Macpud- You’ve received lots of advice here.
Sorry you are going through all of this.
I’m back on Avastin— but don’t mind it, as I am so happy to be done with chemo. Folfiri lowers my blood counts. We all need to allow our Innate Immune System to be as strong as possible. Especially with the Coronavirus all around. My blood counts are pretty normal again.
They consider me an epileptic now, as I’ve had multiple seizures. Which are now curtailed by anti-seizure meds + I am in a Ketogenic state. I found a local epiliptologist who believes in treatment by the Ketogenic diet. For now he also insists that I take the meds. My seizures emanate from a “focal point” which is the hollow spot and scar tissue where my tumor was removed from my brain. Fortunately they removed all of it & 5 MRIs all show nothing new.
. And my brain tumor was metastatic Rectal cancer. I believe that Avastin is one of the few things that gets through the blood-brain barrier; plus it targets possible cancer growths throughout the body.
Assuming that my urine and blood tests are in range beforehand: I get another treatment on Monday morning.
May God comfort you; and give strength to you and your care givers.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgn Remvd 90%Rectm,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
FOLFOX 8 Cyc,1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 yrs
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9
CEA 4.5 after 1 chemo
8rds CEA 3
CEA 1.8, 2.3,1.7,2.2,5.7,5.3,188.8.131.52,8.4,9.1,10
12 rd Folfiri
Avastin ev 2 wks
Seizure Anti-seiz meds work-no driving for 6m
4-20PET: Lng spots=Chemo
2-21 tumor gth =Folfiri