Good news from Stage 4 dad after a year and half

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andelib
Posts: 7
Joined: Fri Dec 15, 2017 1:13 pm
Location: Turkey

Good news from Stage 4 dad after a year and half

Postby andelib » Sat Jun 01, 2019 3:48 pm

Hi everyone,

Just wanted to give some updates about my dad since it would give some hope to those undergoing this disease.

My father was diagnosed in Nov 2017 with Stage 4 colon cancer with liver mets. He has undergone surgery, chemo, had new lesions, had IMRT, chemo again + Altuzan and thankfully he is NED since January and now on monthly blood check only.

He had lost some weight, had some neuropathy but never ceased working, gardening and visiting the mosque, I believe those kept his sprits up.

We know that it is not "cured" and likely to come back at some point but we are thankful for the time we gained, and living one day at a time.

Sending my best wishes from Turkey to everyone in the forum. I am praying for a cure that will work for everyone fighting with cancer.
Dad Dx CC at 61, Stage IV w/Liver mets
Jan 2018: Laporoscopic colon res and open liver resection
All clear margin, MSI High, DPD Deficiency: Negative
March 2018: Started 12 cycles of chemo (FOLFOX) via port (2-day pouch)
Sept 2018: CEA:25 New met (2cm) found in liver
Oct 2018: Underwent five IMRT sessions for the liver met
Nov 2018: Started 12 cycles of 5-FU + Altuzan (bevacizumab) + Irinotecan
January 2019: CEA: 4.98 Clear PET, clear MR
May 2019: Clear PET, clear MR, clear colonoscopy

Chimney
Posts: 21
Joined: Sun Nov 08, 2015 10:38 am

Re: Good news from Stage 4 dad after a year and half

Postby Chimney » Sun Jun 02, 2019 10:40 am

That’s great news for your dad!
Dad, diagnosed CC age 70
T3n1m0 5cm tumor in sigmoid
Resection Mar 2014, fever, endocarditis of aortic heart valve. 2 months of IV antibiotics
5FU continuous infusion 6months
Post chemo scan clear Feb 2015, port removed
2016- clear scan
2017- clear scan
2018 - clear scan, serious prostate infection, aortic valve replacement via TAVI
April 2019 - clear scan, but with mild ascites around liver. Scan again in 6 months

hopefulandstrong
Posts: 25
Joined: Fri Apr 19, 2019 7:11 pm

Re: Good news from Stage 4 dad after a year and half

Postby hopefulandstrong » Sun Jun 02, 2019 11:12 am

Wonderful news! Thanks so much for sharing.
54, female
1/8/19 DS Stage 4 with Liver Mets
1/11/19 Successful Colon Resect -- 12 inches of transverse colon removed
2/9/19 PET scan with disease confined to liver
2/18/19 Started Folfox -- CEA 70
5/1/19 -- Scans show progression -Switch to Folfiri
5/8/19 - BRAF mutation -- switch again to Triplet Therapy: Encorafenib, Binimetinib, Cetximab
6/13/19 - CEA dropped from 214 to 22
7/16/19 - CEA 2.8
8/1/19 - CT scan reveals 4 liver mets shrunk -- all under 3.1 CM.

Jannine
Posts: 160
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Good news from Stage 4 dad after a year and half

Postby Jannine » Sun Jun 02, 2019 11:46 am

Oh that is such good news! Thanks for letting us know. I hope your dad doesn't have a reoccurrence, and has smooth sailing from now on.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

fumaros
Posts: 264
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Good news from Stage 4 dad after a year and half

Postby fumaros » Mon Jun 03, 2019 7:46 am

really glad to hear it. all the best and prayers.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Claudine
Posts: 64
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Good news from Stage 4 dad after a year and half

Postby Claudine » Mon Jun 03, 2019 9:53 am

Fantastic! It is always a joy to read such good news here.

