Our Miss Molly/Karen going into hospice

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fumaros
Posts: 264
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
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Re: Our Miss Molly/Karen going into hospice

Postby fumaros » Mon May 27, 2019 11:53 am

Miss Molly handles all the suffering with such grace. Her legacy of kind words and encouragement will continue.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Our Miss Molly/Karen going into hospice

Postby Caat55 » Mon May 27, 2019 12:41 pm

You have been a wise guide and great support to me, all of us. Thank you.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

natelaugh
Posts: 57
Joined: Wed Apr 03, 2019 11:40 pm

Re: Our Miss Molly/Karen going into hospice

Postby natelaugh » Mon May 27, 2019 4:56 pm

Thank you Miss Molly for your advise and help. I hope you feel better.

Nate.
Caregiver to 80M
DX:CC,RC,desc
11/2018 rightPain
1/19/19 scopy,path
1/23 CTscan
2/19 surgery
2/26-2/28 NGTube
2/28-3/14 TPN bc ileus
3/2 2nd surgeryCloseOpenWound
3/4-3/28 woundVac
size: 6cm Adenocarcinoma
grade Poorly
Stage IIIC T3N2aMx
PositiveLymph:5of28
BaselineCEA:68
LVI:Y
PNI:N
Surgical margins:clear
MSI:MMR (MLH1, MSH2, MSH6, PMS2) Intact nuclear expression
Lynch status:N
Laparascopic, partial colectomy
CEA:3/28/19 2.8
Chemo:4/16/19-9/17/19 5FU,12cycles,every 14days,leucoverin,zofran,Dexamethasone

Jacques
Posts: 496
Joined: Sun Dec 28, 2014 10:38 am
Location: Occitanie

Re: Our Miss Molly/Karen going into hospice

Postby Jacques » Mon May 27, 2019 9:59 pm

I'm so sorry to hear this news.

I want to thank Karen for all of her thoughtful and caring posts. Because of her helpful suggestions, I was able to overcome some difficult problems and I then became able to face the future with hope. Thank you, Karen, for being here for all of us.

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Maggie Nell
Posts: 1134
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Our Miss Molly/Karen going into hospice

Postby Maggie Nell » Tue May 28, 2019 5:10 am

So I'm watching "The Voice" blinds here in Australia and a 15 year old lad sang
this George Ezra song with the lyrics

Homegrown alligator, see you later
Gotta hit the road, gotta hit the road

There's a mountaintop that I'm dreaming of
If you need me you know where I'll be

I'll be riding shotgun underneath the hot sun


https://www.youtube.com/watch?v=aAiVsqfbn5g

...which gives me an idea.....why don't we post links and "sing" to Karen?
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
July 2019 : pending liver U/S, colonoscopy
rut roh

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juliej
Posts: 3035
Joined: Thu Aug 05, 2010 12:59 pm

Re: Our Miss Molly/Karen going into hospice

Postby juliej » Tue May 28, 2019 3:32 pm

Holding you in the light and praying for an easing of your pain. Please know you are nothing short of remarkable. You have made such a big difference in so many people's lives.

xo,
Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 6/13/2019, CEA<1

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby macpudd » Tue May 28, 2019 6:26 pm

Thinking of you Miss Molly, a strong and very rare person.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

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CRguy
Posts: 9969
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Tue May 28, 2019 8:26 pm

Maggie Nell wrote:...which gives me an idea.....why don't we post links and "sing" to Karen?


I honor Miss Molly / Karen with my song from
Maelyn Jarmon and Sarah McLachlan Perform "Angel" - The Voice Live Finale 2019

I have met Sarah and she is a beautiful human being, fitting that her song is offered to our own beautiful person here, Karen.

Love Peace and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Pat
Posts: 25
Joined: Fri Jan 15, 2016 6:21 pm
Facebook Username: Pat Henderson Sins
Location: Southern California

Re: Our Miss Molly/Karen going into hospice

Postby Pat » Wed May 29, 2019 1:39 am

This is very sad news. Karen, know that you have been a big help emotionally and intellectually. My heart goes out to you.
57 yr old. Dx 9/2015, Stage IIIc T4aN2bM0 BRAF/V600e
10/2015 Right Hemicolectomy
High Grade, poorly differentiated Adenocarcinoma of the Hepatic Flexure
25 of 30 lymph nodes cancerous extranodal extension
Barrett's Esophagus
11/2015 Folfox 12 cycles stopped 3x for month each due to low blood counts
7/30/2016 - finally finished Folfox
9/15/2016 - Clear colonoscopy, 1 sessile polyp
9/7/2017 - clear colonoscopy, next due in 3 yrs

Lee
Posts: 5948
Joined: Sun Apr 16, 2006 4:09 pm

Re: Our Miss Molly/Karen going into hospice

Postby Lee » Sun Jun 02, 2019 6:46 pm

Karen,

You continue to be in my thoughts and prayers. I hope and pray with all that you are dealing with, that you continue to have some good days. Pain free, surrounded by family, friends, and love,

Always,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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CRguy
Posts: 9969
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Sun Jun 02, 2019 11:32 pm

Lee
if there is any feedback / info /.....from Karen
Please let us know
AND let us know if there is anything we can do for her and with her ...

Peace Love and Harmony

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

NHMike
Posts: 2191
Joined: Fri Jul 21, 2017 3:43 am

Re: Our Miss Molly/Karen going into hospice

Postby NHMike » Mon Jun 03, 2019 8:11 am

A sad situation as she's been so helpful and positive over the years. I read what she has and the combination of things looks very difficult.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

boxhill
Posts: 336
Joined: Fri Apr 06, 2018 11:40 am

Re: Our Miss Molly/Karen going into hospice

Postby boxhill » Mon Jun 03, 2019 5:05 pm

Karen has been so wonderfully kind and truly helpful to so many. I hope she knows how she is loved and appreciated.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/4/18 FOLFOX
Neulasta 6/28
7/9/18 CT NED
11/20/18 CT NED. Enlarged spleen.
12/20/18 Liver MRI 5mm liver met? and 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/5/19 Triphasic CT LN and spleen normal, Liver node stable
6/28/19 Pause Keytruda, predisone for joint pain
7/31/19 Restart Keytruda
9/10/19 CT stable

Lee
Posts: 5948
Joined: Sun Apr 16, 2006 4:09 pm

Re: Our Miss Molly/Karen going into hospice

Postby Lee » Mon Jun 03, 2019 7:28 pm

CRguy wrote:Lee
if there is any feedback / info /.....from Karen
Please let us know
AND let us know if there is anything we can do for her and with her ...

Peace Love and Harmony

CRguy


I have no personal knowledge. On the UOAA website, she said that she was going into hospice and would not be posting anymore. I'm hoping that someone will update, but I'm not going to brother her at this time. I want her to know how she helped so many people. If I should hear anything, I will be glad to update. I could be wrong, but my gut felling she is still with us.

She got C diff and that created a cycle of medical issues. As she put it, her quality of life is not there now. She spend several weeks in the hospital. Her medical team felt she probably would not recover from this cycle of medical issues.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
CRguy
Posts: 9969
Joined: Sun Feb 10, 2008 6:00 pm

Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Mon Jun 03, 2019 9:32 pm

Thanks Lee
I cruised the UOAA website also
and found she was much loved and respected there, as here.

Prayers being sent

CRguy in Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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