any of you know of people that took the Cologuard test, which came back positive and the outcome? You would think that after what I went through, she would have run for a colonoscopy 4 years ago!

Any information would be appreciated....

Beckster, my husband (who is the one with CRC stage IV) has a sister who recently experienced the exact same thing. No symptoms but (due to age and brother with CRC) she took a test like Cologuard (don’t know the the name of the test she took - but it was positive for blood in faeces). She had the colonoscopy and everything came back clean (no hemorrhoid seen either) apart from 3 polyps that was removed - the doctor told her he was sure (due to how they looked) that it would be fine. Hubby & I have not heard anything about the pathology report yet but if it had been bad news we would have heard. This was approximately 2-3 weeks ago.
I hope your friend’s test will be OK!


Thanks for the info LPL! Cologuard tests DNA, so I wonder if it is the type of test.
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

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LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Positive Cologuard testing?

Postby LPL » Mon Jun 10, 2019 4:09 am

Beckster, I will try to find out the name of the test she did.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Positive Cologuard testing?

Postby susie0915 » Mon Jun 10, 2019 7:48 am

This is how my cancer was found. I had seen blood a couple times on my stool but not often. I was sure it was my hemorrhoids. My doctor gave me the test and it was positive. The sample I made sure the sample I sent in did not have any visible blood. I had a clean colonoscopy 5 years before. I was immediately referred to a GI and scheduled a colonoscopy. Came back stage 2A rectal cancer. I was told it had probably been there 5 years and my previous colonoscopy either missed it because it was too small or just began forming right after. That was 4 years ago and I have been NED for over 3 1/2 years.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Positive Cologuard testing?

Postby Green Tea » Mon Jun 10, 2019 1:57 pm


texazgal
Posts: 151
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: Positive Cologuard testing?

Postby texazgal » Fri Jun 14, 2019 11:02 am

Green Tea:

Thanks for posting that link. I forwarded it to my youngest brother who tested positive for cancer recently and he just got back to me with a "that was a much better explaination than the Dr gave him. He is getting a scope the 27th June. Hoping he isn't going to join this club.:(
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
Dad passed '93 CC
DD 42 yo/w/2 polyps removed
June 2019 stage 3 esophageal cancer
Aug. 2019 28 radiations, 5 chemo
Nov. PET shows original tumor and mets resolved, 2 new mets in liver and bone.


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