Cheers,
Claudine
Wife of Dx 04/2018 (51 yo). MSS, KRAS mutated G12A
No primary, lytic tumor L4 vertebrae, CEA 10
Radiation 04/2018
Resection small intestine 05/18 (activity on PET scan, but no cancer found)
Xelox * 6, 05/2018 to 10/2018
6.7 cm hypermetabolic left adrenal mass 03/14/2019, 4.4 cm 05/21/2019
SBRT L4 02/2019
Folfiri + Avastin
CEA 58 03/15, 17 03/29, 10 04/12, 6.4 04/26, 5 05/10, 4.8 05/23, 4.2 06/07, 3.6 06/21, 3.2 07/07
Scan 05/21: Multiple small lung nodules shrinking or stable compared to 03/14 scan.

User avatar
henry123
Posts: 192
Joined: Sun Oct 08, 2017 3:25 am

Re: Good news from Stage 4 dad after a year and half

Postby henry123 » Fri Jun 07, 2019 7:29 am

Best wishes to him . He will stay NED.
Cheers
46yo M msi-high Lynch +ve
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes ,onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver norm
1/18 3.6
4/18 2.0
Aspirin start
6/18 1.5 CT clear
12/18 1.1 CT Clear NED
4/19 1.1
6/19 .9 CT clear
Vegan yoga juicing
Still on opdivo

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Good news from Stage 4 dad after a year and half

Postby DarknessEmbraced » Sat Jun 08, 2019 11:27 am

Wonderful news about your Dad! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Trying
Posts: 170
Joined: Sun May 13, 2018 10:11 pm

Re: Good news from Stage 4 dad after a year and half

Postby Trying » Sat Jun 08, 2019 11:53 am

So happy for you
38 yr old single mom of almost 2 yr old.
Colon cancer stage IV 10 liver mets and peri metApril 2018
Folfox as of June 2018
Down to 2 mets in liver dec 2018.

Gloriamazz
Posts: 60
Joined: Thu Jul 12, 2018 1:59 pm
Facebook Username: gloriamazz@ yahoo.com
Location: Ohio
Contact:

Re: Good news from Stage 4 dad after a year and half

Postby Gloriamazz » Sun Jun 09, 2019 5:42 pm

andelib wrote:Hi everyone,

Just wanted to give some updates about my dad since it would give some hope to those undergoing this disease.

My father was diagnosed in Nov 2017 with Stage 4 colon cancer with liver mets. He has undergone surgery, chemo, had new lesions, had IMRT, chemo again + Altuzan and thankfully he is NED since January and now on monthly blood check only.

He had lost some weight, had some neuropathy but never ceased working, gardening and visiting the mosque, I believe those kept his sprits up.

We know that it is not "cured" and likely to come back at some point but we are thankful for the time we gained, and living one day at a time.

Sending my best wishes from Turkey to everyone in the forum. I am praying for a cure that will work for everyone fighting with cancer.


I needed something positive to embrace. I am so happy for your dad and smooth sailing treatments.

I start my chemo tomorrow Folfax and another comes home with me for 36 hours.
Diagnosed July 2018 with CRC
Lar Aug 2018 barbie butt removed rectum, sigmoid colon, anus said all margins clear
Feb told every thing fine.
March felt pain had cat scan found hyper dense tumor on pelvis
Had lung cat scan 4 tumors 2 new, I doubled in size last one 1 stayed same
Monday, June 10 First chemo
June 29, 2018 Colonoscopy
3cm leision adenocarcinoma
Operated August 8, 2018 Had APR removed Anus, Rectum,Sigmoid Colon
Barbie Butt permanent Colostomy
March 5, 2019. CT 2 lung nodules repeat CT 6 MonthSept. 10,
April 29, 2019 HyperDense Liesion 1.8 x 1.8 cm
July 22 2019; Monday 1 radiation painful dense Pelvis tumor 4-29-2019 ( more tired than usual) total of 5 radiations tumor is a recurrence of original colon cancer plus met to lungs
July 24, 2019 Wednesday 2nd radiation treament.


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