Our Miss Molly/Karen going into hospice

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Our Miss Molly/Karen going into hospice

Postby Lee » Sat May 25, 2019 3:49 pm

It is with sadness that I announce MIss Molly aka Karen is going into hospice due to declining health. While she did not have cancer, she was a friend of Bella's and a very helpful person on this forum. Please keep her in your thoughts and prayers.

ON the UOAA forum another thread had been started a week ago, if you would like to read

https://www.uoaa.org/forum/viewtopic.ph ... ad550211c4

Karen I pray you are pain free, surrounded by family, friends and love.

I will miss you and your thoughtful replies on this and the other forum

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Re: Our Miss Molly/Karen going into hospice

Postby LPL » Sat May 25, 2019 5:12 pm

Oh NO I’m so sorry to hear this :cry:
Thank you Lee for letting us know.
Miss Molly/Karen has posted SO MANY good advices and she has explained so many things - I have a folder with all I have learned from her. Thank you Thank you Karen!
My heart is hoping that she will get better !!!!!
If you see this Miss Molly/Karen - I’m sending love & hope to you!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung NED again Oct-19 :)
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb & Oct lung mets

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Re: Our Miss Molly/Karen going into hospice

Postby FightCRC » Sat May 25, 2019 6:28 pm

I am so saddened by this. Miss Molly has contributed so much to these boards. When I had questions for her via PM. she answered them in great detail. She just wanted to help. A rare human being. I hope she is at peace and in comfort. Thank you, Miss Molly.

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Re: Our Miss Molly/Karen going into hospice

Postby CRguy » Sat May 25, 2019 7:40 pm

Be at peace with your decision my friend,
you above all people will know what is best for yourself.
Know you HAVE made a difference here and everywhere you posted.

You have done Belle proud by keeping her memory alive in our hearts
and we will keep you, in ours. You are a good friend to her and all of us here.

May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall soft upon your fields and until we meet again,
may God hold you in the palm of His hand.

With Love Peace and Harmony on the Journey

Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: Our Miss Molly/Karen going into hospice

Postby Punky44 » Sun May 26, 2019 12:19 am

She was so helpful to me in figuring out issues with my mom during the early days after surgery. I am so sad to see this and she will be in my prayers.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

B in Canada
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Re: Our Miss Molly/Karen going into hospice

Postby B in Canada » Sun May 26, 2019 1:54 am

So very sorry to read about MissMolly entering hospice phase.

MissMolly(Karen), Thank-you for contributing so much wise advice to this Forum.
I hope you have absolutely no pain and I wish you peace.
Positive FIT test Spring 2013(intermittent blood=of course thought it was hemorrhoid) & finally got appt with colo-rectal surgeon Dec.2013 & then colonoscopy Aug. 2014
Sigmoid resection (laparoscopic) Nov. 2014 T3N0M0=colon 2A Female 53 yrs. old
Choice of to take Capecitabine(Xeloda) or not: did 2 rounds and then had to quit due to many side-effects(still have auto-immune/drug-induced arthritis problems)
Colonoscopy Fall 2015(few polyps), Jan 2017(couple polyps); all scans/CEA/monitoring good :D

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Maggie Nell
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Re: Our Miss Molly/Karen going into hospice

Postby Maggie Nell » Sun May 26, 2019 2:43 am

Deep peace I breathe into you,
O weariness, here:
O ache, here!
Deep peace, a soft white dove to You;
Deep peace, a quiet rain to you;
Deep peace, an ebbing wave to you!

See you later alligator......
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r.j hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Sorbitol is the Devil
Ordained Dudeist Priest at Dudeism, the Church of the Latter-Day Dude 8)

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Re: Our Miss Molly/Karen going into hospice

Postby ozziej » Sun May 26, 2019 3:30 am

Go peacefully Karen, and know that you have made an enormous impact on many lives. May you have a pain free journey.
Jan xxx
F 56 dx 11/14 Stage 1 RC (post EMR)
No neo-adjuvant or adjuvant chemo/RD
3/15 ULAR (open) temp loop ileo
5/15 ileo reversal
NED and hoping to stay that way!! : )

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Re: Our Miss Molly/Karen going into hospice

Postby DarknessEmbraced » Sun May 26, 2019 9:45 am

I'm so very sorry to hear this and wish her peace.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Posts: 127
Joined: Mon Jan 07, 2019 1:50 am

Re: Our Miss Molly/Karen going into hospice

Postby brokenwings » Sun May 26, 2019 2:13 pm

I'm so sorry. She'll be in my prayers.
DX 2019 Adenocarcinoma Sigmoid colon. PC + ovarian met.
Obstruction. Temporary colostomy.
Folfirinox + Avastin: 6 cycles. Scans: partial response.
Surgery (CRS + HIPEC) 04/29: too much disease, surgery cancelled. Right ovary removed.
2nd ptotocol: IP chemo (oxaliplatin) + IV chemo (Folfiri + Avastin). 8 cycles
10/31/2019: 11 hour-long Hipec + 6 weeks in hospital
12/30/2019: liver met
02/05/2020: reversal surgery. New peri mets discovered
March 2020: 5fu+Avastin
May 2020: fistula
Back to 1957: 5fu.

Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: Our Miss Molly/Karen going into hospice

Postby stu » Sun May 26, 2019 4:23 pm

Peace be your journey ,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Our Miss Molly/Karen going into hospice

Postby susie0915 » Sun May 26, 2019 4:50 pm

This news makes me so sad. Praying for her and her family.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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Joined: Fri Feb 06, 2009 10:07 am

Re: Our Miss Molly/Karen going into hospice

Postby ams5796 » Sun May 26, 2019 6:58 pm

Miss Molly has been such a loving and bright light on this board. I am truly sad to hear this news.

I wish her a peaceful journey surrounded by love.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Our Miss Molly/Karen going into hospice

Postby mpbser » Mon May 27, 2019 5:03 am

So very sorry to hear this. :( I am sending prayers in her direction.
Wife 4/17 Dx age 45
5/17 LAR
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles

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Location: New Jersey

Re: Our Miss Molly/Karen going into hospice

Postby Beckster » Mon May 27, 2019 7:03 am

Miss Molly has been an inspiration to all on this forum. My thoughts and prayers are with her and her family.
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
LN: 0/24
LVI present
Surgical margins: clear
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0
Clear Colonoscopy 10/17, 11/19 :D

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