A forum suggestion - including location in Signatures

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Rock_Robster
Posts: 105
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

A forum suggestion - including location in Signatures

Postby Rock_Robster » Thu May 16, 2019 7:42 pm

Hi all,

Something I’ve come to notice is that both the approaches to treatment, and also the treatments available, can vary fairly significantly by country. There can also be considerations around access to care (eg health insurance in the US, NHS in the UK, Medicare in Australia) which may need to be factored in.

I wonder hence if it might be helpful to recommend including your location in forum signatures. Just country-level is probably sufficient given most folk would likely consider some domestic travel for treatments (although US patients may want to include their state as well).

Thanks,
Rob
Male 37 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
MSS, MMR-proficient, mutated in NRAS (G13R).
CEA: Oct-18 = 12; Nov-18 = 14, Mar-19 = 2.4
11/18 - 6 cycles neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, R0
4-5/19 - Long-course pelvic chemoradiation (45 Gy w/ Xeloda)
07/19 - Planned restaging scans and ULAR w temp ileo

User avatar
CRguy
Posts: 9903
Joined: Sun Feb 10, 2008 6:00 pm

Re: A forum suggestion - including location in Signatures

Postby CRguy » Thu May 16, 2019 8:15 pm

While I see nothing wrong with your suggestion,
I do know some folks may not wish to post too many "specific" personal details in an online forum,
so I would suggest keeping any signature entries generic.

Actually the reason I started the topic: Calling ALL Colorectal CANUCKS !
was just for that very reason you stated :
this is a US based discussion forum ....
BUTT ... we have members from everywhere around the world
AND ... ColoRectal Canucks had specific healthcare considerations which were not always directly referable to the US situation.

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Rock_Robster
Posts: 105
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: A forum suggestion - including location in Signatures

Postby Rock_Robster » Thu May 16, 2019 8:27 pm

Absolutely agree CRguy - would be entirely voluntary of course, and only suggest at a level which wouldn’t jeopardise anonymity.
Male 37 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
MSS, MMR-proficient, mutated in NRAS (G13R).
CEA: Oct-18 = 12; Nov-18 = 14, Mar-19 = 2.4
11/18 - 6 cycles neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, R0
4-5/19 - Long-course pelvic chemoradiation (45 Gy w/ Xeloda)
07/19 - Planned restaging scans and ULAR w temp ileo

User avatar
CRguy
Posts: 9903
Joined: Sun Feb 10, 2008 6:00 pm

Re: A forum suggestion - including location in Signatures

Postby CRguy » Thu May 16, 2019 8:41 pm

I guess another option would be to have folks add their "LOCATION"
in the User Control Panel under
Profile / Edit Profile

ucp.php?i=ucp_profile&mode=profile_info
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Jannine
Posts: 145
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: A forum suggestion - including location in Signatures

Postby Jannine » Sat May 18, 2019 7:39 am

Using the location field makes sense to me, since the signatures already can get too long for the forum software's peace of mind.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8

NHMike
Posts: 1978
Joined: Fri Jul 21, 2017 3:43 am

Re: A forum suggestion - including location in Signatures

Postby NHMike » Mon May 20, 2019 11:04 am

I like at least a relative location as it does pertain to coverage and the hospitals available. My approach is to put it in my username.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Rock_Robster
Posts: 105
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: A forum suggestion - including location in Signatures

Postby Rock_Robster » Tue May 21, 2019 1:23 am

NHMike wrote:My approach is to put it in my username.

Is that what that means! I had wondered... :D
Male 37 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
MSS, MMR-proficient, mutated in NRAS (G13R).
CEA: Oct-18 = 12; Nov-18 = 14, Mar-19 = 2.4
11/18 - 6 cycles neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, R0
4-5/19 - Long-course pelvic chemoradiation (45 Gy w/ Xeloda)
07/19 - Planned restaging scans and ULAR w temp ileo

Rock_Robster
Posts: 105
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: A forum suggestion - including location in Signatures

Postby Rock_Robster » Tue May 21, 2019 1:29 am

I also won’t bring up the date formatting issue, but given I’m VASTLY outnumbered here I’m happy to comply with my American friends :)
Male 37 years; Melbourne, Australia
10/2018 Dx: 3.5 cm rectal adenocarcinoma, 10 cm from verge. Well/mod diff (G1-2), T3bN1bM1a.
3 enlarged local lymph nodes and 4 liver lesions.
MSS, MMR-proficient, mutated in NRAS (G13R).
CEA: Oct-18 = 12; Nov-18 = 14, Mar-19 = 2.4
11/18 - 6 cycles neoadjuvant FOLFOX
12/18 - DVT, started clexane
3/19 - Liver resection, R0
4-5/19 - Long-course pelvic chemoradiation (45 Gy w/ Xeloda)
07/19 - Planned restaging scans and ULAR w temp ileo

Eleda
Posts: 293
Joined: Thu Dec 28, 2017 2:28 am
Facebook Username: adele Morgan
Location: Ireland

Re: A forum suggestion - including location in Signatures

Postby Eleda » Tue May 21, 2019 5:07 am

I think it's a great idea,
Let it be volantery then people hand make their own decisions,
Being that im n Ireland I'm also the minority,and haelthcare and protocol differ enormously,
ADELE X
SWF, 47
Mom to 3 sons 6/8/12
Dec4th 2017 colonoscopy for minor intermittent rectal bleeding during Summer
CEA 4.4
DX T3 L3C M0 2.5/3 cm above AV.
JAN 3RD started 1650mg Zelda 2xday, with 28 radiation
Did tagamet 800mg daily and 75mg IV VIT C WEEKLY UNTIL SURGERY and
Tumor reduce by 80% 1 LN still remaining
TATME May10th, temp illeostomy
10/07/2018 CEA 3
MMR INTACT
Began FOLFOX July 10th
24/08/2018 Allergic reaction so next infusion lucovorin and 5fu
CEA 4
Second attempt with oxi aug 12th

stu
Posts: 1103
Joined: Sat Aug 17, 2013 5:46 pm

Re: A forum suggestion - including location in Signatures

Postby stu » Tue May 21, 2019 5:36 pm

You made me laugh about the date . I did not realise till I jointed here and though it was a typo . But as you say we are vastly outnumbered on that one . Ha .
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jannine
Posts: 145
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: A forum suggestion - including location in Signatures

Postby Jannine » Tue May 21, 2019 8:35 pm

I had guessed that NH stood for New Hampshire! I don't think I could use my state's abbreviation in my name because I'm in Maryland. For the non-US folks, the abbreviation is MD. Wouldn't want people to think I'm a medical doctor; I'm not! :)
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8


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