UPDATE ON PETE

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hart2hart
Posts: 789
Joined: Wed Nov 23, 2011 10:46 pm

UPDATE ON PETE

Postby hart2hart » Tue Jun 04, 2019 11:06 pm

Pete has been in remission since January 1,2015.
A HUGE shout/out to all at MSK. From the sweet
doorman, check-in, pump nurses, Dr D’Angelica,
Dr Kemeny and her Fabulous nurses, Trish and Sandy.
We Love and Thank you from the bottom of our hearts.

Pete is thriving, were living life to the fullest.
Our kitchen renovation we had to put on hold we
are proceeding with this summer. Pete’s architecture business is doing well and his latest project in an
100,00 SQ Ft building in Mass and it’s a Pot Farm!
Really true! He will be starting acupuncture for
his neuropathy in his feet soon! So life is great—-we’re
grateful for this forum and everyone st MSK!

Shout-out to Kathy B, JulieJ, CRguy, Pete B,
My Mom:Lisa, Michael, Jane and anyone I missed!

For newbies please fight the fight, get second and third opinions, ask a lot of questions and remain positive.
It’s a marathon as we can attest too! Please PM
If you have any questions!? Love you all!

Julie and Pete
Stamford,Ct
Last edited by hart2hart on Wed Jun 05, 2019 8:11 am, edited 1 time in total.
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - To Current

weisssoccermom
Posts: 5959
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: UPDATE ON PETE

Postby weisssoccermom » Tue Jun 04, 2019 11:59 pm

Good to hear from you Julie.....it's been a LONG time.
It's hard to believe it was 8 years ago when we first talked
about resections and such.
Glad to hear that you are all doing well!

Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

User avatar
Green Tea
Posts: 202
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: UPDATE ON PETE

Postby Green Tea » Wed Jun 05, 2019 1:07 am

hart2hart wrote:... For newbies please fight the fight, get second and third opinions, ask a lot of questions and remain positive...

Thank you for your encouraging update. Apart from your acknowledging the amazing work done at MSKCC, I think that one of the most important messages conveyed by your husband's journey is your persistence in acting early in getting second and third opinions to insure the best possible outcome. For example:

    In 2014, hart2hart wrote:My husband Had Very, Very Low Rectal Cancer (11/11) - Stage 3

    He had almost complete response to chemo/rad. Here is our findings.

    Yale New Hospital and Mass General wanted to do a Colostomy. We sought-out 2 other opinions
    at regional Connecticut Hospitals and two separate surgeons said probably 90/10 we can save your husband's
    spinchters! Turns out we went with the slightly younger of the two surgeons and low and behold he did in-fact SAVE
    Pete's sphincters. That was 4/12. The key is the skill of the surgeon.......Doc McClane spent 3.5 hours
    handsewing this anastomies (sp?) vs stapling which he wasn't able to do and guess what it was successful. He is my hero forever.
    How many surgeons would take the time to hand-sewn for 3.5 hours? Someone who cares alot about the PT and is not just a number in the operating room.

    So --this tells me that some of these large teaching hospitals can't think out of the box or let me put it
    this way..."It is not our Protocol to do this!" And yes in fact-, both Yale and Mass General said this to our faces.

    Pete is one year post reversal and yes his new normal is not my normal --- But he is doing great and we will
    forever be grateful for Doc McClanes skill as a surgeon and all-around nice nice guy! You rock Dr. McClane!

    BTW, we have sent other PTS to him and he has also saved their sphincters!

    Go get more opinions is our recommendation to anyone who feels not quite right about what their surgeon is saying.
    We are sooooo glad we did this!

    Cheers!

