LONG OVERDUE UPDATE

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CLD
Posts: 206
Joined: Fri Mar 27, 2015 7:16 pm

LONG OVERDUE UPDATE

Postby CLD » Wed Jun 05, 2019 7:53 am

Its been awhile since I have posted. Life with 6 kids keeps us busy. The last few times I posted was to share that my DH cancer spread to his lymph nodes. We visited The Hillman Center, did chemo( FOLFIRI + Avastin) then doctors decided to do radiation instead of surgery. Radiation lasted a month and ended before Christmas. DH was scanned shortly after Christmas and a VATS procedure confirmed that there were innumerable mets in his lungs. So, after another surgery to replace a broken port, my DH is now on chemo for the rest of his life, however long that may be. He wa recently hospitalized with what ended up being a simple cold, but he coughed so hard he passed out. He is still trying to work, and when he is not working he mostly sleeps. Its hard to hear him when he talks. What else can I say. I hate cancer.
Wife to DH/ Father of 6 (age 42 at dx) diagnosed Jan 2015 stage IIIC
Tumor deposit in mesentery 13/24 lymph nodes +
CEA at dx: 5
MSS
Low Grade/Mod. Diff.
FOLFOX 6 months
N.E.D until June 2018
PET Scan 6/18
Biopsy confirms cancer in 3 Paraaortic lymph nodes
Folfiri + Avastin (6tx) and Xeloda during radiation
Cancer all over both lungs dx Jan 2019
FOLFIRI +AVASTIN presently

lovelife789
Posts: 160
Joined: Thu Aug 24, 2017 5:28 am

Re: LONG OVERDUE UPDATE

Postby lovelife789 » Wed Jun 05, 2019 10:19 am

I'm sorry to hear that :cry: I keep you in my prayers.
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

Claudine
Posts: 490
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: LONG OVERDUE UPDATE

Postby Claudine » Wed Jun 05, 2019 10:27 am

So, after another surgery to replace a broken port, my DH is now on chemo for the rest of his life, however long that may be.


I've posted this on another thread, but with the research that's going on right now, there's always hope that a new cure will be found! Wishing you strength for the journey ahead XXXXX

Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 75.5
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 03/21: stable

Butt
Posts: 41
Joined: Mon Mar 11, 2019 10:48 pm

Re: LONG OVERDUE UPDATE

Postby Butt » Fri Jun 07, 2019 11:43 pm

When someone mostly sleeps when they are not trying to work they deserve to retire. It will be easier for him and he deserves it after all those struggles.

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: LONG OVERDUE UPDATE

Postby DarknessEmbraced » Sat Jun 08, 2019 10:24 am

I'm so very sorry your husband is having such a hard time!*hugs* Sending healing thoughts!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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