Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 98
Joined: Tue May 22, 2018 4:04 pm


Postby Mohrfamily » Wed May 15, 2019 10:12 am

I apologize if this thread is active already but I did a CEA search and returned nothing even though I vaguely remember putting something out there previously.

So DH has been fighting are for 1 full year. His CEA was the highest (unreadable) a 30 year veteran nurse had ever seen. After a few months that number dropped and dropped. Its lowest has been in the 50s he's back up in the 90s and I keep trying to tell myself its because he was forced to take a break from all chemo in order for 2 surgical spots to heal (mole removal NOT CANCEROUS & toenail removal due to chemo causing ingrowns)

I've suggested he talk about a new colonoscopy since its been a year since his last but for obvious reasons is reluctant. How often should he get colonoscopies? Needing a little encouragement today.
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

Posts: 142
Joined: Sun May 07, 2017 11:01 am


Postby Tdubz » Wed May 15, 2019 9:24 pm

I was told to get a colonoscopy every year for 5 years. His oncologist or gastroenterologist should be able to tell him the frequency he needs to get them at.

Posts: 4
Joined: Sun Mar 03, 2019 5:27 am


Postby Wewillfight » Thu May 16, 2019 4:00 am

I don't believe a colonoscopy is needed.

From what you are saying, He is having lots of scans? He has active tumours which are being treated by the chemo.

Posts: 196
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ


Postby Pyro » Thu May 16, 2019 9:12 am

I as told 1 year after colectomy, after that was complete and clean, I was told 3 years.
Aug 2015- Diag Stage 4 CC with mets to liver (38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not a surgery candidate for liver
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery, Dr. Vauthey
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda, CEA @30(3), shit still here

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: Green Tea and 34 guests