Good news from Stage 4 dad after a year and half

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andelib
Posts: 7
Joined: Fri Dec 15, 2017 1:13 pm
Location: Turkey

Good news from Stage 4 dad after a year and half

Postby andelib » Sat Jun 01, 2019 3:48 pm

Hi everyone,

Just wanted to give some updates about my dad since it would give some hope to those undergoing this disease.

My father was diagnosed in Nov 2017 with Stage 4 colon cancer with liver mets. He has undergone surgery, chemo, had new lesions, had IMRT, chemo again + Altuzan and thankfully he is NED since January and now on monthly blood check only.

He had lost some weight, had some neuropathy but never ceased working, gardening and visiting the mosque, I believe those kept his sprits up.

We know that it is not "cured" and likely to come back at some point but we are thankful for the time we gained, and living one day at a time.

Sending my best wishes from Turkey to everyone in the forum. I am praying for a cure that will work for everyone fighting with cancer.
Dad Dx CC at 61, Stage IV w/Liver mets
Jan 2018: Laporoscopic colon res and open liver resection
All clear margin, MSI High, DPD Deficiency: Negative
March 2018: Started 12 cycles of chemo (FOLFOX) via port (2-day pouch)
Sept 2018: CEA:25 New met (2cm) found in liver
Oct 2018: Underwent five IMRT sessions for the liver met
Nov 2018: Started 12 cycles of 5-FU + Altuzan (bevacizumab) + Irinotecan
January 2019: CEA: 4.98 Clear PET, clear MR
May 2019: Clear PET, clear MR, clear colonoscopy

Chimney
Posts: 22
Joined: Sun Nov 08, 2015 10:38 am

Re: Good news from Stage 4 dad after a year and half

Postby Chimney » Sun Jun 02, 2019 10:40 am

That’s great news for your dad!
Dad, diagnosed CC age 70
T3n1m0 5cm tumor in sigmoid
Resection Mar 2014, fever, endocarditis of aortic heart valve. 2 months of IV antibiotics
5FU continuous infusion 6months
Post chemo scan clear Feb 2015, port removed
2016- clear scan
2017- clear scan
2018 - clear scan, serious prostate infection, aortic valve replacement via TAVI
April 2019 - clear scan, but with mild ascites around liver. Scan again in 6 months
Oct 2019 - clear scan, ascites reduced to negligible

hopefulandstrong
Posts: 58
Joined: Fri Apr 19, 2019 7:11 pm

Re: Good news from Stage 4 dad after a year and half

Postby hopefulandstrong » Sun Jun 02, 2019 11:12 am

Wonderful news! Thanks so much for sharing.
54, female
1/8/19 DS Stage 4 with Liver Mets; Successful Colon Resect
2/18/19 Started Folfox -- CEA 70
5/8/19 - BRAF mutation -- switch to Triplet Therapy: Encorafenib, Binimetinib, Cetximab
6/13/19 - CEA dropped from 214 to 22
8/29 - CEA jump to 30-- scans reveal liver spread, though still confined. triplet therapy abandoned; some concern about PIC3 mutation interfering with BRAF treatment
9/1 - 10/4 -- no treatment
10/4 -- folfoxfiri to stem further progression; pump placement in January (hopefully)

Jannine
Posts: 204
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Good news from Stage 4 dad after a year and half

Postby Jannine » Sun Jun 02, 2019 11:46 am

Oh that is such good news! Thanks for letting us know. I hope your dad doesn't have a reoccurrence, and has smooth sailing from now on.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Good news from Stage 4 dad after a year and half

Postby fumaros » Mon Jun 03, 2019 7:46 am

really glad to hear it. all the best and prayers.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Good news from Stage 4 dad after a year and half

Postby claudine » Mon Jun 03, 2019 9:53 am

Fantastic! It is always a joy to read such good news here.

Cheers,
Claudine
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

User avatar
henry123
Posts: 218
Joined: Sun Oct 08, 2017 3:25 am

Re: Good news from Stage 4 dad after a year and half

Postby henry123 » Fri Jun 07, 2019 7:29 am

Best wishes to him . He will stay NED.
Cheers
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
Aspirin start
6/18 1.5 CT clear
12/18 1.1 NED
1/20 NED Opdivo stop
8/23 1.0 All ok

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Good news from Stage 4 dad after a year and half

Postby DarknessEmbraced » Sat Jun 08, 2019 11:27 am

Wonderful news about your Dad! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: Good news from Stage 4 dad after a year and half

Postby Trying » Sat Jun 08, 2019 11:53 am

So happy for you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Gloriamazz
Posts: 89
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
Contact:

Re: Good news from Stage 4 dad after a year and half

Postby Gloriamazz » Sun Jun 09, 2019 5:42 pm

andelib wrote:Hi everyone,

Just wanted to give some updates about my dad since it would give some hope to those undergoing this disease.

My father was diagnosed in Nov 2017 with Stage 4 colon cancer with liver mets. He has undergone surgery, chemo, had new lesions, had IMRT, chemo again + Altuzan and thankfully he is NED since January and now on monthly blood check only.

He had lost some weight, had some neuropathy but never ceased working, gardening and visiting the mosque, I believe those kept his sprits up.

We know that it is not "cured" and likely to come back at some point but we are thankful for the time we gained, and living one day at a time.

Sending my best wishes from Turkey to everyone in the forum. I am praying for a cure that will work for everyone fighting with cancer.


I needed something positive to embrace. I am so happy for your dad and smooth sailing treatments.

I start my chemo tomorrow Folfax and another comes home with me for 36 hours.
Diagnosed July 2018 with CRC
Lar Aug 2018 barbie butt removed rectum, sigmoid colon, anus said all margins clear
Feb told every thing fine.
March felt pain had cat scan found hyper dense tumor on pelvis
Had lung cat scan 4 tumors 2 new, I doubled in size last one 1 stayed same
Monday, June 10 First chemo
June, scope
2.6 adenocarcinoma
8/8/18 APR
Stoma
March 19 CT 2 lung N.
April 29, 2019 Pelvis TMR 1.8 x 1.8 cm

7/22 - 7/29/ 2019 5 radi
no chemo 10 mo.
6-10-19 Folfox, Oxill
2nd Irinotecan , Folferi, FU5
12/14/2020, off folferi lung nods new
break going on pill drug Jan 2021
1/19/22, appt 2nd opinion wait to start Vectivix
2 mos no CHEMO
MMR
MSI/stable/HER2
1/2/2021 - round 1 Vectibix
Oligometastatic (NSCLC)


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