Rikimaroo wrote:Thanks my brother swirdfish appreciate that feedback. I am here in Tampa Florida today to get a second opinion at Moffitt Cancer center just to cover all bases.
Folfiri is tougher then folfox I feel. My docs at Cleveland clinic here in Fl wanted to do more chemo to shrink the pelvic recurrence even more or possibly eradicate it but my thing is if that last four rounds shrunk it by half I prefer to get that sucker cut out. We also spoke to my surgeon at CC and he said surgery is an option but wants me to have surgery with intraoperative radiation which they do not have at CC Weston only Ohio has it. So they suggested Moffitt which has it.
So here I am went to bed at around 11:30 am and clustered the entire night didn’t get a lick of sleep. I blame it on eating La Brasa the beans you add to your rice cause I have been gassy as hell farting all night which also burns my ass!! I even popped three Imodium total. I think it’s finally stopped but still busting some farts which honestly I hate because not as fun like before alll this. I would recommend avoiding beans folks that have had reversal
Anyways that’s my update of my journey so far. Hoping they say stop chemo let’s plan on surgery chemo really sucks it’s absolutely necessary evil for sure.
Rikimaroo wrote:Thanks my brother swirdfish appreciate that feedback. I am here in Tampa Florida today to get a second opinion at Moffitt Cancer center just to cover all bases.
Folfiri is tougher then folfox I feel. My docs at Cleveland clinic here in Fl wanted to do more chemo to shrink the pelvic recurrence even more or possibly eradicate it but my thing is if that last four rounds shrunk it by half I prefer to get that sucker cut out. We also spoke to my surgeon at CC and he said surgery is an option but wants me to have surgery with intraoperative radiation which they do not have at CC Weston only Ohio has it. So they suggested Moffitt which has it.
So here I am went to bed at around 11:30 am and clustered the entire night didn’t get a lick of sleep. I blame it on eating La Brasa the beans you add to your rice cause I have been gassy as hell farting all night which also burns my ass!! I even popped three Imodium total. I think it’s finally stopped but still busting some farts which honestly I hate because not as fun like before alll this. I would recommend avoiding beans folks that have had reversal
Anyways that’s my update of my journey so far. Hoping they say stop chemo let’s plan on surgery chemo really sucks it’s absolutely necessary evil for sure.
Rikimaroo wrote:Just a quick update. I am taking a minor break from chemo, until July 22nd when I get my next pet scan. I just did a FOLFIRI treatment Wednesday June 26th. So I should be fine. Doc is cool with the break, its been hard, the nausea, taste bud loss, makes everything so difficult. Enjoying life sucks when on chemo....Pooping seems to be fine, I go maybe 2 times a day, but it really depends on what I eat. I have to avoid BEANS. It causes alot of gas and clustering from what I have found. Yesterday I had 2 bowel movements, first one I spent like 40 minutes on the toilet, then the 2nd one came about 20 minutes after the first one and it was a major blowout. I know when I am going to have a blowout because my my abdomen starts to churn like your going to have diarrhea.
Had a nice Fourth with the family. God Bless all my friends on here, lets kick cancers butt.
Rikimaroo wrote:Hello All,
Another update. So I got my pet scan on Monday and it came back that the pelvic recurrent tumor shrunk even more and they think surgery is a possibly. So Doctors are meeting on Monday Tumor Board to discuss my case. I am hoping and praying that I can get the surgery to get this damn thing out of here, and maybe do some mop up chemo and once and for all be free of this disease.
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Users browsing this forum: Google [Bot] and 381 guests