13 th cancer birthday today

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helen098
Posts: 2005
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

13 th cancer birthday today

Postby helen098 » Thu Jun 06, 2019 9:12 pm

13 years what more can I say
It been a long strange journey
Overall more ups than downs

I know many people outside of the club
Think it’s strange to remember/celebrate
This is not a problem as I try not to care about what others think

Even though I am not here every day
All of you are always in my heart


Thanks for all of the support and love

Hope to be around celebrating
For a long time

For those of you still fighting remember you are not alone

Swinging chickens


Helen
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

User avatar
CRguy
Posts: 9899
Joined: Sun Feb 10, 2008 6:00 pm

Re: 13 th cancer birthday today

Postby CRguy » Thu Jun 06, 2019 11:58 pm

helen098 wrote:Swinging chickens

Helen

WORD !!! sista'

Mega best wishes
and happy returns
to this day

only those
who've been there
KNOW what you say


Love Peace and Harmony
ALWAYS on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Gravelyguy
Posts: 164
Joined: Thu Jul 05, 2018 6:03 pm

Re: 13 th cancer birthday today

Postby Gravelyguy » Fri Jun 07, 2019 6:09 am

Congrats Helen and thanks for sharing. It is stories like yours that gives me hope for the future!


Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Green Tea
Posts: 187
Joined: Mon Oct 24, 2016 10:48 am

Re: 13 th cancer birthday today

Postby Green Tea » Fri Jun 07, 2019 7:18 am

Thanks for checking in and sharing the good news. It's not very often that we hear from people who were diagnosed around the time when Colon Club started up.

And it has been a while now since I've seen a "swinging chickens" post here. When I first found this forum there were swinging chickens, and feathers flying around quite frequently, and I couldn't understand what was going on. Eventually I figured it out, though, but it took a while...

By the way, did you ever meet in person any of the original Colon Club members from NewYork like SkiFletch, Molly, etc?

Take care.

DarknessEmbraced
Posts: 3297
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 13 th cancer birthday today

Postby DarknessEmbraced » Sat Jun 08, 2019 12:21 pm

Congratulations! That's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

helen098
Posts: 2005
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

Re: 13 th cancer birthday today

Postby helen098 » Sat Jun 08, 2019 7:28 pm

I found the club about a year after my diagnose
I was looking for info about anal fistula and colon cancer
I was feeling better but the neuropathy was not getting better and I was looking
For a connection between the anal fistula and colon cancer

We was supposed as to how much better it felt to be able to talk to others who
Knew what it was like

Has anyone been able to figure out why the colon cancer people are such
Great people?
It can’t just be the cancer as I have met other cancer people who were and are jerks
They were jerks before the cancer so I am not being mean

I guess it’s a mystery
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

Koreysue
Posts: 101
Joined: Mon Apr 30, 2018 2:36 pm

Re: 13 th cancer birthday today

Postby Koreysue » Sun Jun 09, 2019 1:38 am

This is awesome!
Thanks so much for popping on here to post!
Congrats to you :D
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 clear (cea rise a mystery for now, doc said maybe all the smoke in my town from forest fires)
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT clear 6/18/2019 / CEA : 3.4

User avatar
LPL
Posts: 635
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 13 th cancer birthday today

Postby LPL » Sun Jun 09, 2019 1:52 am

Big Congratulations Helen
Wonderful to hear :D
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

Ron50
Posts: 689
Joined: Fri Feb 10, 2006 7:04 pm

Re: 13 th cancer birthday today

Postby Ron50 » Sun Jun 09, 2019 4:24 am

Congratulations Helen. hang in there. Survival is not easy ,it takes care and vigilance, Hugs Ron. 21 years and 5 months past st3c into 6 nodes.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

fumaros
Posts: 252
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 13 th cancer birthday today

Postby fumaros » Sun Jun 09, 2019 7:31 am

Congratulations. Live it up.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

User avatar
waw4
Posts: 838
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: 13 th cancer birthday today

Postby waw4 » Tue Jun 11, 2019 6:29 am

Very cool Helen—congrats!
-Bill
Bill, 68 yr. old male, m. w/2 grown daughters
Colonoscopy 6/29/10; Dx Stage I or II
Colon Resection 7/15/10; Dx Stage III
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
Grateful for 2nd Chance NED time!


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