Journey started 1 year ago today

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tminor5
Posts: 40
Joined: Wed Jun 13, 2018 11:46 am

Journey started 1 year ago today

Postby tminor5 » Sun May 26, 2019 12:55 pm

I can’t believe it’s been a year. It actually feels like it’s been longer. This past Thursday he had his first scan since chemo. This coming Friday he has a barium test to make sure they can finish his resection so we can get rid of his illeostomy. It has been harder to care for then his colostomy. He will also see the oncologist and hear the results of his scan. He is just ready to be done with all the surgeries. He will have his hip replaced on July 11. We had to put that off for PTO issues and wanting to finish all his colon surgeries first. Atleast he can finally see a light at the end of this tunnel.
DH DX at 46  pT4a,pN1a CEA 1.6
5/25/18 ER bowel obstruction
5/26/18 Colonoscopy couldn't insert stint
5/27/18 Surgery removed 18", not seen on any near by organs, colostomy due to infection
6/25/18 1st FOLFOX (12 cycles)
11/26/18 Last chemo
12/17/18 Colonoscopy clear
3/29/19 Colostomy takedown (temp illeo because of scaring)
5/23/19 Scan (sm node lung believe scar tissue)
6/20-7/25-8/9-8/20-9/5-9/26 Colon stretch for illeo takedown
10/3/19 Scan (node same)
10/25/19 Ileo takedown

User avatar
LPL
Posts: 651
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Journey started 1 year ago today

Postby LPL » Sun May 26, 2019 2:49 pm

tminor5 wrote:I can’t believe it’s been a year. It actually feels like it’s been longer. This past Thursday he had his first scan since chemo. This coming Friday he has a barium test to make sure they can finish his resection so we can get rid of his illeostomy. It has been harder to care for then his colostomy. He will also see the oncologist and hear the results of his scan. He is just ready to be done with all the surgeries. He will have his hip replaced on July 11. We had to put that off for PTO issues and wanting to finish all his colon surgeries first. Atleast he can finally see a light at the end of this tunnel.

A lot of things going on for you! I hope you will be able to celebrate good clean tests before the upcoming hip replacement. Waiting for result is a ‘PITA’ :( .. please keep us posted.
Sending positive vibes
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets


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