Treatment break - advice sought!
Posted: Sun May 26, 2019 10:15 pm
Hi all, I need some input please if you have a moment.
I just finished long-course chemoradiation treatment prior to surgery on my primary rectal tumour, and I now have a 7 week break. I had previously discussed with my onc doing an additional 2 cycles of FOLFOX during this time, but he has now recommended deferring it until after the surgery in light of some mild but persistent peripheral neuropathy from my neoadjuvant chemo.
I am both relieved and stressed by this. It feels like a long time off chemo (last FOLFOX was before my liver resection in March), and aside from the neuropathy I feel fit and well enough to handle it. But as he said, permanent nerve damage is no fun. I asked if I could just do 5-FU and he said if I were to do that then I might as well just stay on the Xeloda (from the chemoradiation), but the benefit would be largely psychological. I’ve tolerated the Xeloda ok, but of course if there’s no material survival benefit then it would be unnecessary treatment.
So as far as I can see, I have 3 options:
1. Kick, scream and beg to do the FOLFOX now, and take what the neuropathy brings,
2. Wait the 7 weeks but do ‘maintenance’ Xeloda to keep myself sane, or
3. Take the 7 weeks to focus on eating well, fitness, supplementation (I have an integrative oncology person too); then go hard for surgery and adjuvant chemo
Any thoughts or votes on the above greatly appreciated! (Or anything else I should be considering doing).
Thanks as always,
Rob
I just finished long-course chemoradiation treatment prior to surgery on my primary rectal tumour, and I now have a 7 week break. I had previously discussed with my onc doing an additional 2 cycles of FOLFOX during this time, but he has now recommended deferring it until after the surgery in light of some mild but persistent peripheral neuropathy from my neoadjuvant chemo.
I am both relieved and stressed by this. It feels like a long time off chemo (last FOLFOX was before my liver resection in March), and aside from the neuropathy I feel fit and well enough to handle it. But as he said, permanent nerve damage is no fun. I asked if I could just do 5-FU and he said if I were to do that then I might as well just stay on the Xeloda (from the chemoradiation), but the benefit would be largely psychological. I’ve tolerated the Xeloda ok, but of course if there’s no material survival benefit then it would be unnecessary treatment.
So as far as I can see, I have 3 options:
1. Kick, scream and beg to do the FOLFOX now, and take what the neuropathy brings,
2. Wait the 7 weeks but do ‘maintenance’ Xeloda to keep myself sane, or
3. Take the 7 weeks to focus on eating well, fitness, supplementation (I have an integrative oncology person too); then go hard for surgery and adjuvant chemo
Any thoughts or votes on the above greatly appreciated! (Or anything else I should be considering doing).
Thanks as always,
Rob