Constipation - Drinking Water (>120 ounces)

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fumaros
Posts: 252
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
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Constipation - Drinking Water (>120 ounces)

Postby fumaros » Tue Jun 04, 2019 11:22 am

I have had chronic constipation since 2016 after my hemicolectomy. I hardly ever got relief. I also take iron supplements because I am anemic which only makes constipation worse.
I take docusate (stool softner) with every meal (3 times a day), that helped but not as much as when i recently started drinking a ton more water. I try to drink slightly upwards of 120 ounces of water per day and I have finally found some relief from the constipation. I hope it stays that way.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

AmyG
Posts: 151
Joined: Tue Dec 25, 2018 8:08 pm

Re: Constipation - Drinking Water (>120 ounces)

Postby AmyG » Tue Jun 04, 2019 1:57 pm

I should drink more water.... :shock:
42 dx @ 9wks pregnant w/baby #8 8/18
Originally thought to be stage 2, no lymphnodes involved 9/18
Spot on liver found prior to bowel resection 9/18
Liver biopsy, it's malignant 12/18
Stage IV, 1 liver met 4.7cm
2019 plan is to deliver baby early and start FOLFOX w/Avastin

User avatar
CRguy
Posts: 9899
Joined: Sun Feb 10, 2008 6:00 pm

Re: Constipation - Drinking Water (>120 ounces)

Postby CRguy » Sat Jun 08, 2019 12:35 pm

fumaros,

Just wondering if your Docs have any concerns / tested you / warned you about overhydration issues ?

Usually with normal kidney function you would likely be fine, BUTT as one of the CRC homies
just interested if they had any specific info for you, that we could share ??

... and yes iron supps are the shits for constipation ! :twisted:

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Pyro
Posts: 239
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: Constipation - Drinking Water (>120 ounces)

Postby Pyro » Tue Jun 11, 2019 11:36 pm

fumaros wrote:I have had chronic constipation since 2016 after my hemicolectomy. I hardly ever got relief. I also take iron supplements because I am anemic which only makes constipation worse.
I take docusate (stool softner) with every meal (3 times a day), that helped but not as much as when i recently started drinking a ton more water. I try to drink slightly upwards of 120 ounces of water per day and I have finally found some relief from the constipation. I hope it stays that way.


Standard disclaimer as I am not a doctor. I tried this, I too have had the problem all my life and it’s worse since the big bag surgery. It showed up in my labs, my doctor told me to knock it off. It didn’t seem to help a lot, maybe some. If your really nervous get 12 ounces of magnesium citrate.
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @36, treatment failure

boxhill
Posts: 242
Joined: Fri Apr 06, 2018 11:40 am

Re: Constipation - Drinking Water (>120 ounces)

Postby boxhill » Wed Jun 12, 2019 10:20 am

Do you drink coffee? I think it helps.

This may seem ludicrous, but based on my personal experience, a combination of metformin and lots of coffee --doesn't have to be caffeinated--in the morning is sure to guarantee loose stools. And plenty of them.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemicolectomy
11 of 25 nodes,5 of 5 mesentery nodes
5mm liver met removed
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED, 2mm indeterminate lung nodule
11/20/18 CT NED, Lung nodule calcified granuloma. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met and 2 lymph nodes in porta hepatis, CT review shows progression on FOLFOX
12/31/18 Keytruda
6/5/19 Triphasic CT LNs shrunk to normal, Liver node stable

CF_69
Posts: 49
Joined: Sat Dec 22, 2018 9:44 pm

Re: Constipation - Drinking Water (>120 ounces)

Postby CF_69 » Wed Jun 12, 2019 4:27 pm

I’ve been experimenting with smoothies for my first meal of the day.

My latest concoction is:

1 banana
Handful of blueberries
5-6 strawberries
5-7 prunes
1 cup spinach
1 cup coconut water
1/2 cup Greek vanilla yogurt

Usually I’ll have a coffee alone before I ingest anything else.

I’m constantly trying to get my bowels moving and so far this seems to be working.
47 year old male
Distal sigmoid near rectosigmoid junction adjacent to upper rectum
Adenocarcinoma
2.8 x 1.8 x 3.5 cm
G2
T3N0M0 after pathology
CEA 1.9
Xeloda / radiation x 25
Laparoscopic LAR April 2019
0 of 12 nodes
Stage 2A
5 cycles of adjuvant Xeloda
MRI on liver for 2mm hypodensity not suspicious.

fumaros
Posts: 252
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Constipation - Drinking Water (>120 ounces)

Postby fumaros » Wed Jun 12, 2019 5:28 pm

CRguy wrote:fumaros,

Just wondering if your Docs have any concerns / tested you / warned you about overhydration issues ?

Cheers
CRguy



It was quiet the reverse, after I started, the onc told me to drink more water (i had elevated creatine levels, probably related to protein shakes) although I didn't tell him that I was already drinking more water than I ever did per day.

I have been doing this for about a month now, it still works for me and has been a big relief. It's even helped during chemo when I wouldn't be able to go to the bathroom till i do a colonprep style purge.

I do think concerns about over hydration are legitmate, but i am not sure 120 oz. is close to reaching that point. A quick internet search shows:

"Your kidneys can eliminate about 5.3-7.4 gallons (20-28 liters) [676 oz. - 946oz.] of water a day, but they can't get rid of more than 27-33 ounces (0.8-1.0 liters) per hour (14, 15).

Therefore, in order to avoid hyponatremia symptoms, you should not drink more than 27-33 ounces (0.8-1.0 liters) of water per hour, on average (14)." The article links to scientific journals so that's kind of legitimate.




boxhill wrote:Do you drink coffee? I think it helps.

This may seem ludicrous, but based on my personal experience, a combination of metformin and lots of coffee --doesn't have to be caffeinated--in the morning is sure to guarantee loose stools. And plenty of them.


I do not drink coffee, but I am planning on starting (i have been planning on starting for a few years now, but I am close).


I do consume elements of your smoothie. CF_69, but I am curious to try the whole thing.

I think this is a good discussion to have. I will bring it up specifically with my onc. and see if he has any concerns. In the mean time it feel nice to go to the bathroom and not wince.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

CF_69
Posts: 49
Joined: Sat Dec 22, 2018 9:44 pm

Re: Constipation - Drinking Water (>120 ounces)

Postby CF_69 » Wed Jun 12, 2019 7:06 pm

It actually tastes pretty good.

It seems most people are on the other end of the spectrum, but for us that tend to get constipated this shake may help. I know everyone is different, but give it a shot.

I tend to eat as though nothing ever happened to me so I can get plugged up pretty easily if I’m not careful.

Striving to find that elusive happy medium :)
47 year old male
Distal sigmoid near rectosigmoid junction adjacent to upper rectum
Adenocarcinoma
2.8 x 1.8 x 3.5 cm
G2
T3N0M0 after pathology
CEA 1.9
Xeloda / radiation x 25
Laparoscopic LAR April 2019
0 of 12 nodes
Stage 2A
5 cycles of adjuvant Xeloda
MRI on liver for 2mm hypodensity not suspicious.


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