Boys0406 wrote:... I have been trying to research and figure out which ones are considered distant and would make it stage 4 cancer. We won’t see our oncologist again for a few weeks as we see the oncology nurse this week and when we asked her last time she did not know. Does anyone out there have experience with this? Does anyone know which lymph nodes are the distant ones? ...
Boys0406 wrote:In response to your question boxhill, my husband has not been genetically tested yet. The problem is that my husband doesn’t want to research, go through the reports, look at blood levels, his PET scan and then ask questions etc... There’s a few reasons for that, one is that he is not the type to look into all the details, research and ask questions about what he discovers. Two, he is working full time as a lawyer(long hours) while he goes through chemo and when he’s home he is just too tired. Finally, it’s just too depressing and anxiety producing(which I totally understand). He thinks I am spending too much time looking into everything and “obsessing” as he says, while I am the type of person that needs to fully understand everything. I just have lots of questions that I want answered.
To be fair, we also only actually get to see his oncologist about once a month because he’s on two week cycles. So we see him once, then the oncology nurse. I also find out information that I have questions about and my DH doesn’t think we need to ask etc... I told him that we should just send him a message through the online system the healthcare center has, but he just wants to wait until the scan. Frustrating! I also don’t want to worry him by telling him everything I read or ask the oncologist a question he isn’t ready to hear the answer to either. I just want to b proactive.
I feel he is just trying to think positively and wants to just concentrate on being done with this chemo regimen. Whereas, I want to be prepared for the worst and I realize that it often recurs. Even if we get a clean scan this time, it may not be over(although we hope it is).
Sorry for the rambling, been frustrated about this for awhile.
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