Anyone pass out after abdominal cramping??? ER time

Please feel free to read, share your thoughts, your stories and connect with others!
mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Mon May 13, 2019 5:14 am

What a night!

My husband woke me up at 1:00 am this morning telling me that he was concerned about the severe abdominal cramping he was having. He said that it was in the area of his incision, mid belly-ish, and worse when lying down. We called the on-call doctor at MSK who reviewed his symptoms and said it may be prudent to go to the ER.

He is on day 7, now 8, of HAI FUDR. He describes the pain as being what he feels a few days after disconnect from Folfiri (last round of that was 4/29-5/1), which has happened after both of his two, so far, Folfiri treatments. Thus, we find it odd and worrisome that it was happening at this time in his cycles. I gave him some sodium bicarbonate in case he was having small intestinal gas before we left for the ER.

At the ER, he had bloodwork, adbominal xrays, and an EKG/ECG. Bloodwork shows low hemoglobin again, 2 points lower than last week, same with hematocrit, better MCV, elevated WBC and neutrophils, and low potassium. Cardiac and pancreatic markers were fine. EKG/ECG was normal. Xrays looked good so the doctor wasn't worried about obstruction. The nurse heard gas in his bowels moving around so I think the sodium bicarbonate loosened it up. The cramping went away while we were there.

Here's the distressing part: Before the nurse drew his blood, his BP was 129/81. Awesome for him! Then, she drew five vials and his eyes widened..."I hate needles" etc... He started to feel nauseated, retched, and his BP bottomed out. He also went unconscious for a moment. BP was 87/51. They called "vagaling" and he had "vagaled." Within a half hour to 45 minutes after the blood draw and vasovagal syncope, it went to 112/63, low for him. Since everything was looking okay, he was discharged.

Then we get home. He walked slowly up the stairs, walked to the bathroom, and then fell unconscious again. He came to, after a few seconds, but I was a bit hysterical and called 911. My husband said he was fine, it was just from walking up the stairs.

He drank a sugar-free gatorade and I gave him a potassium tablet.

He went to bed in the bedroom and he is sleeping. I am so worried. I don't think it was normal for him to pass out again. I am calling Dr. Kemeny's office in a couple of hours.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

AmyG
Posts: 219
Joined: Tue Dec 25, 2018 8:08 pm

Re: Anyone pass out after abdominal cramping??? ER time

Postby AmyG » Mon May 13, 2019 11:15 am

It's been a few hours, how are things now?
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Mon May 13, 2019 11:56 am

He had a little sleep. He still is getting lightheaded whenever he stands up from a lying position. Seems odd that this is still happening. No answers from Dr. Kemeny's team. "Stay hydrated and take it easy" is all they said.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

martd
Posts: 106
Joined: Tue Nov 21, 2017 3:48 pm
Location: Phoenix, Az

Re: Anyone pass out after abdominal cramping??? ER time

Postby martd » Mon May 13, 2019 12:21 pm

How is his blood pressure, is it still low?
49 y/o male dx 11/2017 crc
Stage 4 with 17 liver Mets, cea 490
RAS, BRAF WT Tp53 LOF
12 rounds folfox , avastin
5/18 cea 2.8 liver resection and pve
7/18 part 2 liver resection, remove right side of liver
Surgical site mrsa infection, wound vac
8/18 cea .9 cCR, rectal tumor is gone
Rectal surgery postponed, watch and wait
10/18 clear scan CEA .7
01/19 clear scan CEA .9
04/19 clear scan CEA .9
07/19 clear scan CEA 1.0

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Anyone pass out after abdominal cramping??? ER time

Postby LPL » Mon May 13, 2019 3:08 pm

mpbser wrote:He had a little sleep. He still is getting lightheaded whenever he stands up from a lying position. Seems odd that this is still happening. No answers from Dr. Kemeny's team. "Stay hydrated and take it easy" is all they said.

Dear S, what a scary experience! So you did not get any answers from Dr K as to why this could happen? Is it maybe a side effect to the chemo or? Sending hope that your DH will feel better soon! and for you to not have to worry about this happening again.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Mon May 13, 2019 8:28 pm

No answers. I had to call back this afternoon because he was still symptomatic with lightheadedness and was unsteady on his feet. I wanted to let them know about this even though I had no clue how important it was or not. Dr K did not like how it sounded at all and insisted that we get back to a hospital for IV fluids. We returned to our local hospital where I dropped my husband off at the ER. I had to go home to tend to our dog and a few other things and when I returned to the ER I saw my husband violently vomiting. He essentially threw up all the fluids he had ingested. Very concerned, he stated very firmly that he intended to have them admit him as he was not interested in being in and out of the ER multiple times.

