Looking for Options for un-resectable lung Mets

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RobM
Posts: 24
Joined: Wed Nov 05, 2014 4:29 pm

Looking for Options for un-resectable lung Mets

Postby RobM » Tue May 14, 2019 1:38 pm

Hello All,

It has been awhile since I have posted. I have been doing treatments for my lung mets since April of 2016. I have been through all the typical chemo treatments i.e.. Irinotecan with Avatin, and Cetuximab and even tried Oxaliplatin at a reduced dose due to anaphylaxis in 2014, only to be spend 4 more days in the hospital due to another reaction. My Dr. is now trying me on Strivarga , I should be starting in a couple of weeks, we are currently waiting for insurance approval. My mets are not resectable as there are too many ( 8 at last scan with 3 of them 3 cm or a little larger) bilateral.

I have read that there are some doctors that can perform laser surgery. Does anyone have any experience with this?or know where to go? I heard Germany and London but I am not sure who to contact? Or does anyone have another recommendations for other treatments? I am running out of options.
Rob 43
DX August 2014 T3n1m0
CEA 27
10/30/2014 6 wks chemorad 5-fu
CEA19
APR December 18th 2014 6/10 nodes positive
CEA Down to 5.3 / 5 weeks post op
FOLFOX 1/27/2015
Reaction to 2nd Round Oxi 2/10/2015 3 days in the hospital
5-fu only CEA down to 3.2
5/5/15 CEA 2.6
6/17 CEA 2.2
7/14 CEA 1.8

Claudine
Posts: 21
Joined: Tue Mar 12, 2019 2:41 pm
Facebook Username: Claudine Tobalske

Re: Looking for Options for un-resectable lung Mets

Postby Claudine » Tue May 14, 2019 3:33 pm

Hello RobM,
Did your doctor mention SBRT (Stereostatic Body radiation Therapy) as an option? My husband had the procedure done for a lumbar spinal met that was resistant to standard radiation. It is so focused that it does not affect adjacent healthy tissue like standard radiation does.
Best of luck,

Claudine
Wife of Dx 04/18 (51 yrs old then)
No primary found, lytic tumor L4 vertebrae, CEA 10
Radiation 04/18
Resection small intestine 05/18 (activity on PET scan, but no cancer found)
Xelox * 6, 05/17 to 10/18
5.3 cm hypermetabolic left adrenal mass 01/19
SBRT L4 02/19
Folfiri + Avastin
CEA 58 03/15
CEA 17 03/29
CEA 10 04/12
CEA 6.4 04/26
CEA 5 05/10

Claudine
Posts: 21
Joined: Tue Mar 12, 2019 2:41 pm
Facebook Username: Claudine Tobalske

Re: Looking for Options for un-resectable lung Mets

Postby Claudine » Tue May 14, 2019 3:36 pm

Wife of Dx 04/18 (51 yrs old then)
No primary found, lytic tumor L4 vertebrae, CEA 10
Radiation 04/18
Resection small intestine 05/18 (activity on PET scan, but no cancer found)
Xelox * 6, 05/17 to 10/18
5.3 cm hypermetabolic left adrenal mass 01/19
SBRT L4 02/19
Folfiri + Avastin
CEA 58 03/15
CEA 17 03/29
CEA 10 04/12
CEA 6.4 04/26
CEA 5 05/10

stu
Posts: 1065
Joined: Sat Aug 17, 2013 5:46 pm

Re: Looking for Options for un-resectable lung Mets

Postby stu » Tue May 14, 2019 3:50 pm

Hi ,
If you use the search function ( small magnifying glass on the top right ) and type in “Any surgeons doing laser surgery “. All the contact information is there . Sophy has included the contact phone number for Dr Drewes in Germany and you can read the feedback from the people who have had the surgery .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

JulesW
Posts: 12
Joined: Thu Jun 21, 2018 1:48 pm

Re: Looking for Options for un-resectable lung Mets

Postby JulesW » Tue May 14, 2019 4:07 pm

Hi Rob,
I had bilateral lung mets removed using laser-assisted pulmonary metastatectomy in Germany in October 2018 and November 2018. I had four mets in my right upper lung and three mets in my left lower lung and was told they were not resectable. I sent my latest CAT scan images to Dr. Drewes in Coswig, Germany and he said they were resectable but they would probably need to take most of the left lower lobe. In short, the procedures were successful and I spent six weeks in Germany. There are two spots in my lungs that we are following now which are thought most likely to be post surgical change but I am back on chemo, getting regular surveillance CAT scans. I’m prepared for the next step if they grow.
Best wishes
Jules W
Dx at 46 rectal ca. 12/16
CT scan 1/17 4 spots R upper lung largest 8 mm
f/u CT scan 4/17 showed spots in lung stable
LAR 1/17 rectal tumor stage 2b, 0/30 nodes pos
Xeloda x 6 mos
CT 6/18 - 4 nodules right upper lung had inc. in size, also 3 new spots in left lower lung
6/18 folfiri + Avastin x 5 cycles
radiation onc and surgeon say too many nodules
LAPM Germany 10/18 - 10 nodules removed right lung, 4 cancer
11/1/18 R pneumothorax - chest tube placed surgically
11/6/18 planned LAPM for L lung


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