Cmarie03 wrote:So I just spoke with my surgeons PA about my surgery which is scheduled for 8/20. She informed me my whole rectum would be removed which was news to me. I do not remember getting that news. The surgeon said she should be able to hook me back up. I am spiraling about having the whole rectum removed bc I’ve read on here so many people having issues afterwards. Can any of you let me know your experiences with this? I am having a hard time with it. Thank you
Cmarie03 wrote:So I just spoke with my surgeons PA about my surgery which is scheduled for 8/20. She informed me my whole rectum would be removed which was news to me. I do not remember getting that news. The surgeon said she should be able to hook me back up. I am spiraling about having the whole rectum removed bc I’ve read on here so many people having issues afterwards. Can any of you let me know your experiences with this? I am having a hard time with it. Thank you
Phillypatient wrote:... My experience is the LARS simply sucks and you should check out the topics discussing this and the potential outcomes/solutions on this discussion forum. There is a tremendous amount of info that most doctors will sadly never tell you...
Jeanee Wright wrote:LIVING WITH LARS (Website)
- Colorectal Cancer Site: on LARS
- UK Bowel Cancer Site
- Clinical Report on LARS
- Podcast Discussing LARS
- National Association for Continence
- International Continence Society
- Bathroom Scout- Worldwide Bathroom Finder App
- Got to Go Restroom Finder App
- Charmin’s Sit or Squat Restroom Finder App
- Suicide and Depression Lifeline
- Coloplast Managing Resection Toolkit
- Living With Low Anterior Resection Syndrome
PDF file download: lars-patient-guide-amended-feb-24-2019-2-2https://livingwithlars.com/about-us/
- Strategy 1- Diet
- Strategy 2- Exercise and Exercises
- Strategy 3- Biofeedback
- Strategy 4- Sacral Nerve Stimulator
- Strategy 5- Mindfulness
- Strategy 6- Medications and Supplements
- Strategy 7- Lower Colon Irrigation
- Strategy 8- Bowel Training Program
- Strategy 9- Skin care- Prevention and Management
- Strategy 10- Practicality Tips
- Strategy 11- Returning to Work
- Strategy 12- Sex and Intimacy with LARS
- Strategy 13- Alternative Medicine
- Strategy 14- Professional Support
Jeanee Wright
Green Tea wrote:Cmarie03 wrote:So I just spoke with my surgeons PA about my surgery which is scheduled for 8/20. She informed me my whole rectum would be removed which was news to me. I do not remember getting that news. The surgeon said she should be able to hook me back up. I am spiraling about having the whole rectum removed bc I’ve read on here so many people having issues afterwards. Can any of you let me know your experiences with this? I am having a hard time with it. Thank you
I think it would help if you were to update your signature so that it contains full, accurate, technical terms pinpointing your precise diagnosis and precise treatment plan, including the precise location of your tumor within the rectum, the technical name of the "big surgery" scheduled for August, and clarification of the term "whole rectum". I think you need to avoid using general terms like "big surgery", and instead use the relevant technical medical language. Perhaps your sister-in-law or your brother could help you with this since they have been trained in medicine.
I think it would be especially useful for you to learn to use the technical anatomical terms relevant to your upcoming surgery so that you can understand the full extent of what is being planned for your upcoming surgery, and so that you can counter with a reply using technical terminology when someone like a PA says something very general like "whole rectum".
Here are two annotated diagrams containing technical terms:
Uro-genital system, ...Anal/rectal anatomy
Here is a prior post outlining some of the surgical options for Very Low Rectal (VLR) tumors:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=62467&p=492427#p492427
Here is a post mentioning a successful surgery for a very low rectal tumor:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=62441&p=492363#p492363
Phillypatient wrote:... My experience is the LARS simply sucks and you should check out the topics discussing this and the potential outcomes/solutions on this discussion forum. There is a tremendous amount of info that most doctors will sadly never tell you...
Cmarie03- My suggestion, too, would be to start educating yourself about LARS right now if it looks like you will be having a colo-anal anastomosis,or an Ultra-Low Anterior Resection (ULAR), or a J-pouch surgery, etc. These types of surgeries, with a very low re-connection, are likely to trigger some degree of LARS, and the sooner you start educating yourself about the problem the better.Jeanee Wright wrote:LIVING WITH LARS (Website)
- Colorectal Cancer Site: on LARS
- UK Bowel Cancer Site
- Clinical Report on LARS
- Podcast Discussing LARS
- National Association for Continence
- International Continence Society
- Bathroom Scout- Worldwide Bathroom Finder App
- Got to Go Restroom Finder App
- Charmin’s Sit or Squat Restroom Finder App
- Suicide and Depression Lifeline
- Coloplast Managing Resection Toolkit
- Living With Low Anterior Resection Syndrome
PDF file download: lars-patient-guide-amended-feb-24-2019-2-2https://livingwithlars.com/about-us/
- Strategy 1- Diet
- Strategy 2- Exercise and Exercises
- Strategy 3- Biofeedback
- Strategy 4- Sacral Nerve Stimulator
- Strategy 5- Mindfulness
- Strategy 6- Medications and Supplements
- Strategy 7- Lower Colon Irrigation
- Strategy 8- Bowel Training Program
- Strategy 9- Skin care- Prevention and Management
- Strategy 10- Practicality Tips
- Strategy 11- Returning to Work
- Strategy 12- Sex and Intimacy with LARS
- Strategy 13- Alternative Medicine
- Strategy 14- Professional Support
Jeanee Wright
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