mslaurie wrote:What do you know about your husband's MSS/MSI status? If he's a candidate to immunotherapy, that could solve all of his problems
Not even sure what you mean by MSS/MSI.
No options were offered to my husband except pallative care Oxaliplatin (IV) and Capecitabine (oral). Said surgery is not an option due the number of nodules in his peritoneal. They did say remission could be possible again but really did not offer or even mention any other treatment option then what I listed above.
They will do a PET scan to see just how advanced his cancer is.
That's all we know.. we will take it one day at a time.
It's a long shot, yes (5%) but if your husband's MSI he could do immunotherapy and get cured.
mslaurie wrote:It's a long shot, yes (5%) but if your husband's MSI he could do immunotherapy and get cured.
I'm a little hesitant to have faith in the word "cured" at the moment. He was NED for 9 1/2 years essentially considered "cured" which on some reports after 6 years of being NED is considered cured.
His cancer "Still" came back like a vengeance just like it never left in the first place in less then a year from scans showing nothing, CEA normal, colonscopy and upper GI all clear all withing 6 months and "Wham" here we go again.
Still trying to keep hopes up that he will go into at least remission doubt with peritoneal mets that NED is ever going to be an option anymore but one can always hope.
According to his ONC stage IV there is no real cure per say - there might be periods of years where one is NED and then a recurrence after a while and treatments have to start again as he explained it its called palliative care when this happens. Seems when I look at some of the members past diagnosis and treatments quite a few seem to be on pallative care.
So for those of you that are stage IV that have bouts of NED and then recurrence and more chemo or ones who never achieve NED and have chemo on and off for years. How do you manage? I mean do you seem to have a normal life?
I'm just worried that chemo will just make my hubby sick all the time and be miserable. The side effects seem like they will be awful!
Sure cancer may end his life at some time with or without chemo but how does one know when Quality of life becomes a question?
I thought a lot about your husband's situation... Was cancer living in his body all of these years? I thought about the fact that scientists say that we all have cancer cells in our bodies but for most people, their immune system is capable of getting rid of them...
Ron50 wrote:I am truly sorry to see you and your husband in the position you find yourselves. Sometimes life really is not fair. I have to wonder if the hit your husbands system, particularly his immune system, from his heart attack has given cancer a free reign. I was dxed stage 3c and my surgeon almost gave it to me in writing that I would not last three years. I reached 21 years post cancer in January this year. I have to take cyclosporine twice a day to keep my kidneys functioning. It is a transplant grade immunosuppressant and most people who have had transplants are more likely to succumb to cancer than any other cause.
I wish you both well and hope that they can do something to get your hubby through this, Hugs Ron,
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