His red blood cells keep dropping and now his creatinine is below normal. The last I heard, they are waiting on the results of a CT scan. Fortunately, we have a good friend coming up from New York City who should be arriving any minute. He happens to be an EMT. I have been trying to sleep for the last hour but I am worried sick.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Mon May 13, 2019 9:00 pm

EMT friend, Who is with him right now, says that our local hospital is transferring him down to New York City (MSK). I don’t know why but I assume it has to do with the results of the CT scan.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

Milk Tea
Posts: 29
Joined: Wed Feb 13, 2019 1:14 pm

Re: Anyone pass out after abdominal cramping??? ER time

Postby Milk Tea » Mon May 13, 2019 9:11 pm

I know it’s very difficult to do but please try your best stay calm and strong. Sending you and your husband positive thoughts. Hope he feels better very soon.
Wife to DH
09/2016: Dx at 50, CC Ascending colon, 10+ liver Mets
KRAS-Mut G12V, MSS, CEA 8
09/2016: Nearly blocked, Emergency colon surgery (LAR)
FOLFOXIRI+Avastin: 6 before and 6 after liver resection
01/2017: Liver resection, open, both lobes, 40% total liver cut, tumors either cut out or microwave ablation burn, all tumors are out
02/2017-01/2019 : Clean CT every 3-4 months, CEA between 2-3
06/2017-Present: Maintenance Chemo: Xeloda + Avastin

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Mon May 13, 2019 10:16 pm

Internal bleeding
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

AmyG
Posts: 219
Joined: Tue Dec 25, 2018 8:08 pm

Re: Anyone pass out after abdominal cramping??? ER time

Postby AmyG » Mon May 13, 2019 10:34 pm

Well damm, bleeding stemming from? Hope you guys both are doing alright.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Anyone pass out after abdominal cramping??? ER time

Postby LPL » Tue May 14, 2019 4:57 am

mpbser wrote:Internal bleeding

:cry: not what you wanted to hear.
I hope they can find the source and help him.
Thinking about you both.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met

User avatar
ginabeewell
Posts: 273
Joined: Wed Oct 24, 2018 10:30 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby ginabeewell » Tue May 14, 2019 7:52 am

I mentioned your situation to my husband when I got home and turns out he had been connecting with you on Facebook. We are both praying for you.
45 year old mom of twins (7) and lucky stepmom of 13 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 Surgery: HAI pump placement / colon resection
4/8/19 Resume chemo (#9-12) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/18: 1st of 2 liver resections

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: Anyone pass out after abdominal cramping??? ER time

Postby mpbser » Tue May 14, 2019 6:15 pm

Thank you.

At MSK now finally. They brought him into interventional radiology to do possible embolization depending on what they find. They will also maybe put a stent around the catheter because it looks like the catheter is leaking. I honestly don't know if I'm separating things or mixing things up right now. They will keep me posted and consult with me once they go in and get a good picture of what's going on via angiogram.

I have never seen him in so much pain in my entire life. Essentially what’s going on is that chemo is being leaked into his abdomen.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

Jannine
Posts: 163
Joined: Wed Jun 20, 2018 7:46 am
Location: Maryland, USA

Re: Anyone pass out after abdominal cramping??? ER time

Postby Jannine » Tue May 14, 2019 8:40 pm

holy crap, that sucks!!! I feel for you both. I hope they get things straightened out ASAP. Seeing someone you love in that kind of pain is a hell of its own.

My husband has vasovagal syncope. There's a very straightforward test called a tilt table test that will diagnose it, if your husband may have it. It sounds like that's probably not the main problem in his case, though, and a bunch of other things are going on. You are both in my thoughts.
DX: sigmoid colon cancer 5/2018. 48 F
laparoscopic sigmoid resection (24 cm removed); no stoma.
7.5cm adenocarcinoma -- mod. diff.
1 noncontiguous tumor deposit removed; 0/31 lymph nodes
T3 pN1c M0
5/18 before surgery, CEA 11.2
6/18 began FOLFOX
7/18: CEA 1.9; added neulasta post infusion
9/18: CEA 2.8
10/18: 25% chemo reduction
11/18: CEA 1.8
7/19 CT scan clear

AmyG
Posts: 219
Joined: Tue Dec 25, 2018 8:08 pm

Re: Anyone pass out after abdominal cramping??? ER time

Postby AmyG » Tue May 14, 2019 9:35 pm

Was looking for an update on your husband before I went to bed.

Sounds like an absolute shitstorm.

Thinking about you both!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: nz1 and 36 guests