No more personal updates from me

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mpbser
Posts: 936
Joined: Wed Apr 19, 2017 11:52 am

No more personal updates from me

Postby mpbser » Sat Jun 08, 2019 6:36 am

Hi everyone,

If anyone is interested in following our ongoing saga, you will have to "friend" me on facebook because I am no longer sharing personal information on this forum or on the Colontown facebook groups. The gang/cult/mob has won and effectively silenced me through their censorship (long story, but I am willing to share with a select few).

PM me for my facebook name.

Best wishes, all!
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

AmyG
Posts: 304
Joined: Tue Dec 25, 2018 8:08 pm

Re: No more personal updates from me

Postby AmyG » Sat Jun 08, 2019 8:02 pm

Well shit. I don't use Facebook at all but I wish you and your husband all the best!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!

Wewillfight
Posts: 18
Joined: Sun Mar 03, 2019 5:27 am

Re: No more personal updates from me

Postby Wewillfight » Sat Jun 08, 2019 8:17 pm

Emmm no.

Stand firm.


The way things happen in the US is mind boggling, yet the most innovative and creative research usually derives from said territory


I wish you well- your posts have proved infinitesimally beneficial to me

God be with you.
40 y/o
Diag Nov 2016 stage IIIc, surgery, colostomy, 2 lymph involved
6 months FOLFOX
NED
Nov 2018 recurrence , surgery , some spread to pertineum
Jan-June 2019 Folfiri+Cetux
Clear scans
August 2019: small bowel inflammation, partial blockage symptoms

User avatar
mobrouser
Posts: 155
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: No more personal updates from me

Postby mobrouser » Sat Jun 08, 2019 8:50 pm

mpbser wrote:Hi everyone,

If anyone is interested in following our ongoing saga, you will have to "friend" me on facebook because I am no longer sharing personal information on this forum or on the Colontown facebook groups. The gang/cult/mob has won and effectively silenced me through their censorship (long story, but I am willing to share with a select few).

PM me for my facebook name.

Best wishes, all!


Thank you. I will now start posting here again.
CC Dx Oct 2017 @ age 58
Laparoscopic right hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear
Colonoscopy Dec 7 2018 - Clear - Next in 3 years?

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: No more personal updates from me

Postby Lee » Sat Jun 08, 2019 9:43 pm

mobrouser wrote:
mpbser wrote:Hi everyone,

If anyone is interested in following our ongoing saga, you will have to "friend" me on facebook because I am no longer sharing personal information on this forum or on the Colontown facebook groups. The gang/cult/mob has won and effectively silenced me through their censorship (long story, but I am willing to share with a select few).

PM me for my facebook name.

Best wishes, all!


Thank you. I will now start posting here again.


I hope so, I've missed you, Peanut's and BS's posts. I've been posting a lot less. It's a true SHAME what happened to that one other thread. Butt I've seen a pattern with this mpbser. I suspect the same person has been husband and then wife. The first thread that was started by mpbser a few yrs back only to be shut down a few days later. I was convinced at that time that mpbser was a young person trolling. Mpbser comes to this forum asking for help, than at some point, the name calling begins.

If mpbser is legit, I wish s/he all the best, butt I question the legit.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: No more personal updates from me

Postby Pyro » Sat Jun 08, 2019 11:32 pm

I was wondering.......
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

User avatar
Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: No more personal updates from me

Postby Maggie Nell » Sat Jun 08, 2019 11:34 pm

Golly, who knew that posting a picture of a fruit bat in the prayer thread would have
this effect......
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: No more personal updates from me

Postby Pyro » Sat Jun 08, 2019 11:42 pm

Maggie Nell wrote:Golly, who knew that posting a picture of a fruit bat in the prayer thread would have
this effect......


Where did that go? What did I miss while under chemo?
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: No more personal updates from me

Postby Lee » Sun Jun 09, 2019 12:01 am

Pyro wrote:
Maggie Nell wrote:Golly, who knew that posting a picture of a fruit bat in the prayer thread would have
this effect......


Where did that go? What did I miss while under chemo?


Does this have anything to do with Terry's prayer thread?? why did it go missing??

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: No more personal updates from me

Postby Maggie Nell » Sun Jun 09, 2019 12:53 am

I dunno, I'm not a moderator.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: No more personal updates from me

Postby LPL » Sun Jun 09, 2019 1:31 am

mpbser, I’m sorry to hear it has come to this, thank you for letting us know. I wish you and your husband all the best going forward. /LPL
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

stu
Posts: 1223
Joined: Sat Aug 17, 2013 5:46 pm

Re: No more personal updates from me

Postby stu » Sun Jun 09, 2019 2:43 am

Sincerely wish anyway wading through a stage 4 diagnosis all the very best but had my concerns and held back .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Pyro
Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: No more personal updates from me

Postby Pyro » Sun Jun 09, 2019 5:32 am

Maggie Nell wrote:I dunno, I'm not a moderator.


I think you know more than your letting on, but that OK too. :)
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

brokenwings
Posts: 101
Joined: Mon Jan 07, 2019 1:50 am

Re: No more personal updates from me

Postby brokenwings » Sun Jun 09, 2019 6:25 am

What's going on? Can somebody fill me in please?
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy. Primary tumour still there.
Folfirinox: 6 cycles
CT Scan/PET Scan: ok for surgery
Surgery (CRS + HIPEC) 04/29: not optimally resectable, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin).
07/04: exploratory laparoscopy - necrosis of peri mets
4 more cycles
09/11: CT scan
09/12: last exploratory laparoscopy and final decision

mpbser
Posts: 936
Joined: Wed Apr 19, 2017 11:52 am

Re: No more personal updates from me

Postby mpbser » Sun Jun 09, 2019 6:51 am

I have no idea what half of these comments mean.

Mobrouser, I don't believe you and I have ever conversed. I don't criticize people or say anything that should stop them from "speaking." If you could point to any examples, I would love to know about them.

My husband has posted a few times here under this account, but the vast majority of the time, it is me.

Fruit bat in prayer thread? I am not familiar with the thread. Sounds interesting.

Lee, Name calling? What on earth are you talking about? I also don't recall any thread being shut down. If you could pull it up to refresh my memory, that would be great.

Wewillfight, amy, stu, and LPL, I will still be participating but just not sharing personal details nearly as much.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED


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