    Julie And Pete
    Stamford, CT

    Ref: https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=45894&p=337940#p337940

Beckster
Posts: 399
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: UPDATE ON PETE

Postby Beckster » Wed Jun 05, 2019 5:47 am

hart2hart wrote:Pete has been in remission since January 1,2015.
A HUGE shout/out to all at MSK. From the sweet
doorman, check-in, pump nurses, Dr D’Angelica,
Dr Kemeny and her Fabulous nurses, Trish and Sandy.
We Love and Thank you from the bottom of our hearts

Pete is thriving, were living life to the fullest.
Our kitchen renovation we had to put on hold we
are proceeding with this summer. Pete’s architecture business is doing well and his latest project in an
100,00 SQ Ft building in Mass and it’s a Pot Farm!
Really true! He will be starting acupuncture for
his neuropathy in his feet soon! So life is great—-were
grateful for this forum and everyone st MSK!

Shout-out to Kathy B, JulieJ, CRguy, Pete B,
My Mom:Lisa, Michael, Jane and anyone I missed!

For newbies please fight the fight, get second and third opinions, ask a lot of questions and remain positive.
It’s a marathon as we can attest too! Please PM
If you have any questions!? Love you all!

Julie and Pete
Stamford,Ct


Julie...I read in one of the following posts by Green Tea that your surgeon was Dr. McClane.....Steven McClane? I am from NJ and if so, he is now the head of the Colorectal Department and Co Chair of MD Anderson Gastrointestional Center at Cooper University. He performed my right hemicolectomy in November of 2016. I agree...he is a ROCK STAR! I was only in the hospital for 48 hours and went home with no pain pills or complications.

Beckster
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18 6/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8
Clear Colonoscopy 10/17, 11/19 :D

hart2hart
Posts: 789
Joined: Wed Nov 23, 2011 10:46 pm

Re: UPDATE ON PETE

Postby hart2hart » Wed Jun 05, 2019 8:33 am

Dr James MCClane, the younger brother of Steven
Is the head of Gastro Surgery at Norwalk Hospital in Connecticut. He is my forever hero and my nickname
For him is Ace McDreamy. He gets cookies for life!

Pete’s journey after Doc MCClane was that he developed a liver met 18 months after diagnosis. The local onc wanted to remove the met and “Wait and See”. That was unacceptable to us. We
Then hightailed it to Sloan and in 3 months the tiny speck of a liver met grew 4 fold.
Sloan resected and HAI pump was inserted for added insurance that Pete had the best outcome available. We are forever grateful to Sloan for saving his life and putting him in remission. Cure?

Doing our research, getting 3 to 4 opinions, asking LOTS of questions really benefitted us. Stay away from Dr Goggle please.
We love all of you here....try to be positive when things look bleak. We know, we really know.

PM me please if any questions!


Julie and Pete
Stamford,CT
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - To Current

User avatar
CRguy
Posts: 10038
Joined: Sun Feb 10, 2008 6:00 pm

Re: UPDATE ON PETE

Postby CRguy » Wed Jun 05, 2019 11:31 am

Glad things are going well for you Julie and Pete

Cheers and best wishes moving forward
Harmony on the Journey !
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
juliej
Posts: 3052
Joined: Thu Aug 05, 2010 12:59 pm

Re: UPDATE ON PETE

Postby juliej » Thu Jun 06, 2019 7:07 pm

hart2hart wrote:Dr James MCClane, the younger brother of Steven is the head of Gastro Surgery at Norwalk Hospital in Connecticut. He is my forever hero and my nickname for him is Ace McDreamy.

Dr. D'Angelica is pretty easy on the eyes too!!! :D

I'm so happy to hear that you are both thriving and enjoying every moment of life! It was a long, hard road, but we did it!!! (Thanks to the brilliant docs at MSK!)

Dr. Kemeny is a saint. She found a way to get me to NED when everyone else gave up on me. Sandy was almost in tears the last time I talked to her because of how well I'm doing.

Thanks for sending a message of hope and inspiration to others!

xoxoxo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 9/23/2019, CEA<1

justin case
Posts: 4259
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: UPDATE ON PETE

Postby justin case » Fri Jun 07, 2019 1:03 pm

What up Jewels, it's good to hear things are going well !!!!!
Warm Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

DarknessEmbraced
Posts: 3382
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: UPDATE ON PETE

Postby DarknessEmbraced » Sat Jun 08, 2019 12:19 pm

I'm glad he's doing well! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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