Postby juliej » Mon Jun 03, 2019 5:52 pm
Rest in peace, Dr. Lynch.
A few months ago Dana-Farber opened the first center devoted to caring for Lynch Syndrome patients. Lynch is a many-headed hydra -- mutations in 5 genes (MLH1, MSH2, MSH6, PMS2, or EPCAM) and multiple mutations within each of the 5 genes -- so getting coordinated care for it is a very good idea!
https://www.dana-farber.org/cancer-genetics-and-prevention/syndromes-genes-and-programs/lynch-syndrome-center/Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1